Support Groups and Services

NEED HELP AND DON’T KNOW WHO TO CALL?

Call 211

Call Specialists are available 24 hours a day to connect you to community resources and provide information on how to GIVE or get HELP.

Call 2-1-1 for access to a wide variety of services such as:

FOOD / MEALS

CLOTHING

HOUSING/UTILITIES

HEALTH CARE / MENTAL HEALTH CARE

CRISIS INTERVENTION

DISASTER SERVICE

INDIVIDUAL,FAMILY & COMMUNITY SUPPORT

FREE – CONFIDENTIAL – 24 HOURS A DAY

www.211oklahoma.org

RX Oklahoma

RX for Oklahoma is a service that helps Oklahomans with long-term perscription medication cost access assitance programs provided by pharmaceutical companies.  

Contact: 1-877-794-6552 

www.caaofokc.org

FINANCIAL AND EMEMGENCY ASSISTANCE

The ministries of the BGCO are supported through Oklahoma Baptists' gifts to the Cooperative Program. Find out more about how the Cooperative Program impacts the world for Christ by visiting the CP Homepage.

http://www.bgco.org/ministries/chaplaincy/financial-emergency-assistance

HEALTH ALLIANCE FOR THE UNINSURED

The link to the Oklahoma Charitable Clinic Association:  http://okcharitableclinics.org/  

Click on Find a Clinic to see a statewide list of free or low-cost clinics. 

Care Connection

Care Connection coordinates diagnostic testing, specialty consults, and surgical care for low-income (not above 200% FPL), uninsured patients of HAU partner safety-net clinics in Oklahoma County. Safety-net clinics include free/charitable clinics and federally qualified health centers, also called community health centers, that have a memorandum of understanding with HAU. This agreement specifies appropriate screening of clinic patients, establishes standards of clinic governance and operations, and outlines referral protocols.

HAU staff, including a physician medical director, nurses and bilingual referral coordinator, work diligently to ensure the medical necessity of each referral request and to provide access to needed services in a timely manner. This process values the needs of the patient and the commitment of physicians, hospitals and other entities that are donating their services. 

Core strengths of the Care Connection program include the close working relationships developed with safety-net clinics, the tremendous value of donated health care services, and the professionalism of HAU staff and volunteers.

HAU continues to expand resources to address unmet needs by the target population. This includes recruitment of additional physician specialists, diagnostic imaging, and hospital services.

www.hauonline.org

Pamela S. Cross-Cupit, MPH

Executive Director

Health Alliance for the Uninsured

3000 United Founders Blvd, Suite 244

Oklahoma City, OK 73112

405-286-3343 Fax 405-286-3449

Pam.cross@hauonline.org

Sudden Unexplained Death in Epilepsy (SUDEP)

CAPITAL BAPTIST ASSOCIATION

Baptist Mission Center maintains a Medical Clinic (day and evening clinics - currently by appointment only).

- Lab referrals

- Radiology referrals

- Specialty Care referrals

Maintain a Pharmacy (new prescriptions and refills - average about 800 prescriptions a month).

2125 Exchange Avenue

Oklahoma City, OK 73108

(405) 235-6162 (Mon 2:00 pm-8:00pm, Tue/Wed/Thur 8:00 am-3:00pm)

http://www.cbaokc.net/page/baptist_mission_center

J KIFFIN PENRY PATIENT TRAVEL ASSISTANCE FUND

The J. Kiffin Penry Patient Travel Assistance Fund provides reimbursement of travel expenses for eligible patients and their families who have had to travel more than 50 miles from their home to receive FDA-approved medical care and/or treatment for their epilepsy/seizure disorder, but lack adequate financial resources to meet the cost of this travel without bearing financial hardship.

NEED ASSISTANCE PAYING BILLS

Oklahoma City Assistance Programs.  http://www.needhelppayingbills.com/html/oklahoma_city_assistance_progr.html

LEGAL AID

Need a lawyer? We’re here to give you help. And hope.  Legal Aid Services of Oklahoma is a non-profit law firm. We’re here for you because we believe access to the legal system is as important as food, shelter and clothing.  Legal Aid Services of Oklahoma, Inc. (LASO) is a non-profit, 501(c)(3) organization that provides civil legal assistance to low-income persons throughout Oklahoma. LASO maintains 23 offices throughout Oklahoma.

