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Epilepsy Foundation - Indiana Office - 1100 West 42nd Street, Suite 140, Indianapolis, IN 46208 

Our Mission

Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

COVID-19 Update

As we deal with COVID-19 across Indiana we at the Epilepsy Foundation want to continue to do what we can to support everyone dealing with epilepsy and seizures.  This includes providing support and education as well as raising awareness.  We also have to do our best to adhere to social distancing because some people with epilepsy regardless of seizure control have other health conditions that put them at higher risk from COVID-19. For more information on Concerns About COVID-19 (Coronavirus) and Epilepsy click here.
 
Here are some of the things we are adding or continuing to do during this time:
 

Resource Update:

  • Virtual Office Hours, Personal Support, Information, Trainings, Resources and More – we will not be in the office on any regular schedule but are happy to set up a virual meeting by Zoom or phone call to support you.  Please reach out to Executive Director, Ryan Keys at rkeys@efa.org or Program Coordinator, Alyssa Edwards at aedwards@efa.org. 
  • Virtual Training Options: Seizure Training for School Personnel/School Nurses
    • In addition to online, the Epilepsy Foundation offers live trainings through webinar/zoom formats for school staff needing to be trained. Upon finishing the program, including pre- and post-tests, participants will get a certificate of completion. Click here to learn more/how to register. Please reach out to aedwards@efa.org for questions on trainings for Indiana.
  • Camps – We are sad to report that in-person summer camp sessions at CCK are not being offered, due to COVID-19. We are looking to see what other options are available via CCK and will update our community once we have word. At this time we still plan to have our Fall Family Camp (Oct. 9-11) which provide totally free experiences for kids with epilepsy and their families to enjoy the Center for Courageous Kids and their camp that is uniquely designed for kids of all types to enjoy. We will continue to monitor state and national guidelines to work with our partners to provide the opportunities in the safest possible manner.  
  • Give 26 – New campaign that is simple campaign that can help us raise awareness and much needed funds. 1 in 26 people get epilepsy and if one in 26 people touched by epilepsy can give $26 and put the car magnet you will receive in the mail on the back of your car it would go a long way to raise awareness and support programs!  Click here for more info. 
  • Advocacy                 
    Epilepsy Foundation Leads Efforts to Ensure Access to Treatments During COVID-19 Pandemic.

    The Foundation applauds government efforts so far in response to the COVID-19 pandemic. As Congress continues working on several economic stimulus packages, the Foundation is leading efforts to ensure people of all ages have access to essential and oftentimes life-saving treatments and supplies for serious and chronic conditions in the next legislative package. 

     
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Monthly E-Newsletter:

The Epilepsy Foundation of Indiana sends out an electronic newsletter once a month to keep the community informed and up to date on what we are doing across the state, and on what is happening within the epilepsy community. Our newsletter is FREE and easy to subscribe to. Visit here to sign up!

End Epilepsy Campaign 

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"Epilepsy can affect anyone with a brain. An anyone with a brain can affect epilepsy". Let's use our brains to #EndEpilepsy by increasing awareness and changing the conversation around epilepsy. If you would like to learn more about our new campaign and how you can help #EndEpilepsy, please visit our website here: https://endepilepsy.org/ 

Seizure Safe School Act

Indiana Governor Signs Bill Championed By Epilepsy Foundation Of Indiana Mandating Training Of School Personnel On Seizure First Aid

Goes into effect July 1, 2020

The Epilepsy Foundation of Indiana is proud to announce the passing of theSeizure Safe School Act, which makes certain that school personnel, nurses, teachers and volunteers are able to recognize and respond appropriately to a student experiencing a seizure.

There are three components to the legislation: 

1. Requiring school personnel to complete a seizure recognition and first-aid response training 

2. Mandating that the Seizure Action Plan is made part of the student's file and made available to school personnel and volunteers responsible for the student 

3. Ensuring that any FDA-approved medication prescribed by the treating physician is administered to the student living with epilepsy 

If you are interested in setting up a school training at your school, please contact aedwards@efa.org. 

Visit us on Social Media!

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@EpilepsyFoundationofIndiana

 

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@indianaepilepsy

 

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@indianaepilepsy 

 

Toll Free Helpline: 1-800-332-1000 – 24 hours a day, 7 days a week

The Epilepsy & Seizures 24/7 Helpline has trained information specialists standing by to answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance, and access to national and local resources.

 

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