Epilepsy affects people of all ages, races and ethnic groups

We are the Epilepsy Foundation. We exist to END EPILEPSY®. That means increasing awareness and changing the conversation around epilepsy, improving and saving lives through care, advocacy, research and new therapies, and education, and mobilizing everyone to take action.

Our mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

For more than five decades, the Epilepsy Foundation has shone a light on epilepsy. The Foundation and its nationwide network of nearly 50 partners connects people to treatment, support and resources; leads advocacy efforts; funds innovative research and the training of specialists; and educates the public about epilepsy and seizure first aid.

Claire

Claire

Claire loves reading, writing, and history. But missing school for doctors’ appointments and medical testing makes it hard to keep up. Before her family connected with us, Claire told her mom she “felt like the only one who had epilepsy in the whole world and that no one understood me!”

4 Star Rating

4 Stars from Charity Navigator
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Charity Navigator rating

Charity Navigator has awarded the Epilepsy Foundation four out of four stars. This top rating indicates the Epilepsy Foundation adheres to good governance and other best practices that minimize the chance of unethical activities and consistently executes its mission in a fiscally responsible way.

Community Services

Our local network provides direct services and connections in communities across the United States for individuals and families impacted by seizures and epilepsy. Each local foundation provides education and outreach to community organizations like school systems, emergency services, and local governments.

Lily

Lily

Lily had her first seizure when she was a baby. She is bright, talented, and full of dreams for her future. But sudden, frightening, dangerous seizures are still part of her life. She describes having epilepsy as “a war that doesn’t have an ending.” But together we can change that!

Public Education

We provide educational support for individuals and families to help make sure they can manage and control their seizures to the best of their ability. Special initiatives help individuals and caregivers improve their overall health and raise awareness about the risk of sudden unexpected death in epilepsy (SUDEP). In addition, we educate the general public to help improve understanding of epilepsy, seizure recognition, and first aid. Epilepsy.com is the largest online education and community portal in the world for epilepsy education and awareness, with over 19 million global visitors a year.

Chase

Chase

Chase was diagnosed with epilepsy at age three. His seizures – sometimes hundreds a day – slowed his mental and emotional development. With his family and the epilepsy community, Chase is surrounded by love as he fights his battle against epilepsy.

Research into New Treatments and Therapies

Our epilepsy research ecosystem covers the entire spectrum of discovery – from the idea to market. We foster the development of new scientists and support research that leads to better treatments and care and an end to SUDEP. We strive for excellence, innovation, and radical thinking to end epilepsy.

Federal and Local Advocacy

We are committed to people with epilepsy, their family members, and caregivers; to advocating for funding for epilepsy programs, research, and a cure; to policies that promote research and innovation; to improving access to and coverage of quality care and essential services; and to the protection of the rights of individuals with disabilities. These broad goals guide our federal and state advocacy activities.

Kevin

Kevin

Kevin had epilepsy since he was a child. He tried many medications, but nothing completely controlled his seizures. The night of January 31, 2014, he had two seizures during his sleep. His wife, who was very familiar with his seizures, rolled over and went back to sleep. The next morning, she woke up and he didn't. He was only 56 years old. After learning about SUDEP following his passing, his daughter Amber said, “We just didn't know that this could have happened.”

How YOU Can Make a Difference!

Giving to the Epilepsy Foundation means you make the world a better, easier, more manageable place for Lily, Claire, Chase, and the 3.4 million other people in the U.S. who are living with epilepsy and seizures. Giving means you can help us prevent tragedies like Kevin's family experienced.

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Reviewed By: 
Epilepsy Foundation Communications Team
on: 
Tuesday, June 4, 2019