Epilepsy Foundation - Indiana Office - 1100 West 42nd Street, Suite 140, Indianapolis, IN 46208
Our Mission
Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
COVID-19 Update
Evansville Walk to End Epilepsy - May 30, 2020 (Now Virtual)
Out of abundance of caution, we have made the difficult decision to forego an in-person Walk to END EPILEPSY and instead we are hosting a Virtual Walk May 30th, 2020 starting at 10am.
As always, the health and well-being of Epilepsy Foundation volunteers, event participants, staff and partners, as well as the Hoosier community, remains our top priority. Weighing heavily into this decision was our ongoing commitment to overall wellness and safety to those we serve.
Even in times like these, seizures haven’t stopped...and neither has the fight to End Epilepsy, which is why we are hopeful you’ll join us in full force for our Virtual Walk to END EPILEPSY! Even if you are not local to Evansville, because this is a virtual walk, you can join from anywhere across the state!
*Click Here for details on our new virtual format for our upcoming walk! If you have questions or concerns, please email us at rkeys@efa.org*
Remembrance Wall - Evansville Walk 2020
For our upcoming Virtual Walk to End Epilepsy, Evansville May 30th, we would like to create a virtual Remembrance Wall for those that are loved in our community that have been lost to SUDEP or other epilepsy-related reasons. We will do so by taking submissions and creating an album on our facebook page titled "Remembrance Wall Evansville 2020". If you would like to share a story of someone lost to epilepsy, please fill out our submission form here: https://forms.gle/CnyUuQkPfiWaghJg7
Resource Update:
- Virtual Office Hours, Personal Support, Information, Trainings, Resources and More – we will not be in the office on any regular schedule but are happy to set up a virual meeting by Zoom or phone call to support you. Please reach out to Executive Director, Ryan Keys at rkeys@efa.org or Program Coordinator, Alyssa Edwards at aedwards@efa.org.
- Live Webinars: Seizure Training for School Personnel
- In addition to online and in-person training, the Epilepsy Foundation offers live webinars twice a month for school personnel. Upon finishing the program, including pre- and post-tests, participants will get a certificate of completion. Click here to learn more/how to register.
- Camps – We are sad to report that in-person summer camp sessions at CCK are not being offered, due to COVID-19. We are looking to see what other options are available via CCK and will update our community once we have word. At this time we still plan to have our Fall Family Camp which provide totally free experiences for kids with epilepsy and their families to enjoy the Center for Courageous Kids and their camp that is uniquely designed for kids of all types to enjoy. We will continue to monitor state and national guidelines to work with our partners to provide the opportunities in the safest possible manner.
- Give 26 – New campaign that is simple campaign that can help us raise awareness and much needed funds. 1 in 26 people get epilepsy and if one in 26 people touched by epilepsy can give $26 and put the car magnet you will receive in the mail on the back of your car it would go a long way to raise awareness and support programs! Click here for more info.
- Advocacy
Epilepsy Foundation Leads Efforts to Ensure Access to Treatments During COVID-19 Pandemic.
The Foundation applauds government efforts so far in response to the COVID-19 pandemic. As Congress continues working on several economic stimulus packages, the Foundation is leading efforts to ensure people of all ages have access to essential and oftentimes life-saving treatments and supplies for serious and chronic conditions in the next legislative package.
Monthly E-Newsletter:
The Epilepsy Foundation of Indiana sends out an electronic newsletter once a month to keep the community informed and up to date on what we are doing across the state, and on what is happening within the epilepsy community. Our newsletter is FREE and easy to subscribe to. Visit here to sign up!
End Epilepsy Campaign
"Epilepsy can affect anyone with a brain. An anyone with a brain can affect epilepsy". Let's use our brains to #EndEpilepsy by increasing awareness and changing the conversation around epilepsy. If you would like to learn more about our new campaign and how you can help #EndEpilepsy, please visit our website here: https://endepilepsy.org/
Seizure Safe School Act
Indiana Governor Signs Bill Championed By Epilepsy Foundation Of Indiana Mandating Training Of School Personnel On Seizure First Aid
The Epilepsy Foundation of Indiana is proud to announce the passing of theSeizure Safe School Act, which makes certain that school personnel, nurses, teachers and volunteers are able to recognize and respond appropriately to a student experiencing a seizure.
There are three components to the legislation:
1. Requiring school personnel to complete a seizure recognition and first-aid response training
2. Mandating that the Seizure Action Plan is made part of the student's file and made available to school personnel and volunteers responsible for the student
3. Ensuring that any FDA-approved medication prescribed by the treating physician is administered to the student living with epilepsy
If you are interested in setting up a school training at your school, please contact aedwards@efa.org.
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Toll Free Helpline: 1-800-332-1000 – 24 hours a day, 7 days a week
The Epilepsy & Seizures 24/7 Helpline has trained information specialists standing by to answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance, and access to national and local resources.
