International Epilepsy Day

The Epilepsy Foundation is proud to join the epilepsy community in recognizing the second Monday in February as International Epilepsy Day.

International Epilepsy Day 2019 - February 11th

#EpilepsyDay Social Media

Join the worldwide effort to get #EpilepsyDay to trend on Twitter and other social media sites.

  1. Share a photo with you holding an International Epilepsy Day sign on social media using the hashtag #epilepsyday.
  2. Use the #EpilepsyDay badge or on your social media profiles.
  3. Change the header photos on your social media accounts. Download social media graphics here.
  4. Find first aid posters, brain stencils and art, coloring pages and more that you can share with your friends, neighbors, co-workers, and teammates at under "Take Action" at EndEpilepsy.org.
International Epilepsy Day
 

Other Ways to Get Involved

  1. Create a Facebook fundraiser to support the Epilepsy Foundation! Your fundraiser will support our mission to help people overcome the challenges of living with epilepsy and accelerate therapies to stop seizures, find cures, and save lives. Follow the steps here: facebook.com/help/990087377765844. Select “Epilepsy Foundation of America” or your local Epilepsy Foundation as your charitable organization.
  2. Find and attend #EpilepsyDay events happening across the globe.
  3. Meet Campi, the International Epilepsy Day mascot.
  4. Tell your story. Share your story, offer words of wisdom, or send a message for others living with epilepsy in the comment section below or in the epilepsy.com forum for International Epilepsy Day.

Video Competition Winners Announced

Increasing public awareness of epilepsy and seizures reduces fear and discrimination caused by lack of knowledge. Understanding is crucial to improving the quality of life of people with epilepsy.

For International Epilepsy Day 2019, the International Bureau for Epilepsy (IBE) and International League Against Epilepsy (ILAE) invited everyone to enter a video competition to share stories that can change minds and open hearts. The video competition had two categories:

My Personal Story

This category invited people with epilepsy, their families, friends, and carers to create non-professional, individual short videos using a smart phone or personal camera. The goal was to inspire others or highlight problems faced by people living with epilepsy. The winner and runners up were:

  1. Linda Cambell (Scotland), "Zoned Out"
  2. Farah (Fatemeh) Abbasi Siar (Iran), "My Dream is a world without war"
  3. Ng, Wai Hung (Hong Kong), "A Big Boy Story"
  4. Delyma Asnydar SS (Indonesia), "A Sweet And Short Journey of An Epilepsy Warrior"
  5. Yvette Barrera-Molina (USA), "Some Super Heros Fight Crime, Mine Fights Epilepsy"
  6. Jess McCallum (Australia), "Jess McCallum She Beast"

 

Educational Video

Epilepsy organizations and support groups were invited to submit professionally produced videos that educate the public, policy-makers, and people with epilepsy.

We are proud that our video, "Seizures & You: Take Chage of the Storm Jr.," won first place in the education video category! Learn about our Take Charge classroom education program.

 

Educational video runners up were:

  • Cairo University Epilepsy Unit (Egypt), Pregnancy Awareness
  • Norsk Epilepsiforbund (Norway), How to handle an epileptic seizure
  • Epilepsy Action (UK), Ali’s story: taking my medicine
  • Youth on the Move (Kenya), ‘Njambi’s Tonic Seizure’
  • China Bureau of Epilepsy (China), ‘2018 Street Interview About Epilepsy in Shanghai’

Facts in Tweet-size Bites

  • 65 million people around the world live w/ #epilepsy
  • 3.4+ million people in the U.S. live w/ #epilepsy
  • 1 in 26 people in the U.S. will develop epilepsy at some point in their lifetime
  • 4 to 10 out of 1,000 people on earth live w/ active #seizures at any one time
  • 150,000 new cases of #epilepsy are diagnosed in the U.S. each year
  • One-third of people w/ #epilepsy live w/ uncontrollable #seizures because no available treatment works for them
  • For 6 out of 10 people w/ #epilepsy the cause is unknown
  • 4 out of 10 people w/ #epilepsy in the industrialized world do not receive appropriate treatment
  • 8 out of 10 people w/ #epilepsy in developing nations do not receive appropriate treatment

What is International Epilepsy Day?

Epilepsy Day

Started in 2015 and organized by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE), the day provides a platform for people with epilepsy to share their experiences and stories with a global audience. The day also calls for all people to advocate for appropriate legislation that will guarantee human rights of people with epilepsy and encourages people with epilepsy to live to their fullest potential. The Epilepsy Foundation is a full member of IBE.

Epilepsy is More than Seizures

Despite being one of the world's oldest known medical conditions, public fear and misunderstanding about epilepsy persists, making many people reluctant to talk about it. That reluctance leads to lives lived in the shadows, discrimination in workplaces and communities, and a lack of funding for new therapies research. For many people living with epilepsy, the misconceptions and discrimination can be more difficult to overcome than the seizures themselves.

International Epilepsy Day seeks to raise awareness and educate the general public on the true facts about epilepsy and the urgent need for improved treatment, better care, and greater investment in research.

International Epilepsy Day 2018
 

Past International Epilepsy Day Themes:

  • 2018 theme: This is Me
  • 2017 theme: Putting Epilepsy in the Picture
  • 2016 theme: Yes, I can!
  • 2015 theme: International Epilepsy Day and hashtag #EpilepsyDay launch
Authored By: 
Judy Gretsch, Senior Director of Web and Social Media
Authored Date: 
01/2019