Our Mission
Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.
End Epilepsy Campaign
"Epilepsy can affect anyone with a brain. An anyone with a brain can affect epilepsy". Let's use our brains to #EndEpilepsy by increasing awareness and changing the conversation around epilepsy. If you would like to learn more about our new campaign and how you can help #EndEpilepsy, please visit our website here: https://endepilepsy.org/
Seizure Safe School Act
Indiana Governor Signs Bill Championed by Epilepsy Foundation of Indiana Mandating Training of School Personnel on Seizure First Aid
The Epilepsy Foundation of Indiana is working towards the passing of the Seizure Safe School Act, which would make certain that school personnel, nurses, teachers and volunteers are able to recognize and respond appropriately to a student experiencing a seizure.
Good news, we’re one step closer to the Governor’s desk! Our Seizure Safe Schools bill has passed in the Senate and is moving forward. Now the House has to vote on the bill. Urge your legislators to support this important legislation and make our schools safer for students living with epilepsy and seizure disorders. Hoosiers, take action today at bit.ly/2VD0kGM!
There are four components to the legislation:
1. Requiring school personnel to complete a seizure recognition and first-aid response training
2. Mandating that the Seizure Action Plan is made part of the student's file and made available to school personnel and volunteers responsible for the student
3. Ensuring that any FDA-approved medication prescribed by the treating physician is administered to the student living with epilepsy
4. Educating and training students about epilepsy and first-aid response
If you would like to learn more, please stay tuned, or reach out to rkeys@efa.org for questions and possible advocacy volunteer opportunities.
If you are interested in setting up a school training at your school, please contact aedwards@efa.org.
All events are at 7:30 PM ET and cover different topics within epilepsy. The topic of this month will be: SUDEP, presented by Dr. Wendy Miller. There is also time to ask other questions at the end of each event. If there is a topic you would like to hear about please send an email with your suggestion to rkeys@efa.org.
Facebook Live Event - June 26, 2019
We welcome you to join us June 26th @ 7:30pm EST for another wonderful and informational Facebook Live Event, hosted by Dr. Wendy Miller. She is an Associate Professor of Nursing at Indiana University School of Nursing. The topic of this month's Facebook Live: To Be Determined.
Dr. Wendy Miller will be will be able to take questions at the end. If you have questions for the Epilepsy Foundation of Indiana, please email aedwards@efa.org.IEP & Transition Training with INSOURCE - June 15, 2019
IEP and Transition Training - INSOURCE, POSTPONED until Late August/Early September
*We are happy to be partnering with INSOURCE to host an IEP training program for the community, but will be postponing until late August or early September. We sincerely apologize for any inconvience this may cause you*
Our first session, “My IEP: Learning the Basics” is geared towards 7th grade and up, while our second course “Hey, Where is my Transition Plan?” is for 14-22 year old students who have not exited high school. Additional information on Epilepsy Foundation of Indiana and the free programs and events we offer will be available during this event.
Schedule:
10:30 AM - My IEP: Learning the Basics
11:30 AM - Hey, Where is my Transition Plan?
*Interested in attending? Questions? Email aedwards@efa.org.
Youth Leadership Council - June 12, 2019
A new pilot program for youth 13 – 20 to engage with others interested in epilepsy support and outreach. Our next meeting is through Zoom, and the link is posted here: https://zoom.us/j/625957752
We are always welcoming new members to our creative group! Reach out to aedwards@efa.org if you would like to join the Youth Leadership Council and also for questions.
Support Group Meetings:
Greenwood Family Support Group Meeting - July 13, 2019
FIRST Meeting: July 13th, 6-7:30pm @ Mallow Run Winery 6-9 PM
Contact: aedwards@efa.org
Indianapolis Support Group Meeting - July 13, 2019
Next Meetings: July 13th, August 10th, 11:30-1pm @ Community North Hospital Medical Office Building, Room 370 (7250 Clearvista Dr., Indy)
Contact: indyepilepsy@gmail.com or aedwards@efa.org.
Evansville Support Group - June 22, 2019
-Next Meetings: June 22nd, July 20th, August 17th, 2:30 - 4:30pm CT @ EVPL Central - Large Group room (200 S.E. Martin Luther King Jr Blvd, Evansville, Indiana 47713)
Contact: Matt (352) 978-9995 or aedwards@efa.org.
Golf Classic: 12th Annual Liberty Mutual Invitational : Edible Indy, Epilepsy Foundation of Indiana - September 11, 2019
The Golf Classic has been a tremendous success raising more than $300,000 over the last 12 years in support of Epilepsy Foundation of Indiana. It is our sincere hope that you plan to participate in this year’s event scheduled for Wednesday, September 11, 2019 at one of Indiana’s top ranked golf courses, Golf Club of Indiana.
We are excited to confirm that any funds raised to play in or sponsor the Liberty Mutual Invitational in 2019 will go directly to support the Fall Family Camp at the Center for Courageous Kids. This camp that we proudly sponsor, allows families dealing with epilepsy a free weekend to provide respite recreation and memorable experiences for the entire family!
Individual Cost: $175
Team Cost (4 Players): $700
*Early Registration before August 15th, 2019 Team Cost: $650
Your entry fee includes lunch, dinner, beverages, a Puma Golf Shirt, a golf goodie bag with over $250 worth of merchandise, coupons and a phenomenal day of golf, games, food and drink!
Starting Sponsor Level Package: $200
Prizes will be awarded for 1st through 7th place!
Learn more about these events and programs!
If you would like to sign up for our monthly E-Newsletter, subscribe here: http://eepurl.com/gcVbyv
Reach out to Ryan Keys at rkeys@efa.org or Alyssa Edwards aedwards@efa.org for resources and programs specific to Indiana.
