Helpline

The Epilepsy & Seizures Helpline has trained information specialists available Monday to Friday 8:00 AM to 8:00 PM EST (excluding holidays) to answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance, and access to national and local resources.

Online: Online Help Form
Phone (English): 1-800-332-1000
Phone (en español) 1-866-748-8008
Or look up a resource online

Due to a high volume of inquiries, online form submissions may take up to 14 business days

We can help anyone interested in or affected by epilepsy. This includes:

  • People living with epilepsy
  • Caregivers and friends of someone with epilepsy
  • Anyone who simply wants to learn more about epilepsy

The Epilepsy & Seizures Helpline provides telephone support, answers email, and responds to online form submissions.

Some of the topics our information specialists respond to most often include:

  • Current epilepsy treatment and alternative therapies
  • Medication questions
  • Support groups
  • Seizure first aid and safety devices
  • Employment and discrimination
  • Emotional support
  • Epilepsy Foundation local offices
  • Sudden Unexpected Death in Epilepsy (SUDEP)

Visit our Epilepsy Learning Portal to access the Epilepsy Foundation’s free on-demand trainings about epilepsy and seizures. We have several online trainings, including a seizure first aid course to learn how to recognize seizures and respond to someone having a seizure. Our trainings are designed for people living with epilepsy, caregivers, nurses and other healthcare providers, as well as the general public.

The Epilepsy Foundation’s Epilepsy & Seizures Helpline is committed to providing accurate information and reliable referrals. The Helpline is accredited by Inform USA, the professional membership association for the Community Navigation field and the sole source for national standards, program accreditation, and practitioner certification in the sector. This accreditation independently validates that the Helpline’s policies, staff practices, resource database, partnerships, data systems, and emergency preparedness meet rigorous standards for quality and consistency.

To learn more about Inform USA accreditation, visit www.informusa.org/accreditation.

Related Resources

Online Resources Database

A complete list of epilepsy organizations, hotlines, and resources near you.

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Join the Resource Database

Apply to join our electronic resource database of programs and services

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Medication Assistance Program

If you can't afford your medication, these programs might lower the cost.

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Epilepsy & Seizures Helpline Flyer

Learn how our information specialists can help answer your questions.

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Find Your Community

There are local offices who can connect you to resources and to others affected by epilepsy.