International Epilepsy Day

The Epilepsy Foundation is proud to join the epilepsy community in recognizing the second Monday in February as International Epilepsy Day.

International Epilepsy Day 2021 - February 14th

#EpilepsyDay on Social Media

Join the worldwide effort to increase epilepsy awareness on International Epilepsy Day 2022. Use the hashtags #EpilepsyDay and #IED22 on Twitter, Instagram, Facebook, and other social media sites to make your voice heard.

  1. Share a photo with you holding an International Epilepsy Day sign on social media using the hashtag #EpilepsyDay.
  2. Use the #EpilepsyDay badge or on your social media profiles and share why epilepsy is more than seizures for you.
  3. Change the header photos on your social media accounts. Download social media graphics here.
  4. Create your own epilepsy awareness video to share on social media during #EpilepsyDay.
  5. Share our Seizure First Aid posters which exist in multiple languages!

Download the Seizure First Aid Poster

Other Ways to Get Involved

  1. Create a Facebook fundraiser to support the Epilepsy Foundation! Your fundraiser will support our mission to help people overcome the challenges of living with epilepsy and accelerate therapies to stop seizures, find cures, and save lives. Follow the steps here: facebook.com/help/990087377765844. Select “Epilepsy Foundation of America” as your charitable organization.
  2. Find and attend #EpilepsyDay events happening across the globe.
  3. Meet Campi, the International Epilepsy Day mascot.
  4. Join #StreamForEpilepsy for #LoveFest, an inaugural streaming event to recognize International Epilepsy Day on February 14, 2022. Unite with millions of people across the globe to raise awareness, spread kindness, and support those we love who are affected by epilepsy.  

Facts in Tweet-size Bites

  • 65 million people around the world live w/ #epilepsy
  • 3.4+ million people in the U.S. live w/ #epilepsy
  • 1 in 26 people in the U.S. will develop epilepsy at some point in their lifetime
  • 4 to 10 out of 1,000 people on earth live w/ active #seizures at any one time
  • 150,000 new cases of #epilepsy are diagnosed in the U.S. each year
  • One-third of people w/ #epilepsy live w/ uncontrollable #seizures because no available treatment works for them
  • For 6 out of 10 people w/ #epilepsy the cause is unknown
  • Each year, more than 1 in 1,000 people with epilepsy die from sudden unexpected death in epilepsy, known as SUDEP.
  • 4 out of 10 people w/ #epilepsy in the industrialized world do not receive appropriate treatment
  • 8 out of 10 people w/ #epilepsy in developing nations do not receive appropriate treatment

What is International Epilepsy Day?

Epilepsy Day

Started in 2015 and organized by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE), the day provides a platform for people with epilepsy to share their experiences and stories with a global audience. The day also calls for all people to advocate for appropriate legislation that will guarantee human rights of people with epilepsy and encourages people with epilepsy to live to their fullest potential. The Epilepsy Foundation is a full member of IBE.

Epilepsy is More than Seizures

Despite being one of the world's oldest known medical conditions, public fear and misunderstanding about epilepsy persist, making many people reluctant to talk about it. That reluctance leads to lives lived in the shadows, lack of understanding about individual risk, discrimination in workplaces and communities, and a lack of funding for new therapies research. People with epilepsy die prematurely at a higher rate compared to the general population. The most common cause of death from epilepsy is sudden unexpected death in epilepsy, known as SUDEP. For many people living with epilepsy, the misconceptions and discrimination can be more difficult to overcome than the seizures themselves.

International Epilepsy Day seeks to raise awareness and educate the general public on the true facts about epilepsy and the urgent need for improved treatment, better care, and greater investment in research.

 

Authored By: 
Epilepsy Foundation Communications
Authored Date: 
11/2020