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Our Mission

Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

End Epilepsy Campaign 

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"Epilepsy can affect anyone with a brain. An anyone with a brain can affect epilepsy". Let's use our brains to #EndEpilepsy by increasing awareness and changing the conversation around epilepsy. If you would like to learn more about our new campaign and how you can help #EndEpilepsy, please visit our website here: https://endepilepsy.org/ 

Seizure Safe School Act

One of the most common facts that is shared within the epilepsy community is that 1 in 26 people will develop epilepsy at some point in their lifetime. Did you also know that there are 3.4 million Americans currently living with epilepsy and seizures, and 470,000 of those Americans are children? Despite the prevalence, epilepsy is still highly misunderstood by the public and stigmatized. For students living with epilepsy, it is important that schools are well-equipped with the tools necessary to provide a safe and enriching environment.

The Epilepsy Foundation of Indiana is working towards the passing of the Seizure Safe School Act, which would make certain that school personnel, nurses, teachers and volunteers are able to recognize and respond appropriately to a student experiencing a seizure. There are four components to the legislation: 

1. Requiring school personnel to complete a seizure recognition and first-aid response training 

2. Mandating that the Seizure Action Plan is made part of the student's file and made available to school personnel and volunteers responsible for the student 

3. Ensuring that any FDA-approved medication prescribed by the treating physician is administered to the student living with epilepsy 

4. Educating and training students about epilepsy and first-aid response 

If you would like to learn more, please stay tuned, or reach out to rkeys@efa.org for questions and possible advocacy volunteer opportunities.

If you are interested in setting up a school training at your school, please contact aedwards@efa.org

Epilepsy Foundation of Indiana Gala: Hitting Stride in the Battle Against Epilepsy

April 26, 2019 from 6:00PM-10:00PM

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Come join us at the Willows on Westfield for our version of the Kentucky Derby on April 26th.  We will be wearing our “big hats” and greet you at the door with mint juleps.  Imagine the fun that will ensue as we all partake in games, awards and a silent auction while raising money to help the Epilepsy Foundation of Indiana provide programs and services across the state.  We can’t wait to see everyone decked out in their best derby attire, so race on over to our website to get your tickets now: https://one.bidpal.net/2019efigala.

For more information, to donate items or volunteer please contact Ryan Keys at rkeys@efa.org

Upcoming Events / ProgramS

Make plans to join us for monthly Facebook live events on Facebook Live Events - April, To Be Determined 

 
All events are at 7:30 PM ET and cover different topics within epilepsy. There is also time to ask other questions at the end of each event. If there is a topic you would like to hear about please send an email with your suggestion to rkeys@efa.org.

Living With Epilepsy Series Event, Evansville, IN - April 8, 2019: 

We are happy to announce that we will be hosting a Living With Epilepsy Series Event in partnership with LivaNova, April 8, 2019 at 6:00PM, located at Turoni's Pizzery and Brewery on Main Street in Evansville, IN.  

This event is sponsored by our presenting sponsor, LivaNova in an effort to help the Epilepsy Foundation of Indiana continue to provide free resources and programs to the community.

Our presenting Neurologist who will be discussing "Epilepsy 101" and "Epilepsy - Beyond the Basics" is Dr. Roderick Warren. He is a wealth of knowledge and will be able to answer any questions you may have pertaining to epilepsy. 

The schedule for this event is as follows: 

-6:00PM: Epilepsy 101 

-7:00PM Break and Chance to Visit Information Table 

-7:15PM Epilepsy - Beyond the Basics 

We will be present to share our free events and programs, as well as plenty of resources provided by the Epilepsy Foundation.

If you have any questions leading up to this event, please email rkeys@efa.org

Youth Leadership Council - April 10, 2019

 A new pilot program for youth 13 – 20 to engage with others interested in epilepsy support and outreach. Our next meeting is April 10th at 7:30PM through Zoom, and the link will be shared as we get closer to the date of the meeting.

We are always welcoming new members to our creative group! Reach out to aedwards@efa.org if you would like to join the Youth Leadership Council and also for questions. 

Kids Crew Movie Drive-In Event - April 6, 2019: 

We are hosting a movie drive-in event for our Kids Crew members April 6, 2019 at 1:00PM at our local office in Indianapolis. We will have a seasonally appropriate movie playing with coordinating activities. Pajamas and cardboard cars for fun during the movie are welcome!

***If you plan on attending, please RSVP to aedwards@efa.org by April 3rd***

If you have any questions or concerns about this event, please email aedwards@efa.org

Support Group Meetings:

Indianapolis Support Group Meeting - April 13, 2019

Next Meeting: April 13th, 11:30-1pm @ Community North Hospital Medical Office Building, Room 370 (7250 Clearvista Dr., Indy)

Contact: Cameron, indyepilepsy@gmail.com or aedwards@efa.org.

Central Indianapolis Support Group Meeting - March 23, 2019

Next Meeting: March 23rd, April 27th10:30-12:00pm @ Central Library, Room 311 on the 3rd Floor (40 E St Clair St, Indianapolis, IN 46204) 

Contact: Cameron, indyepilepsy@gmail.com or aedwards@efa.org

Evansville Support Group - March 16, 2019

-Next Meetings: April 13th, May 11th 2:30 - 4:30pm CT @ EVPL Central - Large Group room (200 S.E. Martin Luther King Jr Blvd, Evansville, Indiana 47713)

Contact: Matt (352) 978-9995 or aedwards@efa.org

Fort Wayne Support Group - March 25, 2019 

-NEW and First Meeting: March 25th, 6:00-7:30pm EST @ Fort Wayne Neurological Center -3rd Floor Conference Room (7956 W Jefferson Blvd, Fort Wayne, IN 46804)

Contact: Angie (260) 440-0306 or FWepilepsygroup@gmail.com

Learn more about these events and programs!

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@EpilepsyFoundationofIndiana

 

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@indianaepilepsy

 

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@indianaepilepsy 

 

If you would like to sign up for our monthly E-Newsletter, subscribe here: http://eepurl.com/gcVbyv

 

Reach out to Ryan Keys at rkeys@efa.org or Alyssa Edwards aedwards@efa.org for resources and programs specific to Indiana.

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