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Puberty Seizures?
Wed, 04/04/2007 - 21:10Topic: Living With Epilepsy - Youth
My daughter was diagnosed with complex partial seizures when she was 6 years old. By the age of 8 1/2 she was finally seizure free and off all medications. She has not had any seizures until now age 12. She has just started her period. Has anyone ever had any experience with this.
Comments
Re: Puberty Seizures?
Submitted by KayDee07 on Tue, 2007-04-10 - 11:55
Dena -
If you weren't talking I would think that was my situation. My daughter had two grand mal seizures at the age of 5. She was on meds (Tegretol) for two years and was seizure free. She started to have absence seizures about a year ago (right when she started to play her DS daily) and was on meds and was fine. She turned 12 in February and recently got her period in December. Easter morning we were going to a sunrise service and bam. Grand Mal seizure. I was numb. I thought this was over. I am so upset and beside my self. WE are going to the Dr. tomorrow, which is not soon enough. I heard about puberty seizures over the past two days and that is going to be one of my questions. Good Luck!
Re: Re: Puberty Seizures?
Submitted by Dena Zentz on Tue, 2007-04-10 - 20:59
I appreciate your take on this. I am as devistated as you are. We are still waiting to here back from a neurologist (They obviously never get in a hurry). I have had the same emotions and it can be overwhelming at times. I think we tend to be this way because you think it is Finally over, but I guess it is time to realize it never is. It is hard to accept after being seizure free for so long and doing so well. I only can hope that things turn out well for your daughter and mine as well. Please let me know what your doctor suggests. I think this will be interesting to find out.
Re: Puberty Seizures?
Submitted by lchippy on Tue, 2013-02-19 - 18:33
my daughter had her first gran maul on her 13 birthday soon we were in for a EEG I noticed she was not really her bouncing self that day we went out to go buy a new laptop for her that day and what teen don't like a electronics store but she was very quite that day then bam out of no where when we got home later that nite gran maul seizure they said she had probably been in a peti maul that day and I said for 8 hrs prior to the Grand Maul she has been on Lamontrigine for the last 1 1/2 years no side effects an was doing good for 6 mths then I noticed she looked tired again and was quite then out of no where again another Grand Maul seizure my daughter stops breathing with her seizures then she went almost 6 mths again then last night another Grand Maul while I was driving ..Got her to hospital she takes up to 4 hrs to fully come out ..I am new to this as well with only 4 epsidoes this far enough though when she stops breathing with her's I have done alot of research with children's med's for seizures an there is only a handful that have been clinically tested the rest have not..to name the ones that have are Neurontin topamax trileptal and lamictal some much info on med's maybe try research these ones..Good luck prayers to you and your daughter too