March 14, 2020, in Santa Clara, California

Your Voice, Your Day

Every two years, the Epilepsy Foundation hosts a one-day educational conference dedicated to people with epilepsy, their families and friends, and community supporters. Community Day is a day of learning, support, and networking with peers, providers and partners. Community Day 2020 will take place March 14, 2020, from 8:00 A.M. to 4:30 P.M. PST, at the Santa Clara Marriott in Santa Clara, California. Community Day occurs immediately after the Epilepsy Foundation Pipeline Conference taking place March 12-13, 2020.

Registration Open Now

Registration is now open for the 2020 Epilepsy Pipeline Community Day. Cost to attend is $10 for individuals and $20 per family for families of 2 or more.

On-site parking: Parking is free for all Community Day attendees. Vouchers will be available at the hotel registration desk on-site.

Hotel booking: The Santa Clara Marriott is offering a special group rate for attendees. Make your reservation here. Please book by February 18, 2020.

Questions? Email contactus@efa.org.

Conference Agenda

Times are pacific standard time (PST).

March 14, 2020

Breakfast and Registration – 7:30-8:30 A.M.

Welcome and Introductions – 8:30-8:40 A.M.

  • Kerry Youker, Board Chair, Epilepsy Foundation of Northern California

The Epilepsy Experience – 8:40-9:00 A.M.

Lived Experience with Epilepsy

  • Jessica Veach, Communications Manager, Epilepsy Foundation of Alaska and Washington

Understanding How Epilepsy Causes and Type Help Predict Outcome and Comorbidities – 9:00-9:20 A.M.

  • Elaine Wirrell MD, Mayo Clinic and Co-Editor in Chief of Epilepsy.com

Treating Epilepsy: What Works and What's Next? – 9:20-10:30 A.M.

  • Ilene Penn Miller BS, JD, LLM, Co-Founder & Past President, Hope for Hypothalamic Hamartomas

Break – 10:30-10:45 A.M.

Genes and Epilepsy: Understanding the Basics – 10:45-11:40 A.M.

  • Elaine Wirrell MD, Mayo Clinic and Co-Editor in Chief of Epilepsy.com
  • Shannon Abdul Wahab BSW, BA, MA, Epilepsy Foundation Orange County

SUDEP Knowledge is Power – 11:40 A.M.-12:30 P.M.

What is SUDEPWhat can you do to minimize risk? Organizations to support SUDEP.

  • Sam Lhatoo MD, FRCP, UT Health
  • Sally Schaeffer, Director, SUDEP Institute, Epilepsy Foundation

Lunch – 12:30 P.M.-1:30 P.M.

Afternoon Break Out Sessions – 1:40 P.M.-3:00 P.M.

Breakout 1: Transitions in Life Guided through Wellness: Children and Youth

  • ​The Early Years from Toddlers to Tweens
  • Gaining Independence and Goal Setting
    • Mimi Callanan RN, MSN, ACNS-BC, Comprehensive Epilepsy Center, Stanford University
  • Roundtable Discussions

Breakout 2: Transitions in Life Guided through Wellness: Young Adults and Older Adults

  • ​Life's Twists and Turns (25-55)
    • Sandra Dewar PhD, RN, FAES, Comprehensive Epilepsy Center, University of California Los Angeles
  • Aging with Epilepsy (Older adults 55+)
    • Elaine T. Kiriakopoulos MD, MSc, Epilepsy Foundation, Dartmouth Hitchcock Medical Center
  • Roundtable Discussion

Break and Room Switch – 3:00-3:10 P.M.

Getting Involved and Making Change – 3:10-4:00 P.M.

Moderator: Jon Scheinman, Senior Director of Community Engagement, Epilepsy Foundation

Panel:

  • Rebekkah Halliwell, Executive Director, Epilepsy Foundation of Greater Los Angeles
  • Jon Scheinman, Senior Director of Community Engagement, Epilepsy Foundation
  • Alison Kukla MPH, Program Manager, Epilepsy Foundation
  • Patty Osborne Shafer RN, MN, Senior Director of Health Information & Resources, Associate Editor of Epilepsy.com, Epilepsy Foundation

Reception – 4:00-4:30 P.M.

Authored By: 
Epilepsy Foundation Communications Team
Authored Date: 
01/2020