To apply for legal help at any law office call 1-888-534-5243

Finding a lawyer: http://www.okbar.org/public/LegalServices/LowCostorNoCostLegalAssistance.aspx

AMERICAN DIABETES ASSOCIATION

Diabetics can have seizures too. Your local American Diabetes Association Jill Hull 405-840-3881 ext 6048

http://www.diabetes.org/in-my-community/local-offices/oklahoma-city-oklahoma

HEALTH & MENTAL HEALTH LOW INCOME CLINICS

Oklahoma State County Health Departments offer a variety of standard services, with some Departments providing special programs or differing levels of service within a general program area. Please check this website for details on services provided:

http://www.todayclinic.com

http://www.needhelppayingbills.com/html/oklahoma_county_community_clin.html

http://www.occc.edu/support/feeclinics.html

http://freeclinicdirectory.org/oklahoma_care/oklahoma_ok_county.html

https://www.occhd.org/system/files/1062/original/OMH_Free_Clinic_List_Revised.pdf?1281624118

WHAT IS IEP?

It's time to start a new school year, and that means familiarizing yourself with the IEPs for your student with disability. For most teachers, that means checking out each student's learning goals for the year,  and if appropriate, the accommodations the student needs in the classroom. But there's so much more to the IEP!  

A child with delayed skills or other disabilities might be eligible for special services that provide individualized education programs (IEPs) in public schools, free of charge to families.

Here are six aspects of an IEP as prescribed by the Individuals with Disabilities Education Act (IDEA), all of them intended to support your students' learning:

  1. A written statement
  2. Is for a child with delayed skills or other disabilities
  3. Is developed, reviewed, and revised in a meeting at the beginning of each school year
  4. May be requested by either the school or parent at any time
  5. Describes the goals the team sets for a child during the school year
  6. Describes any special support the child will need to help achieve their goals

Other Helpful Links:

http://oklahomaparentscenter.org/

http://www.disabilityadvocateok.com/children-diabilities-special-needs.htm

http://www.education-a-must.com/advocates.html

http://www.peapods.us

http://oklaw.org/resource/what-is-an-iep-individualized-education-progr

http://www.oklahomafamilynetwork.org

http://soonersuccess.ouhsc.edu

http://www.okdlc.org

NEEDYMEDS

Needey Meds - Clinic List for Oklahoma

154 Free, Low-Cost or Sliding Scale Clinics in Oklahoma:

http://www.needymeds.org/free_clinics.taf?_function=list&state=ok

http://www.needymeds.org/company_list.taf?_function=list&letter=R

http://www.needymeds.org/company_list.taf?_function=name&program_id=05049e90fa4f5039a8cadc6acbb4b2cc

http://www.needymeds.org/papforms/rxomle0367.pdf

Oklahoma Office of Disability Concerns

Representing the Concerns of Oklahomans with Disabilities

The Office of Disability Concerns (ODC) is an independent state agency whose purpose is to help state government develop policies and services that meet the needs of Oklahomans with disabilities. ODC serves as a resource, to people with disabilities, who want to present their views and recommendations to the Governor, the State Legislature and State agencies. http://www.ok.gov/odc

EEOC - Equal Employment Opportunity Commission

The U.S. Equal Employment Opportunity Commission (EEOC) is a federal law enforcement agency, that enforces laws against workplace discrimination. The EEOC investigates discrimination complaints based on an individual's race, color, national origin, religion, sex, age, disability, genetic information, and retaliation for reporting, participating in, and/or opposing a discriminatory practice.

