Help Others Understand by Sharing Your Seizure Video

Attention Adults Living with Epilepsy

The Epilepsy Foundation is making some new videos and updating several educational programs with new footage of seizures. Seizure videos might be used in seizure recognition training programs, public education and awareness campaigns, and a variety of similar uses. While simulated seizures with actors can be used at times, these are not the same as seeing a real seizure. The ideal is to have videos of different types of seizures that occur in real life situations, not just hospitals.

Interested in helping with these projects?

Here is what we are looking for:

• Video of different types of seizures, but must be diagnosed by a health care professional as a certain type of seizure.
• Videos will be accepted only from people who are old enough to give their own consent for the video's public use. Due to privacy concerns, we do not want to use seizures of children for widespread, public purposes.
• VIdeos of any length can be sent in, but likely only small portions of the video will be used. The Epilepsy Foundation reserves the right to edit the video footage.

Thank you very much for helping us with this project. People who do not have seizures don't appreciate what it is like unless they see one or have one. Yet, having a seizure is a very personal event and can be embarrassing at times. We do not want anyone to share a seizure if they are uncomfortable.

If you would like to learn more or would like to find out how to share your seizure video, please contact me at epihelp@efa.org or socialmedia@efa.org.

Thank you again,

Patty Osborne Shafer RN, MN
Senior Director Health Information & Resources
Associate Editor epilepsy.com
Known in the forums as epihelp