Epilepsy Foundation Long Island
The Epilepsy Foundation Long Island provides outreach, support, and advocacy services for people living with epilepsy as well as education and training to the broader community. EFLI strives to educate teachers, health care professionals, corporations and industry, as well as the public, about the causes, signs and symptoms, treatment, and the proper first aid response to seizures. As an affiliate of the national Epilepsy Foundation, EFLI promotes inclusion and assists in the mission to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
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Programs & Resources
Education & Training
School Programs: The Seizure Smart Program: Teachers will learn to recognize the three most common types of seizures and how to respond effectively to a child having a seizure. Our Educator can come to your school and provide your staff with a comprehensive training that will empower them to understand and manage seizures in the classroom.
School Nurse Workshop: Comprehensive training held twice annually in Nassau & Suffolk County whereby school nurses can gain valuable epilepsy knowledge and earn 3.2 CEU credits provided by the Centers for Disease Control. This training is also available on-line. (A nominal fee may apply to cover cost of materials).
Take Charge of the Facts Program: Teaches students in middle and high school health classes about epilepsy and seizures, causes and treatment, and first-aid procedures in the hopes of dispelling some of the myths and misconceptions that still exist. Kids on the Block:
The “Kids on the Block” is an internationally acclaimed program bringing a creative approach to public education. We use the “Kids on the Block” puppets, Ricky and Joanne, two life-size puppets to dispel some of the myths and misconceptions that surround epilepsy.
Other educational programs:
The Sheila and Fred Abrams Community Education Workshop Series: Guest speakers provide a series of monthly educational workshops on epilepsy and epilepsy-related topics. These workshops are open to the public and are currently provided in webinar format.
Seizure Recognition and First Aid Certification Training: Our Community Educators are available to provide training to staff at camps, day care centers, nursing homes, assisted living facilities, home health care agencies, human service agencies, or for any individual or organization requesting the training/certification. We offer monthly webinar trainings to the public as well as in-person and webinar trainings as requested.
Information and Referral
Information Services: Staff are available via phone or email to answer questions regarding epilepsy and its treatment. Links to resources are provided and printed materials, including articles and brochures, are also available upon request. The Foundation also has an extensive library of books and audio-visual material available to be borrowed via mail or pick up.
Medical & Legal Referrals: Referrals to medical facilities and physicians specializing in epilepsy are available as well as referrals to organizations/resources for legal issues, disability benefits, educational and employment rights.
The Epilepsy Foundation Long Island provides support groups in East Meadow and East Setauket. All groups are run by clinical social workers who specialize in treating people with epilepsy. Groups meet on a monthly basis. They provide emotional support, information, and friendship. Support groups enable people to realize that they are not alone in coping with epilepsy.
- Young Adult Support Group: For young adults (18-30 years of age)
- Adult Support Group: For adults coping with the effects of epilepsy on work, socialization, and family life.
- Parent Support Group: For parents and other caregivers of children with epilepsy
- Suffolk Support Group: For adults with epilepsy and their loved ones
Home Visits – Our Community Educators can provide epilepsy information sessions for the caregivers, families and loved ones of individuals living with epilepsy.
School Advocacy – Our Community Educators can provide support to students and their families by participating in School Committee Meetings.
Employment Advocacy: Our Community Educators can assist individuals by advocating with employers and helping them to understand epilepsy in the workplace.
Public Policy Advocacy EFLI staff and volunteer advocates meet with local, state, and national government representatives to advocate on legislation that impacts people living with epilepsy.