The Commission also mediates and settles thousands of discrimination complaints each year prior to their investigation. The EEOC is also empowered to file discrimination suits against employers on behalf of alleged victims and to adjudicate claims of discrimination brought against federal agencies.

http://www.eeoc.gov

http://www.eeoc.gov/field/oklahoma

http://www.workplacefairness.org/file_OK

http://www.eeocoffice.com/oklahoma-city-eeoc-office

DISABILITY SERVICES -  Does Epilepsy Qualify for Disability Benefits?

http://www.disabilitysecrets.com/medicine-medication-prescription-drugs-epilepsy.html

Epilepsy and Social Security Disability Benefits

http://www.edgarsnyder.com/social-security-disability/physical-disability/epilepsy.html

Disability Evaluation Under Social Security

11.00 Neurological – Adult

http://www.ssa.gov/disability/professionals/bluebook/11.00-Neurological-Adult.htm

SSR 87-6: TITLES II AND XVI:

THE ROLE OF PRESCRIBED TREATMENT IN THE EVALUATION OF EPILEPSY

http://www.ssa.gov/OP_Home/rulings/di/01/SSR87-06-di-01.html

Am I Disabled?   Tips on Collecting Social Security Disability With Epilepsy

http://www.epilepsynw.org/tips-on-collecting-social-security-disability-with-epilepsy

Seizure Disorder and Social Security Disability

Seizure Disorder - Condition and Symptoms

http://www.disability-benefits-help.org/disabling-conditions/seizure-disorder-and-social-security-disability

Epilepsy and Social Security Disability

http://www.disability-benefits-help.org/disabling-conditions/epilepsy-and-social-security-disability

Dale Rogers Training Center

Great jobs and with benefits for those with disibilities. Over the years the Dale Rogers Training Center, Inc. has grown at a steady pace, acquiring federal contracts, winning awards, and implementing mobile workforce groups. The Board of Directors does not want the agency to be perceived just as another charity. They want DRTC to earn its own way, to show that people with disabilities can do quality work , and - to a great extent - earn their own way. The self-sufficiency of the agency, as well as the individuals, continues to grow. In fact, some individuals at Dale Rogers even choose to give volunteer hours to other non-profits to benefit those less fortunate than themselves. http://www.drtc.org

Oklahoma Department of Rehibilitation Services

Support healthy activities for those in need by getting fit with us! The Santa Fe Family Life Center is a nonprofit health and recreation center that focuses on offering and promoting programs designed to empower people with disabilities and disadvantaged youth to achieve improved fitness and well-being.  The SFFLC is proud to offer community partner membership pricing to the Epilepsy Foundation with family memberships for only $40/month!  Contact Ryan McClure at (405) 840-1817 orryan.mcclure@sfflc.com for more info

INTEGRIS Jim Thorpe Rehabilitation

www.integrisok.com/jimthorpe

Health Homes

https://ok.gov/odmhsas/documents/HH%20DIRECTORY%20by%20city.pdf

Mental Health Centers

https://ok.gov/odmhsas/Mental_Health/Mental_Health_Centers_by_City/

Substance use/abuse help:

https://findtreatment.samhsa.gov/

Smart Monitor

The Epilepsy Foundation of Oklahoma's exclusive promo code will be
EAOK0715
This promocode will be good for $50 off the activation fee of the SmartWatch.

The SmartWatch is an easy-to-use, non-invasive wristwatch that continuously monitors movements and instantly alerts family members and caregivers upon the onset of repetitive shaking motion.
Users and caregivers can securely access and download activity reports; archived copies can be sent to care providers for review. By continuously and seamlessly recording and tracking alertable events, SmartWatch supports clinician efforts to better manage the health and quality of life of patients with chronic conditions.
SmartWatch has two models to choose from: the Silver and the Gold plans. Both plans offer motion detection, instant alerts, a “Get Help” button, and event recording with secure access. With the Silver plan, the phone will alert one contact. The Gold plan allows a wearer to have up to ten people receive a text message alert, and one primary contact will receive a phone call. The Gold plan also has GPS location of the individual in the text of the alert, medication reminders, and a snooze option where the wearer can pause the movement monitoring.

Our product has been intensively tested - also attached to this email is information regarding the studies we have concluded. The following studies are currently underway:

· Stanford with Dr. Le
· University of VA with Dr. Langer
· NYU with Dr. French
· Le Bonheur with Dr. Wheless

Our new video's link is: 
https://vimeo.com/solsticeproductions/review/121676862/ef7dc2bda
 
It's a short 60 second video that provides some information on the SmartWatch. Please feel free to use this as well!

