Indiana

Our Mission

Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

Seizure Safe School Act

One of the most common facts that is shared within the epilepsy community is that 1 in 26 people will develop epilepsy at some point in their lifetime. Did you also know that there are 3.4 million Americans currently living with epilepsy and seizures, and 470,000 of those Americans are children? Despite the prevalence, epilepsy is still highly misunderstood by the public and stigmatized. For students living with epilepsy, it is important that schools are well-equipped with the tools necessary to provide a safe and enriching environment.

The Epilepsy Foundation of Indiana is working towards the passing of the Seizure Safe School Act, which would make certain that school personnel, nurses, teachers and volunteers are able to recognize and respond appropriately to a student experiencing a seizure. There are four components to the legislation, and this week, we will be discussing these components in detail for a better understanding of the benefits of the Seizure Safe School Act.

If you would like to learn more, please stay tuned, or reach out to rkeys@efa.org for questions and possible advocacy volunteer opportunities.

If you are interested in setting up a school training at your school, please contact aedwards@efa.org.

Upcoming Events / Programs

IN*SOURCE Facebook Live Event - January 24, 2019

Karen Rusk, IN*SOURCE Program Specialist, will be conducting a Facebook Live interview with Ryan Keys from the Epilepsy Foundation of Indiana on January 24th from 7-8PM EST.

The topics for discussion are as follows:

Dealing with students with epilepsy
Epilepsy in school
Common myths regarding students with epilepsy
Health care plans and epilepsy
Bullying of students with epilepsy

If you'd like to view the Facebook Live interview, visit "IN*SOURCE" on Facebook to see their organization's page and the details on this event through their "events" tab!

Kids Crew Movie Drive-In Event:

We are postponing our event that was planned for December until next spring, in light of holiday season. We do apologize for any inconvenience this may have caused.

Please email aedwards@efa.org if you have any questions or concerns about this event.

Make plans to join us for monthly Facebook live events on Facebook Live Events - February 13, 2019

February 13th at 7:30PM

Topic: Legislative Advocacy,

All events are at 7:30 PM ET. Dr. Wendy Miller will be discussing different topics that impact the epilepsy community. There is also time to ask other questions at the end of each event. If there is a topic you would like to hear about please send an email with your suggestion to rkeys@efa.org.

Indianapolis Support Group Meeting - February 9, 2019

Next Meeting: Saturday, February 9th, 11:30-1pm @ Community North Hospital Medical Office Building, Room 370 (7250 Clearvista Dr., Indy)

Contact: Cameron, indyepilepsy@gmail.com or aedwards@efa.org.

Central Indianapolis Support Group Meeting - January 26, 2019

Next Meeting: Saturday, January 26th, 10:30-12:00pm @ Central Library, Room 311 on the 3rd Floor (40 E St Clair St, Indianapolis, IN 46204)

Contact: Cameron, indyepilepsy@gmail.com or aedwards@efa.org.

Evansville Support Group Meeting - January 19, 2019

Next Meeting: Saturday, January 19th, 2:30-4:30pm CST @ Evansville Central Library Conference Room, 200 S.E. Martin Luther King Jr Blvd, Evansville, IN 47713

Contact: Matt, (352) 978-9995 or aedwards@efa.org

Youth Leadership Council Meeting - January 15, 2019

A program for youth 13 – 20 to engage with others interested in epilepsy support and outreach. We are always welcoming new members! Reach out to aedwards@efa.org if you would like to join the Youth Leadership Council and also for questions.

Next Meeting: Tuesday, January 15th, 7:30-8:30pm, through Zoom (online video conference application), click this link a few minutes before the meeting to allow for loading time: https://zoom.us/j/555205541

Learn more about these events and programs!