2018 Epilepsy Pipeline Conference

Watch Community Day of the 2018 Edition of the Epilepsy Foundation Conference, Live from San Francisco on Saturday, February 24

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Wendy says:

“I have epilepsy. And I’d like to share my seizure with you.”

I want you to see it so you won’t be afraid.

“When you have epilepsy, you ask yourself, ‘Will the seizure happen now? Who will see? Am I still me?’"

 

Sarah says:

I have epilepsy and I had a seizure on live TV.

"When the same people who wanted to know me and support me wanted nothing to do with me that's what really stunk. I want to share my seizure to help people understand that there are many different kinds of epilepsy and that there are many people who don't know what to do when it happens."

If I can help anyone, I would be willing to show it a million times over.

Wendy asks you:

Would you know how to help me when it happens?

These pages provide answers about how you can help. Visit them, learn, then share them with others.

Do you know there are different seizures and they look very different?

Many different things can occur during a seizure. Whatever the brain and body can do normally can also occur during a seizure. Learn about the different types of seizures and epilepsy syndromes on the pages below. Then share the pages with others to help them understand the spectrum of epilepsy.

Could you have epilepsy and not know it?

Approximately 1 in 26 people in the United States will develop epilepsy at some point in their lifetime. Epilepsy strikes regardless of age, gender, or race. Help others understand the facts about epilepsy and seizures by sharing these pages.

Join the Conversation!

Help spread awareness about epilepsy and seizures.

  • Follow the hashtag #ShareMySeizure and share, retweet, and comment on social media.
  • Post your own #ShareMySeizure video on social media.
  • Share the pages linked above with your friends and followers.
  • Talk about epilepsy and seizures with your friends, co-workers, neighbors, and community.

About #ShareMySeizure

#ShareMySeizure is an education and awareness initiative conducted cooperatively between the Epilepsy Foundation and the Centers for Disease Control and Prevention (CDC). Our media partner in this campaign is the CBS Community Partnership Division.

The initiative seeks to improve public recognition of seizures, understanding about epilepsy, and knowledge about proper seizure first aid. Additionally, the initiative encourages people living with seizures to seek out the best specialty treatment available for optimal control and quality of life.

#ShareMySeizure messaging is featured nationwide through CBS, Epilepsy Foundation, and CDC social media and digital platforms including epilepsy.com. The messaging was also featured on CBS-TV in Chicago during November 2016, National Epilepsy Awareness Month.

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Starting in November 2017, the messaging will continue with digital/social media placement nationwide and CBS television spots in Chicago and Philadelphia.

This program is made possible with funding from the Centers for Disease Control and Prevention (CDC) under cooperative grant agreement number 5 NU58DP006256 – 02 – 00. Its contents are solely the responsibility of the authors and do not necessarily represent the views of the CDC. The views and information provided in this guide are solely those of the Epilepsy Foundation and should in no way be deemed as substitution for medical advice.