The SmartWatch does require use of an android phone. You can find a list of compatible android phones here:
http://www.smart-monitor.com/smartwatch/about-smartwatch/

http://www.smart-monitor.com

HeartLine - Oklahoma's Community Crisis Connection

HeartLine, Inc. has been serving Oklahoma since 1971 and provides suicide prevention outreach programs, compassionate listening, information and referral services, and crisis intervention services. Call specialists are available around the clock answering HeartLine’s various helplines, including: 2-1-1, 848-CARE, the Oklahoma Problem Gambling Helpline 1-800-522-4700, and two national suicide prevention lines, 1-800-SUICIDE and 1-800-273-TALK.

http://heartlineoklahoma.org

 

 

DISCOUNT PERSCRIPTION  DRUG CARD OFFERING

10% to 60% savings on most medications.

Over 60,000 national and regional pharmacy chains participate as well as independent pharmacies (including Wal-Mart, CVS, and Walgreens).

If you do not have insurance coverage on your prescriptions, you may qualify for medicines at greatly reduced prices.

This card is FREE. 

Present your membership card at a participating pharmacist and receive a discount at the time of purchase.

The card can be used by you and your entire family. 

Call our office to find out how to obtain a Pharmacy Discount Card or follow the instructions below.

Do not call the pharmacy for price quotes. Visit this link to look up drug prices by location.

The card is not insurance and is not intended as a substitute for insurance.

FREE PERSCRIPTION DRUG CARD FROM GROUP CONCEPTS L.L.C.

Please go to: RxPriceQuotes.com

Enter Code PHE15102a1 

After you enter your First and Last name, e-mail address and your State, your card will appear and print or print from e-mail.

This site will allow anyone to enter their prescription, dosage and number of days, and the price of the drug will appear.

Call 405-463-0673 if you have any questions.

THE FOLLOWING WEBSITES OFFER PRESCRIPTION ASSISTANCE:

Abbott Patient Assistance  www.DepakoteER.com or www.abbottpatientassistancefoundation.org

(800) 222-6885

Medications covered:

Depakote and Depakote ER

CephalonCares Foundation Patient Assistance Program  www.cephaloncares.com

(877) 237-4881

Medication covered:

Gabitril

Eisai Primary Care Assistance Program  www.eisaireimbursement.com

(866) 694-2550 or 1-855-347-2448

Medication covered:

Banzel

GlaxoSmithKline Bridges to Access  www.BridgesToAccess.com

(866) 728-4368

Medications covered:

Lamictal, Lamictal XR and Potiga

Johnson & Johnson Patient Assistance Foundation  www.jjpaf.org or www.access2wellness.com

(800) 652-6227

Medication covered:

Topamax

Lundbeck

www.lundbeckshare.com

(866) 209-7604

Medications covered: Tranxene and Peganone

Lundbeck - Onfi Support Center  www.ONFI.com

(855) 345-6634

Medication covered:

Onfi

Lundbeck’s SHARE Call Center

www.lundbeckshare.com

(888) 457- 4273

Medication covered:

Sabril

Meda Patient Assistance Program  www.felbatol.com

(800) 593-7923

Medication covered:

Felbatol

Pfizer, Inc. www.dilantin.com or www.pfizer.com

(800) 972-9226

Dilantin (extended phenytoin sodium Capsules)

$4 co-pay Card

Pfizer Helpful Answers

www.pfizerhelpfulanswers.com

(866) 706-2400

Medications covered:

Celontin, Dilantin, Lyrica, Neurontin and Zarontin

Questcor Pharmaceuticals  www.questcor.com

Acthar Support & Access

Program (ASAP)

(888) 435-2284

Medication covered: Acthar Gel (ACTH) 

MEDICATION ASSISTANCE PROGRAM FOR TOPAMAX XR & TRILEPTEL XR FOR $15 A MONTH  http://www.trokendixr.com/patient

VNS Therapy Access Program  www.cyberonics.com

(877) 610-1180

THE FOLLOWING WEBSITES FOR INFORMATION REGARDING MEDICATION ASSISTANCE

Veteran’s Affairs Veteran’s Benefits  www.va.gov

This website provides information about benefits for veterans.

Together RX  www.together-rx.com

This website provides information on patient assistance programs available for each medication.

