The Epilepsy Foundation My Seizure Diary is a self-management tool for people with seizures and epilepsy. This resource focuses on self-monitoring and tracking seizures and other symptoms, managing medication and other therapies, recognizing triggers and health events that may affect seizures and wellness, and communicating with your care providers. 

IMPORTANT INFORMATION

  • "Cannot Authenticate" Error Message - If you can login via the web app at diary.epilepsy.com but cannot on your Android device, you need to enable the screen lock to meet the minimum security requirements of the Epilepsy Foundation My Seizure Diary. Click here for instructions on how to enable the screen lock on Android devices
  • Before you register for an account on the Epilepsy Foundation My Seizure Diary platform, we recommend you watch the following on-boarding videos on how to select the right type of account and setup a seizure and medicine profile to start tracking daily events. Please email diary@efa.org with any questions! 

Onboarding Videos

Start by selecting the right account type

Start your diary by choosing the right account type. Select "Diary Owner" if you are a person with epilepsy, select "family member/caregiver" if you are a family member or caregiver who wants to read or add information to another person’s diary or "clinician" if you are a clinician who will be viewing a diary of a person with epilepsy.

Setting up your seizure profile

In the Epilepsy Foundation My Seizure Diary, it is important to first create your profile and what your typical seizures look like. This will allow you to use the diary to track your seizures on a regular basis.

Setting Up a basic medicine profile

In the Epilepsy Foundation My Seizure Diary, it is important to keep track of all the medicines you take. This information can be entered in the "My Medicine" page under About Me. Once you create your medicine profile, you can track if any are missed and if any side effects happen. This gives you important information to share with your health care team.

Setting Up an advanced medicine profile

A good medicine list will help you keep track of details, such as the strength of each pill, how much and when you take it and more. Take time to set up these details for each medicine entered in My Medicine Profile. Then show your doctor or nurse how you have entered it. Revisit this section to keep it up to date after changes in medicines have been made.

Tracking my daily events - Part 1

Now that you have set up your profile, the Epilepsy Foundation My Seizure Diary can be used to track seizures, medicine use, side effects and much more. This can help you learn more about your epilepsy and make sure your health care team does too!

Tracking my daily events - Part 2

The diary view also lets you track how you've taken your medicine , your side effects, triggers, mood and other events each day. When you have gone thru this, start monitoring your epilepsy and health!

 

Authored By: 
Patty Obsorne Shafer RN, MN
Authored Date: 
11/2019