2015 Epilepsy Pipeline Community Conference

INFORMATION * EMPOWERMENT * HOPE * COMMUNITY

A Unique One-Day Conference Dedicated to People Living with Seizures, Their Loved Ones and Epilepsy Advocates

Saturday, May 16, 2015

Where: Turnberry Isle Miami, 19999 West Country Club Drive, Aventura, FL
Time: Registration: 8:00 to 8:30 am
Sessions, Breaks and Lunch (included): 8:30 - 4:30 pm
Community Social: 4:30 to 5:00 pm

Goals of Epilepsy Pipeline Community Conference

• Information: Share challenges of living with epilepsy and learn about new approaches and therapies.
• Empowerment: Be an active member of your care team and work toward no seizures!
• Hope: Understand the importance of research and how you can help.
• Community: Join friends, families, and advocates for a day of learning, support, and networking.
• Celebrate: Epilepsy Foundation Debut of "Last Pyramid" - an award-winning documentary by the Foundation and Executive Producer Greg Grunberg!

Leading Epilepsy Experts and Families Will Discuss Updates on the Latest Topics Including:

• The Rare Epilepsies
• New Seizure Medications, Rescue Therapies, Medical Marijuana
• When Seizures Don't Respond to Medicines, New Surgical Approaches and Devices
• The Epilepsy Pipeline and How You Can Help
• Thinking, Behavior, and Mood
• Using Technology for Epilepsy Self-Management
• Family and Relationships

Registration and Cost

• Registration: Is required to attend due to the popularity of this important conference.
• Cost: Free!
• Register Today!

DRAFT PROGRAM

8:00-8:30 Registration

8:30-8:40 Welcome and Overview

• Patty Osborne Shafer
• Jonathan C. Anderson, Chair, Epilepsy Foundation of Florida

8:40-9:10 Point of View - Diversity of Epilepsy

• Philip Gattone, President, Epilepsy Foundation
• Daniel Fisher
• Marisol Valdes

9:10-9:30 Challenges of Epilepsy

• Steven C. Schachter

9:30-9:50 The Rare Epilepsies - what are they and why are they important?

• Jacqueline French

9:50-10:05 The Epilepsy Pipeline 2014

• Warren Lammert, Chair, Epilepsy Foundation

10:05-10:20 - BREAK

10:20-10:50 Chronic Seizure Medications and Updates on Generics

• Michael D. Privitera

10:50-11:10 Rescue Therapies

• Nancy Santilli

11:10-11:30 Medical Marijuana (Cannabis)

• Ian Miller

11:30-12:00 Panel QA

• Moderator: Janice Buelow
  Panelists: Michael Privitera, Nancy Santilli, Ian Miller, Jacel Delgadillo, Marisol Valdes

12:00-12:15 Epilepsy.com and the Role of Social Media

• Kenneth Lowenberg

12:15-1:15 LUNCH - Network tables, Exhibits

Track 1 - New approaches to treating uncontrolled epilepsy

1:15 – 1:35 Surgical Treatment in Epilepsy: The Present

• Badih Adada

1:35--2:05 Pediatric Epilepsy Surgery – Six New Things

• Michael M. Duchowny

2:05-2:25 Devices for Epilepsy- What's New?

• Patricia Osborne Shafer

2:25-2:30 A Personal Perspective

• Christopher Flaig

Track 2 - Living with epilepsy

1:15-1:40 Thinking, behavior and mood

• Andres M. Kanner

1:40-2:05 Self-Management and Safety

• Patricia Dean

2:05-2:30 Family and relationships - it's more than just the seizures

• Juanita Edwards
• Jon Scheinman

Main Session

2:30-3:00 Combined Panel Q and A

• Moderator: Andres M. Kanner, MD
  Panelists: Badih Adada, Michael Duchowny, Patricia O. Shafer, Luis Fong, Christopher Flaig

3:00-3:15 - BREAK

Main Session

3:15-3:30 Point of View

• Steven C. Schachter
• Patricia Barnes

3:30-4:00 Epilepsy Foundation Debut of "Last Pyramid", an award-winning documentary by the Foundation and Executive Producer Greg Grunberg!

This Film Was Made Possible With A Grant Provided By UCB.

4:00-4:20 Panel Discussion

• Moderator: Samantha Macher
  Panelists: Phil Gattone, David Schachter, Trish Barnes, Karen Basha Egozi, Patty Fritz

4:20-4:30 Wrap up

4:30-5:00 - Community Networking and Social Reception

With Thanks to Our Sponsors

Top sponsor: $15,000

$10,000

$6500

$5000

$2500

$1000

Complementary (Supports the Epilepsy Foundation though DIY Programs)