November is National Epilepsy Awareness Month!
#NEAM2017
#MyShotAtEpilepsy
Miguel Cervantes (star of the Chicago production of HAMILTON) and his wife Kelly are inviting everyone to help them raise awareness about epilepsy and seizures and funds for a cure. Inspired by the song “My Shot” from the musical HAMILTON, the couple are joining the Epilepsy Foundation and Citizens United for Research in Epilepsy (CURE) for an awareness and fundraising challenge called, “My Shot at Epilepsy.” Funds raised through the My Shot at Epilepsy Challenge will directly fund epilepsy research.
- Read the challenge press release.
- Go to MyShotAtEpilepsy.org to learn more.
#AimForZero
Every year, 1 in 150 people who have uncontrolled seizures dies from sudden unexpected death in epilepsy, known as SUDEP. When people with epilepsy and their caregivers are empowered with information to understand SUDEP, they can take action to reduce risk of harm.
This November, we are raising awareness about SUDEP and self-management and treatment options that may reduce its risk. People living with epilepsy can start to #AimForZero seizures with these behaviors:
Don't Stop Here
Talk with your health care team now about your risks for seizures and SUDEP. Work together to create a seizure management and lifestyle plan that's right for you.
We recognize that for 3 out of 10 people living with epilepsy, a life without seizures is not within reach right now. However, knowing your risks, talking with your health care team, taking action to manage your seisure, and working towards the best seizure control possible may help reduce SUDEP risk.
Webinar on November 14
Join our "Talking About SUDEP Webinar" on November 14, 2017, at 8 p.m. ET. Register Here.
Share how you plan to understand your risks, talk with your health care team, and improve your seizure management on social media with the #AimForZero hashtag. Also follow along online and share our messages to help everyone with epilepsy #AimForZero.
Find more information that will help you along your journey as you #AimforZero seizures.
#ShareMySeizure
#ShareMySeizure is an education and awareness initiative conducted cooperatively between the Epilepsy Foundation and the Centers for Disease Control and Prevention (CDC). Our media partner in this campaign is the CBS Community Partnership Division.
The initiative seeks to improve public recognition of seizures, understanding about epilepsy, and knowledge about proper seizure first aid. Additionally, the initiative encourages people living with seizures to seek out the best specialty treatment available for optimal control and quality of life.
In November 2017, the messaging will continue with digital/social media placement nationwide and CBS television spots in Chicago and Philadelphia.
Watch the videos and learn how to get involved here.
#MyEpilepsyHero
#MyEpilepsyHero invites people impacted by epilepsy to share individuals that made a positive difference in their lives through support or inspiration. These heroes can be a family member, healthcare provider, mentor, or friend.
Sunovion will donate $1 to the Epilepsy Foundation for every video or photo posted (publicly) on Facebook and Twitter using the hashtag #MyEpilepsyHero. Watch some hero videos here.
TalkAboutIt.org
On November 9th, Greg Grunberg and our Professional Advisory Board Chair Dr. Christi Heck will be featured in a 30-city Satellite Media Tour (SMT) promoting National Epilepsy Awareness Month, our TalkAboutIt.org initiative, and the importance of talking about epilepsy to support the 470,000 children with active epilepsy living in the United States.
Previous National Epilepsy Awareness Months
- 2016 Activities
- 2015: #DareTo Go the Distance and #DareTo Be Seizure Smart
- 2014: What is your #DareTo?
- 2013: Story Days
The Epilepsy Foundation has celebrated National Epilepsy Awareness Month since 1969. In 2003, Congress passed a formal resolution declaring November as National Epilepsy Awareness Month.
