Facebook Live: The Resilient Caregiver

Join us Wednesday, January 15, 2020, at 8:00 p.m. ET.

Whether you’re a parent, family member, or friend, being a caregiver for someone with epilepsy can have its challenges. Caregivers can experience feelings of stress, anxiety, depression, poor sleep, and fatigue. Seizures, especially the unpredictability of them, affects everyone. And other parts of life may be forgotten or overlooked. While caregiving can be a stressful, sometimes it can help bring families closer together.

Join us for a Facebook Live with Yssa DeWoody PhD, director of Ring14 USA and caregiver of a child with Ring Chromosome 14 Syndrome, and Patty Osborne Shafer RN, MN, senior director of health information and resources at the Epilepsy Foundation, on January 15, 2020, at 8:00 p.m. ET. They’ll be discussing:

• How caring for someone with epilepsy affects caregivers
• How families and caregivers can become more resilient
• Tips for all family members living with epilepsy
• Where to get help

Read an article about Yssa’s family from the International League Against Epilepsy.

Guest

 

Yssa DeWoody PhD

Yssa DeWoody PhD is the co-founder and director of Ring14 USA, a non-profit focused on improving the lives of those living with Ring14 syndrome through research, advocacy, and community support. This work is a labor of love motivated by her third daughter, Marie, who was born with the chromosomal disorder called Ring14 Syndrome, an ultra-rare syndrome characterized by early onset, intractable epilepsy, global developmental delays, intellectual disabilities and a host of other challenges.

Ring14 USA is a member of the Rare Epilepsy Network (REN).

Moderator

 

Patty Osborne Shafer RN, MN

Patty Osborne Shafer RN, MN, is senior director for health information and resources at the Foundation and the associate editor of epilepsy.com. She worked for many years as an epilepsy clinical nurse specialist at the Comprehensive Epilepsy Center, Beth Israel Deaconess Medical Center in Boston, Massachusetts. She has been involved with epilepsy.com and the Epilepsy Therapy Project for many years.

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Note: presenters cannot address individual medical concerns and cannot provide individual advice.

This program is supported by NeuroPace, Inc.