PHRMA  www.pparx.org

This website provides information on patient assistance programs available for each medication.

RX Hope www.rxhope.com

This website provides information on patient assistance programs available for each medication.

Xubex Pharmaceuticals Xubex Patient Assistance Program   www.xubex.com

or 1-866-699-8239

They provide discounts for some generic medications.

NeedyMeds  www.needymeds.org

This is a 501(3)(c) non-profit organization with the mission of helping people who cannot afford medicine or healthcare costs. This information at NeedyMeds is available anonymously and free of charge.

PatientAssistance.com  www.PatientAssistance.com

This is a free resource designed to help connect patients who cannot afford their prescription medications with patient assistance programs.

THE FOLLOWING PROVIDING GENERIC MEDICATIONS AT A DISCOUNT

Express Scripts Specialty Distribution Services

Rx Outreach Medications

(800) 769-3880

Medications covered: carbamazepine, clonazepam, diazepam, divalproex sodium, gabapentin, lamotrigine, levetiracetam, levetiracetam ER, lorazepam, oxcarbazepine, phenytoin, topiramate and zonisamide

Xubex Pharmaceuticals Xubex Patient Assistance Program

(866) 699-8239

Medications covered: carbamazepine, clonazepam, clorazepate, diazepam, divalproex sodium, gabapentin, lamotrigine, levetiracetam, lorazepam, phenobarbital, primidone, topiramate, valproic acid and zonisamides.

CephalonCares Foundation Patient Assistance Program  www.cephaloncares.com

(877) 237-4881

Medication covered:

Gabitril

Eisai Primary Care Assistance Program  www.eisaireimbursement.com

(866) 694-2550 or 1-855-347-2448

Medication covered:

Banzel

GlaxoSmithKline Bridges to Access  www.BridgesToAccess.com

(866) 728-4368

Medications covered:

Lamictal, Lamictal XR and Potiga

Johnson & Johnson Patient Assistance Foundation  www.jjpaf.org or www.access2wellness.com

(800) 652-6227

Medication covered:

Topamax

Lundbeck’s Toll Free Center

www.lundbeckshare.com

(866) 209-7604

Medications covered: Tranxene and Peganone

Lundbeck- Onfi Support Center  www.ONFI.com

(855) 345-6634

Medication covered:

Onfi

Lundbeck’s SHARE Call Center  www.lundbeckshare.com

(888) 457- 4273

Medication covered:

Sabril

Meda Patient Assistance Program  www.felbatol.com

(800) 593-7923

Medication covered:

Felbatol

OKC – COUNTY HEALTH DEPARTMENT  (405) 427-8651

Oklahoma City-area free and low-cost clinics

https://www.occhd.org/resources/communitypartners

https://www.occhd.org/wellnessnow/resources

Pfizer, Inc.  www.dilantin.com or www.pfizer.com

(800) 972-9226

Dilantin (extended phenytoin sodium Capsules)

$4 co-pay Card

Pfizer Helpful Answers  www.pfizerhelpfulanswers.com

(866) 706-2400

Medications covered:

Celontin, Dilantin, Lyrica, Neurontin and Zarontin

SERVICE DOGS 

There has been a lot in the news lately about seizure service dogs. The following are a few website links to places where you can find out about this service.

4 Paws for Ability is a nonprofit, 501(c)(3) organization whose mission is to place quality service dogs with children with disabilities and veterans who have lost use of limbs or hearing; help with animal rescue, and educate the public regarding use of service dogs in public places. http://4pawsforability.org/

A New Leash on Life - www.newleashinc.org

Creatures and Kids - www.creaturesandkids.org

EFO Symposium 2017  

Dr. Matthews speaking on emotional and psychosocial aspects of Epilepsy. 

Resources

Epilepsy Centers

Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options.

Epilepsy Medication

Find in-depth information on anti-seizure medications so you know what to ask your doctor.

Epilepsy and Seizures 24/7 Helpline

Call our Epilepsy and Seizures 24/7 Helpline and talk with an epilepsy information specialist or submit a question online.

Tools & Forms

Download our seizure tracking app, print out seizure action plans, or explore other educational materials.