Join us for our annual Warriors of Epilepsy Gala! This evening will include a sit-down dinner, a key note speaker, Sally Schaeffer – Director of SUDEP Institute, and both a silent & live auction. Sally Schaeffer will discuss Sudden Unexpected Death in Epilepsy. It will be a lovely evening acknowledging and admiring the warriors who take on the challenges that come with having epilepsy and those fighting alongside for a good cause.
We take the time to thank those for their bravery and perseverance.
Saturday June 8th, 2019
Registration at 6:00PM | Dinner begins at 6:45PM
Little America Hotel – Ballroom A/B
500 South Main Street, Salt Lake City, UT 84101
Cocktail Attire
GET YOUR TICKETS TODAY!
For more information, please contact:
Margo Thurman – Executive Director, Epilepsy Foundation of Utah
801.883.9669 (office) / 801.455.6089 (cell)
mthurman@efa.org
We all need to be educating everyone about epilepsy.
We all know how prevalent epilepsy is - in the Unites States alone, 1 in 26 people will develop epilepsy at some point in their lives.
A Note from Primary Children's Hospital Epilepsy Program:
Hello Everyone,
My name is Brock McDermott, I am a student at the University of Utah and I am volunteering for Primary Children’s Epilepsy Program. We are doing a study to help current and future patients and their families who receive care at Primary Children’s Hospital. The end goal for us is to implement a change in the way we provide care so that patients and families are less confused, more informed, and feel more in control of their situation in regards to Epilepsy. But we need your help!
To accomplish this goal, we need is to get more than 20 families to participate with us in this study. Here are some possible ways you can help us: 1. Participate in a short interview (in person or over the phone); 2. Take a survey regarding the epilepsy care at Primary Children's; 3. Allow us to follow you through the process of your experiences at Primary Children's. | The basis for helping current and future families is by getting as much information as possible from those who have experienced care at Primary Children's. I personally grew up with absence seizures. I also have a family history of loved ones who've had their own battles with epilepsy including: two siblings, one aunt, and many cousins.One of my cousins is currently battling epilepsy and I often see the uncertainty that my cousin and his family face. I want to help all those dealing with epilepsy like my cousin get the help and answers they seek while battling epilepsy. If you are able to help with this study you can reach me at: brock.mcdermott5@gmail.com or 208.921.3821. Thank you! - Brock McDermott
Our Mission
Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
About Epilepsy Foundation Of Utah
Founded in 2011, the Epilepsy Alliance of Utah provided programs and services for people impacted by epilepsy. In April 2016, the Alliance became a Chapter of the national Epilepsy Foundation. The Epilepsy Foundation of Utah joins a strong national network and an organization that is the leading patient advocacy organization for people with epilepsy.
At the Epilepsy Foundation, one of our primary goals is to provide accessible, current information about epilepsy/seizure disorders to individuals with epilepsy, parents, family members and friends. We also provide information about epilepsy to professionals in the community through our in-service training programs. Our professionally trained staff is available to answer questions about epilepsy and its related concerns.
Check out our KIDS CREW program!!
Sites for Possible Transportation Services
Are you or a loved one unable to drive due to the challenges of epilepsy and seizures? Looking to find a way to get around in your area? This Services Directory is a great statewide resource to assist in getting people with disabilities transportation to work, doctor's appointments, social events, and more. There are also programs included that provide transportation for those with disabilities who have no other means of accessing necessary specialized services and activities.
UTA (Utah Transit Authority) also provides accessibility for those with disabilities, along with reduced fare for qualified people with disabilities.
Apply for UTA Reduced Fare Card
Trying to figure out a ride to your doctor's appointment? LogistiCare Transportation can help you out! AND it's quite simple:
Book: Members, families, social workers, and health care professionals all book rides via the online registration portal or call centers. LogistiCare ensures eligibility and schedules the most appropriate transportation provider to meet their needs.
Ride: Drivers pick up members at their homes, take them to their appointments, and bring them home in a timely manner. If that ride doesn't happen to the member's satisfaction, we care, and will assign a staff member to help. More often than not, drivers go above and beyond their call of duty.
Check out LogistiCare Transportation!
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