Our Mission
Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
End Epilepsy Campaign
"Epilepsy can affect anyone with a brain. An anyone with a brain can affect epilepsy". Let's use our brains to #EndEpilepsy by increasing awareness and changing the conversation around epilepsy. If you would like to learn more about our new campaign and how you can help #EndEpilepsy, please visit our website here: https://endepilepsy.org/
Seizure Safe School Act
Indiana Governor Signs Bill Championed by Epilepsy Foundation of Indiana Mandating Training of School Personnel on Seizure First Aid
The Epilepsy Foundation of Indiana is working towards the passing of the Seizure Safe School Act, which would make certain that school personnel, nurses, teachers and volunteers are able to recognize and respond appropriately to a student experiencing a seizure.
Good news, we’re one step closer to the Governor’s desk! Our Seizure Safe Schools bill has passed in the Senate and is moving forward. Now the House has to vote on the bill. Urge your legislators to support this important legislation and make our schools safer for students living with epilepsy and seizure disorders. Hoosiers, take action today at bit.ly/2VD0kGM!
There are four components to the legislation:
1. Requiring school personnel to complete a seizure recognition and first-aid response training
2. Mandating that the Seizure Action Plan is made part of the student's file and made available to school personnel and volunteers responsible for the student
3. Ensuring that any FDA-approved medication prescribed by the treating physician is administered to the student living with epilepsy
4. Educating and training students about epilepsy and first-aid response
If you would like to learn more, please stay tuned, or reach out to rkeys@efa.org for questions and possible advocacy volunteer opportunities.
If you are interested in setting up a school training at your school, please contact aedwards@efa.org.
All events are at 7:30 PM ET and cover different topics within epilepsy. The topic of this month will be: SUDEP, presented by Dr. Wendy Miller. There is also time to ask other questions at the end of each event. If there is a topic you would like to hear about please send an email with your suggestion to rkeys@efa.org.
Facebook Live Event - May 22, 2019
We welcome you to join us May 22nd @ 7:30pm EST for another wonderful and informational Facebook Live Event, hosted by Dr. Wendy Miller. She is an Associate Professor of Nursing at Indiana University School of Nursing. The topic of this month's Facebook Live will be Women and Epilepsy.
Dr. Wendy Miller will be discussing Women and Epilepsy as the main topic, and will be able to take questions at the end. If you have questions for the Epilepsy Foundation of Indiana, please email aedwards@efa.org.
Living With Epilepsy Series Event, Evansville, IN - June 4, 2019
We will be hosting a Living With Epilepsy Series Event in Evansville, IN June 4th, from 6-8pm CT at the EVPL Central Library, Browning Event Room A. Our presenting neurologist, Dr. Roderick Warren, will be present to discuss epilepsy and seizures and to answer any questions that you may have. The schedule for this event is as follows:
-6:00 PM - Epilepsy 101
-7:00 PM - Break and chance to visit information table
-7:15 PM - Epilepsy, Beyond the Basics
Light food and beverages will be provided, as well as our FREE information and resources as well.
If you have any questions or are planning on attending this event, please email aedwards@efa.org.
We thank our Presenting Sponsor, LivaNova, for helping us continue to provide free programs and services in the state of Indiana.
IEP & Transition Training with INSOURCE - June 15, 2019
We are happy to be partnering with INSOURCE to host an IEP training program for the community on June 15th, 2019 at the Indiana Interchurch Center. Our first session, “My IEP: Learning the Basics” is geared towards 7th grade and up, while our second course “Hey, Where is my Transition Plan?” is for 14-22 year old students who have not exited high school. Additional information on Epilepsy Foundation of Indiana and the free programs and events we offer will be available during this event.
Schedule:
10:30 AM - My IEP: Learning the Basics
11:30 AM - Hey, Where is my Transition Plan?
*Interested in attending? This event is FREE! Please pre-register here: http://bidpal.net/ieptraining
Questions? Email aedwards@efa.org.
Youth Leadership Council - To Be Determined
A new pilot program for youth 13 – 20 to engage with others interested in epilepsy support and outreach. Our next meeting is through Zoom, and the link will be shared as we get closer to the date of the meeting.
We are always welcoming new members to our creative group! Reach out to aedwards@efa.org if you would like to join the Youth Leadership Council and also for questions.
#EpilepsyEquity & Seizure Wellness Retreat - May 18, 2019
We are happy to announce that we will be hosting an event, #EpilepsyEquity & Seizure Wellness Retreat" in partnership with D.U.O. EmpowerMEnt Services, May 18, 2019 from 9:30am-12:00pm, located at our local office, 1100 W 42nd St., Suite 140, Indianapolis, IN 46208.
This event is a FREE Wellness Retreat for individuals with epilepsy, caregivers, and support systems that would like to learn more about self-care and mental health awareness, with components on epilepsy and seizures.
There will be several vendors from the community to talk to you about their services and for you to learn more about what they offer, as well as different discussions and presenters speaking on topics surrounding mental health and wellness. We sincerely hope that you can make it out to this wonderful afternoon session.
Register here: https://www.eventbrite.com/e/epilepsyequity-seizure-disorder-wellness-retreat-tickets-60446942432
Support Group Meetings:
Indianapolis Support Group Meeting - June 8, 2019
Next Meetings: June 8th, July 13th, August 10th, 11:30-1pm @ Community North Hospital Medical Office Building, Room 370 (7250 Clearvista Dr., Indy)
Contact: Cameron, indyepilepsy@gmail.com or aedwards@efa.org.
Evansville Support Group - June 22, 2019
-Next Meetings: June 22nd, July 20th, August 17th, 2:30 - 4:30pm CT @ EVPL Central - Large Group room (200 S.E. Martin Luther King Jr Blvd, Evansville, Indiana 47713)
Contact: Matt (352) 978-9995 or aedwards@efa.org.
Fort Wayne Support Group - May 29, 2019
-Next Meeting: May 29th at 6:00 PM, @ Fort Wayne Neurological Center -3rd Floor Conference Room (7956 W Jefferson Blvd, Fort Wayne, IN 46804)
Contact: Angie, FWepilepsygroup@gmail.com
Learn more about these events and programs!
If you would like to sign up for our monthly E-Newsletter, subscribe here: http://eepurl.com/gcVbyv
Reach out to Ryan Keys at rkeys@efa.org or Alyssa Edwards aedwards@efa.org for resources and programs specific to Indiana.
