Webinar on Understanding Sudden Unexpected Death in Epilepsy (SUDEP)

Epilepsy News From: Monday, October 07, 2019

Join us for an educational webinar, “Understanding Sudden Unexpected Death in Epilepsy (SUDEP).” Every year, more than 1 in 1,000 people with epilepsy die from SUDEP. The risk of SUDEP increases to 1 in 150 when seizures are not well controlled. SUDEP is the leading epilepsy-related cause of death.

Talking about SUDEP and early death in epilepsy is tough, but it is important and necessary. Discussing ways to lower risk for SUDEP with your health care team can help you take actions to stay healthy, improve seizure control and guide you to making the safest lifestyle choices. Open, honest communication with your epilepsy care providers is critical. Ask the hard questions. Your epilepsy team can help.

Webinar on Wednesday, October 30, 2019, 8:00 to 9:00 p.m. ET

“Understanding Sudden Unexpected Death in Epilepsy (SUDEP)”


Moderated by Dr. Elaine Kiriakopoulos, director of health communications and engagement for the Epilepsy Foundation, our guest speakers will discuss

  • What we know about SUDEP… and what we don’t know
  • Potential causes of SUDEP and the research being done to help find answers
  • Current guidelines and recommendations
  • The importance of knowing your epilepsy
  • How to ask your health care team about SUDEP and your individual risk
  • Actions you can take to lower seizure-related risks
  • Resources available through the Epilepsy Foundation SUDEP Institute

Guest Speakers

Jeffrey Buchhalter MD, PhD
Pediatric Epileptologist
Adjunct Professor of Pediatrics, Cumming School of Medicine
University of Calgary, Alberta
Co-Investigator, Epilepsy Learning Health Care System

Lisa Raman DNP, RN, MEd
Clinical Nurse Specialist and Educator, Neurology and Neurosurgery
Pediatric Epilepsy Outreach Nurse
Neuroscience Nurse Program Coordinator
Children’s Healthcare of Atlanta

Sally Schaeffer

Sally Schaeffer
Senior Director, SUDEP Institute
Epilepsy Foundation


Margaret Storey








Margaret Storey PhD
Professor of History
DePaul University
Danny Did Foundation Board of Directors

Alison Kukla








Allison Kukla MPH
Program Manager, National Programs & Services
Epilepsy Foundation

Preston Reilly






Preston Reilly PhD
Assistant Professor 
Higher Education
Old Dominion University


Note: presenters cannot address individual medical concerns and cannot provide individual advice.

Authored by

Epilepsy Foundation Health Communications

Reviewed by

Epilepsy Foundation Communications

Reviewed Date

Tuesday, October 08, 2019

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