If You Have Epilepsy, You’re Not Alone

Alejandra is sharing her eJourney about the surgery that changed her life

By Alejandra Gaehd

Change Our Epilepsy Story

Thursday, March 23, 2023

I am one of the 1 in 26 people who have epilepsy. In 2019, I had a seizure that was the beginning of something we could never have imagined.  

Epilepsy was the disease that took away my freedom and my health. I walked with the aid of a walker. I couldn't write, drive, or be alone. I didn't have the physical strength to hold my babies, and I could not give them a bath. I couldn’t even go to the park alone. I always had to be accompanied.  

The seizures did not subside, and after trying many different medications, the doctors in Mexico told us that there was nothing more to do. They said I had to get used to the fact that this was my “new lifestyle.” 

I was fortunate to be able to have surgery in the United States that helped get my seizures under control. Although I am still not 100% discharged, I can do things again that I thought I could never do. Playing tennis, skiing, going to the park by myself, teaching my kids to swim, being in a pool by myself, biking, driving, and many other things that most people consider normal are great achievements for me. 

I could not have done it alone. My husband, Andrés, never left my side. He provided unconditional support as my #1 nurse and took on the role of both the father and mother of the house. He is the best dad to Andrés and Juan Pablo and the best husband to me. My sisters, who have never left my side, are the best gift my parents could have given me! 

Three years after the operation that changed my life and my family's life, I am ready to share my story. I feel very lucky, and at the same time, I feel an enormous sense of responsibility to be able to help raise awareness about epilepsy. 

I want my story to reach many people going through the same thing so we can help each other. Epilepsy can be a silent and isolating disease for many people, and they might also have anxiety and depression. I want people to know they are not alone. If you or a family member are going through something similar, connect with a doctor who can help you find a treatment that works for you. 

Reviewed By: Sara Wyen

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