The Epilepsy Foundation's My Seizure Diary — Using Your Own Data to Improve Epilepsy Care

Webinar

Join a webinar on the Epilepsy Foundation My Seizure Diary on Wednesday, August 15, at 8:00 p.m. ET.

Why join?

How often does your doctor or nurse ask, "How are your seizures? How often do they happen? When was your last one?"

Are you able to answer these questions? Or do you take a guess? Do you maybe take notes beforehand, but accidentally leave them behind?

Why keep track of seizures?

Keeping track of seizures should be the number one thing that people with epilepsy and their families do. 

• Rarely do seizures happen in a clinic visit. Your health care team usually doesn't see what your seizures look like or know how often they happen. If you have EEG monitoring at home or in the hospital, your care team can get some idea of your seizures. But often seizures don't happen when you're being monitored outside of your typical environment. 
• So, the information you give your health care team is critical. It lets them know what is happening at home and if seizures are getting better or worse.

Reporting seizures in a diary is not as accurate as having EEG monitoring, but it gives you and your care team more helpful information than unclear notes or general statements like "I'm better" or "I'm having more, but I don't know when they happen."

What's the purpose of the webinar?

• Learn the importance of tracking seizures, medicines, and other health events. 
• Understand how seeing trends helps you manage your epilepsy better.
• Learn how to get started using the Epilepsy Foundation My Seizure Diary.
• Get help on how to use the diary and share with your family or health care team. 

We look forward to seeing you August 15th at 8:00 p.m. ET!

Best wishes,

Patty Osborne Shafer RN, MN, and David Jost

Note: presenters cannot address individual medical concerns and cannot provide individual advice.