How Living With Epilepsy Has Shaped Me

At the age of 9, I became 1 in 26. My journey began unexpectedly at an out-of-state diving meet, where I woke up surrounded by paramedics.

From that moment on, my life shifted into a whirlwind of EEGs and a rotating door of medications, each trial hoping to control my seizures. The shock of this new reality was anything but welcome for a girl on the edge of adolescence. Thankfully, my family, friends, and medical team became steadfast pillars of support. Their compassion and encouragement were invaluable as I began learning how to navigate the complexities of living with epilepsy.

By the time I turned 16, I longed for the independence that driving symbolized—just like any other teenager. But epilepsy had its own rules. Instead of a driver’s license, I was faced with a major decision: undergo a lobectomy in the hope of stopping my seizures. A month after surgery, I had another seizure, shattering my hope of complete freedom from the condition. I also had to give up my diving scholarship, a heartbreaking loss. Still, I moved forward with an open mind. Doctors conducted extensive testing to assess whether college was realistic for me. While they recommended vocational school due to memory challenges after the surgery, I was determined to pursue higher education, and I did. I attended college and graduated successfully.

Living with epilepsy has shaped me in profound ways. It’s taught me resilience, patience, and the value of living in the present moment. The hurdles I’ve faced have made me stronger and more empathetic toward others dealing with invisible conditions. My journey has also been filled with joy and milestones, including marrying my partner and becoming a mom to two beautiful, healthy children.

Though I’ve been seizure-free for over a decade, my journey with epilepsy continues. And to anyone out there living with epilepsy: you are not alone. There is strength in our community and in sharing our stories.

Raising awareness is essential. As an Epilepsy Ambassador for the Epilepsy Foundation and a certified Seizure First Aid provider, I’m committed to advocacy and education, working to make a positive impact and help reduce the stigma surrounding epilepsy.