Indiana

Our Mission

Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

End Epilepsy Campaign

"Epilepsy can affect anyone with a brain. An anyone with a brain can affect epilepsy". Let's use our brains to #EndEpilepsy by increasing awareness and changing the conversation around epilepsy. If you would like to learn more about our new campaign and how you can help #EndEpilepsy, please visit our website here: https://endepilepsy.org/

Seizure Safe School Act

The Epilepsy Foundation of Indiana is working towards the passing of the Seizure Safe School Act, which would make certain that school personnel, nurses, teachers and volunteers are able to recognize and respond appropriately to a student experiencing a seizure.

Good news, we’re one step closer to the Governor’s desk! Our Seizure Safe Schools bill has passed in the Senate and is moving forward. Now the House has to vote on the bill. Urge your legislators to support this important legislation and make our schools safer for students living with epilepsy and seizure disorders. Hoosiers, take action today at bit.ly/2VD0kGM!

There are four components to the legislation:

1. Requiring school personnel to complete a seizure recognition and first-aid response training

2. Mandating that the Seizure Action Plan is made part of the student's file and made available to school personnel and volunteers responsible for the student

3. Ensuring that any FDA-approved medication prescribed by the treating physician is administered to the student living with epilepsy

4. Educating and training students about epilepsy and first-aid response

If you would like to learn more, please stay tuned, or reach out to rkeys@efa.org for questions and possible advocacy volunteer opportunities.

If you are interested in setting up a school training at your school, please contact aedwards@efa.org.

Epilepsy Foundation of Indiana Gala: Hitting Stride in the Battle Against Epilepsy

April 26, 2019 from 6:00PM-10:00PM

Come join us at the Willows on Westfield for our version of the Kentucky Derby on April 26^th. We will be wearing our “big hats” and greet you at the door with mint juleps. Imagine the fun that will ensue as we all partake in games, awards and a silent auction while raising money to help the Epilepsy Foundation of Indiana provide programs and services across the state. We can’t wait to see everyone decked out in their best derby attire, so race on over to our website to get your tickets now: https://one.bidpal.net/2019efigala.

For more information, to donate items or volunteer please contact Ryan Keys at rkeys@efa.org.

Evansville, IN Walk to End Epilepsy - May 11, 2019

We will be having another Walk to End Epilepsy in Evansville, IN on May 11th, at Buehler Program Center. Join the Walk to End Epilepsy and walk for the 69,500 families affected by epilepsy in Indiana. Funds raised from the Walk supports our mission in Indiana. The event includes a walk-stroll, fun run, activity booths, a chance to meet doctors and researchers, and connecting with others! Participating in the Walk is a powerful way to be part of the fight to END EPILEPSY, support programs now and inspire others to join you. Because you walk, give and ask others to give, we are able to continue to offer vital programs and services and build our community through awareness and advocacy. Join us in moving Indiana forward and walk with us to END EPILEPSY.

Upcoming Events / ProgramS

Facebook Live Event - April 24, 2019

All events are at 7:30 PM ET and cover different topics within epilepsy. The topic of this month will be: SUDEP, presented by Dr. Wendy Miller. There is also time to ask other questions at the end of each event. If there is a topic you would like to hear about please send an email with your suggestion to rkeys@efa.org.

Living With Epilepsy Series Event, Evansville, IN - To Be Determined

We apologize to inform you that we are post-poning our Living With Epilepsy Series Event in Evansville, IN from April 8th at 6:00PM to sometime in June of 2019. We will have an updated date and location for you soon. Thank you for your patience in this matter. Please email aedwards@efa.org if you have any concerns or questions regarding our changes. Thank you.

Youth Leadership Council - May 8, 2019

A new pilot program for youth 13 – 20 to engage with others interested in epilepsy support and outreach. Our next meeting is April 10th at 7:30PM through Zoom, and the link will be shared as we get closer to the date of the meeting.

We are always welcoming new members to our creative group! Reach out to aedwards@efa.org if you would like to join the Youth Leadership Council and also for questions.

#EpilepsyEquity & Seizure Wellness Retreat - May 18, 2019

We are happy to announce that we will be hosting an event, #EpilepsyEquity & Seizure Wellness Retreat" in partnership with D.U.O. EmpowerMEnt Services, May 18, 2019 from 9:30am-12:00pm, located at our local office, 1100 W 42nd St., Suite 140, Indianapolis, IN 46208.

This event is a FREE Wellness Retreat for individuals with epilepsy, caregivers, and support systems that would like to learn more about self-care and mental health awareness, with components on epilepsy and seizures.

There will be several vendors from the community to talk to you about their services and for you to learn more about what they offer, as well as different discussions and presenters speaking on topics surrounding mental health and wellness. We sincerely hope that you can make it out to this wonderful afternoon session.

Support Group Meetings:

Indianapolis Support Group Meeting - May, TBD

Next Meeting: April 13th, 11:30-1pm @ Community North Hospital Medical Office Building, Room 370 (7250 Clearvista Dr., Indy)

Contact: Cameron, indyepilepsy@gmail.com or aedwards@efa.org.

Central Indianapolis Support Group Meeting - April 27, 2019

Next Meeting: April 27th10:30-12:00pm @ Central Library, Room 311 on the 3rd Floor (40 E St Clair St, Indianapolis, IN 46204)

Contact: Cameron, indyepilepsy@gmail.com or aedwards@efa.org.

Evansville Support Group - April 20, 2019

-Next Meetings: April 20th, May 11th 2:30 - 4:30pm CT @ EVPL Central - Large Group room (200 S.E. Martin Luther King Jr Blvd, Evansville, Indiana 47713)

Contact: Matt (352) 978-9995 or aedwards@efa.org.