#LifeHacks for SUDEP and Seizures

Update

Watch the recording of the Facebook Live event here.

Are you or your loved one having seizures? Did you know that some people with epilepsy are at risk for sudden unexpected death in epilepsy, known as SUDEP?

In our last SUDEP webinar, you asked for tips on how to reduce risks for SUDEP and seizures.

Join the Epilepsy Foundation and TalkAboutIt.org on Wednesday, January 31, 2018, at 8:00 p.m. ET for a Facebook Live event. We’ll talk about #LifeHacks, or tips, to lessen your risks for seizures and SUDEP and meet the new director of SUDEP Institute for the Epilepsy Foundation.

Guests

Jeffrey Buchhalter MD, PhD,is a renowned expert in epilepsy, SUDEP, and epilepsy in children. He is the director of the Comprehensive Children’s Epilepsy Centre at Alberta Children’s Hospital and a professor at the University of Calgary in Canada. Over the last decade, he has focused on ways to improve quality in healthcare, including the use of technology and big data to help improve care for individuals and families as well as health care systems.

Sally Schaeffer is the new Director of the Epilepsy Foundation’s SUDEP Institute. She holds a degree in Health Care Administration from the University of Wisconsin - Milwaukee and has spent most of her career in the health care industry. Beyond the professional realm, Sally’s advocacy for the advancement of epilepsy treatments has extended nationwide. Her special needs daughter, Lydia, was diagnosed with electrical status epilepticus in sleep (ESES) in June 2013. As few treatment options were effective for Lydia, Sally became a fierce and relentless leader in a statewide push for a law to provide alternative treatment options for individuals with epilepsy. Lydia’s Law was enacted in Wisconsin on April 22, 2014. Unfortunately, Lydia succumbed to epilepsy when she died in her sleep on Mother’s Day, May 11, 2014. Since Lydia’s passing, Sally has continued advocating for additional treatment options, as well as providing education and awareness surrounding epilepsy, SUDEP, grief, and bereavement. As the new SUDEP Director, Sally will continue drive the Institute’s mission and vision, as well as implementing the strategy to eradicate SUDEP.

Presenters cannot address individual medical concerns and cannot provide individual advice.