March 14, 2020, in Santa Clara, California

Your Voice, Your Day

Every two years, the Epilepsy Foundation hosts a one-day educational conference dedicated to people with epilepsy, their families and friends, and community supporters. Community Day is a day of learning, support, and networking with peers, providers and partners. Community Day 2020 will take place March 14, 2020, from 8:00 A.M. to 4:30 P.M. PST, at the Santa Clara Marriott in Santa Clara, California. Community Day occurs immediately after the Epilepsy Foundation Pipeline Conference taking place March 12-13, 2020.

Registration Open Now

Registration is now open for the 2020 Epilepsy Pipeline Community Day. Cost to attend is $10 for individuals and $20 per family for families of 2 or more.

On-site parking: Parking is free for all Community Day attendees. Vouchers will be available at the hotel registration desk on-site.

Hotel booking: The Santa Clara Marriott is offering a special group rate for attendees. Make your reservation here. Please book by February 18, 2020.

Questions? Email

Conference Agenda

Times are pacific standard time (PST).

March 14, 2020

Breakfast and Registration – 7:30-8:30 A.M.

Welcome and Introductions – 8:30-8:40 A.M.

  • Kerry Youker, Board Chair, Epilepsy Foundation of Northern California

The Epilepsy Experience – 8:40-9:00 A.M.

Lived Experience with Epilepsy

  • Jessica Veach, Communications Manager, Epilepsy Foundation of Alaska and Washington

Understanding How Epilepsy Causes and Type Help Predict Outcome and Comorbidities – 9:00-9:20 A.M.

  • Elaine Wirrell MD, Mayo Clinic and Co-Editor in Chief of

Treating Epilepsy: What Works and What's Next? – 9:20-10:30 A.M.

  • Ilene Penn Miller BS, JD, LLM, Co-Founder & Past President, Hope for Hypothalamic Hamartomas

Break – 10:30-10:45 A.M.

Genes and Epilepsy: Understanding the Basics – 10:45-11:40 A.M.

  • Elaine Wirrell MD, Mayo Clinic and Co-Editor in Chief of
  • Shannon Abdul Wahab BSW, BA, MA, Epilepsy Foundation Orange County

SUDEP Knowledge is Power – 11:40 A.M.-12:30 P.M.

What is SUDEPWhat can you do to minimize risk? Organizations to support SUDEP.

  • Sam Lhatoo MD, FRCP, UT Health
  • Sally Schaeffer, Director, SUDEP Institute, Epilepsy Foundation

Lunch – 12:30 P.M.-1:30 P.M.

Afternoon Break Out Sessions – 1:40 P.M.-3:00 P.M.

Breakout 1: Transitions in Life Guided through Wellness: Children and Youth

  • ​The Early Years from Toddlers to Tweens
  • Gaining Independence and Goal Setting
    • Mimi Callanan RN, MSN, ACNS-BC, Comprehensive Epilepsy Center, Stanford University
  • Roundtable Discussions

Breakout 2: Transitions in Life Guided through Wellness: Young Adults and Older Adults

  • ​Life's Twists and Turns (25-55)
    • Sandra Dewar PhD, RN, FAES, Comprehensive Epilepsy Center, University of California Los Angeles
  • Aging with Epilepsy (Older adults 55+)
    • Elaine T. Kiriakopoulos MD, MSc, Epilepsy Foundation, Dartmouth Hitchcock Medical Center
  • Roundtable Discussion

Break and Room Switch – 3:00-3:10 P.M.

Getting Involved and Making Change – 3:10-4:00 P.M.

Moderator: Jon Scheinman, Senior Director of Community Engagement, Epilepsy Foundation


  • Rebekkah Halliwell, Executive Director, Epilepsy Foundation of Greater Los Angeles
  • Jon Scheinman, Senior Director of Community Engagement, Epilepsy Foundation
  • Alison Kukla MPH, Program Manager, Epilepsy Foundation
  • Patty Osborne Shafer RN, MN, Senior Director of Health Information & Resources, Associate Editor of, Epilepsy Foundation

Reception – 4:00-4:30 P.M.

Authored By: 
Epilepsy Foundation Communications Team
Authored Date: