Since 1969, the Epilepsy Foundation has celebrated November as National Epilepsy Awareness Month. Over the years, other organizations have joined the Foundation in that month-long recognition. In 2003, Congress passed a formal resolution declaring November as National Epilepsy Awareness Month.
In 2015, the international community, led by the International League Against Epilepsy (ILAE) and International Bureau for Epilepsy (IBE), announced the creation of International Epilepsy Day on the second Monday of February each year. As a member of IBE, the Epilepsy Foundation formally recognizes this day.
Other organizations recognize additional days or periods of time for special epilepsy and seizure awareness initiatives. For example,
- Ajude o Rafa, The Cute Syndrome Foundation, and Wishes for Elliott seek to inform affected families about available resources and educate the public about SCN8A epilepsy (a rare, genetic epilepsy) on International SCN8A Awareness Day on February 9. The day's lead oganizations join the Epilepsy Foundaton as members of the Rare Epilepsy Network (REN).
- EURODIS (Rare Diseases Europe) organizes Rare Disease Day on the last day of February each year to raise awareness about rare diseases and their impact on people's lives. Several types of epilepsy are rare and can be devastating for families.
- The Epilepsy Association of Nova Scotia and The Anita Kaufmann Foundation encourage the epilepsy community to raise awareness by wearing purple on March 26 for Purple Day®.
- The U.K.'s SUDEP Action leads the international epilepsy community in recognizing SUDEP Awareness Day each October 23rd. The Epilepsy Foundation actively participates in this special day through the SUDEP Institute.
- The LGS Foundation recognizes November 1st as International LGS Awareness Day.
- The Child Neurology Foundation and its partners lead Infantile Spasms Awareness Week during the first week of December.
Each effort is designed to raise awareness, end fear, fight discrimination, and show support for people impacted by epilepsy and seizures.