Place Your Advertisement Here
All ad revenues support the mission of the Epilepsy Therapy Project
 

  • Epilepsy First Aid
  • Seizure Medication
  • Videos
  • Seizure Diary
  • Find a Doctor
  • Epilepsy Centers
  • Clinical Trials
  • Event Calendar

Place Your Advertisement Here
All ad revenues support the mission
of the Epilepsy Therapy Project

People Stories

Search Stories
To find a story or topic of interest, enter a username or keyword in the box below.

Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.

Because these are your stories, submitted directly by you, they are not necessarily the opinions or positions of epilepsy.com. We suggest that you do not recommend medical or potentially harmful alternative treatments to others; because everyone's medical condition is individual.

Register to Participate

People Stories Index

 
BSimons
BSimons
New - Looking for answers...
Created by BSimonsat2/9/10 - 8:54 am|2 Views
Looking for help to find an answer... What is wrong? 

starli...
starli...
New - Finding myself through the years
Created by starli...at2/8/10 - 11:28 pm|1 View
This story outline some of my personal trials and test that I had to overcome while growing up with JME.

Jeffre...
Jeffre...
New - Too many times doing the fish!!!
Created by Jeffre...at2/8/10 - 9:34 pm|6 Views
I have taken ten different medications by doctors orders only one works.

eggcoo
eggcoo
New - My First story
Created by eggcooat2/8/10 - 5:40 pm|1 View
Sharing my experience and my life with every one here.

kaiden
kaiden
New - my beautiful 6yr old boy
Created by kaidenat2/8/10 - 3:05 pm|5 Views
My son has suffered with many different seizure types, but mainly tonic-clonic  

klabiche
klabiche
New - My son has Rolandic Epilepsy
Created by klabicheat2/8/10 - 11:32 am|7 Views
My 8 yr old was diagnosed 1 yr ago

Raymon...
Raymon...
New - My mother's epilepsy
Created by Raymon...at2/8/10 - 8:05 am|7 Views
My mother has epileypsy on 27.02.10 and now in less than ...

russell11
russell11
New - A married man with a sick wife
Created by russell11at2/7/10 - 6:18 pm|5 Views
A 55 year old with a hard of hearing wife and have some loss in the left ear use the tty vco or telphone.

Its Me
Its Me
New - Many changes I had and continue to have.
Created by Its Meat2/7/10 - 8:28 am|10 Views
This is my first time here.  A friend of mine looked into areas where I can talk with people who may understand what I am going thru. 

SheriK
SheriK
New - SheriK
Created by SheriKat2/7/10 - 7:21 am|7 Views
Hello, well this is interesting, telling complete strangers things I won't tell my family.  Oh well who really tells their families everything about anything?  Smooth it over, keep it light.....let's not upset anyone....or worry them for the luv of pete!

ladyt8
ladyt8
New - My daughter
Created by ladyt8at2/6/10 - 6:58 pm|3 Views
My daughter has generalized tonic -clonic seizures

smartinez
smartinez
New - My son has Rolandic Epilepsy
Created by smartinezat2/6/10 - 5:52 pm|3 Views
I am a mother of a 4 1/2 yr old who has recently been diagnosed with Rolandic Epilepsy.

devanray
devanray
New - Behavior Outbursts, Tics, and Seizures
Created by devanrayat2/6/10 - 5:09 pm|5 Views
7 years of outbursts, tics, and seizures so far.

Robina3
Robina3
New - Mrs
Created by Robina3at2/6/10 - 2:54 pm|6 Views
I am 60 years old, married and living with my husband in the North of England.  We have no children.  I have suffered from epilepsy (temporal lobe/nocturnal only) since birth.

weary
weary
New - constances story
Created by wearyat2/6/10 - 6:52 am|10 Views
 an example of how my mind fails=instructions for a 'brief description'=decription of what?me--ok, let's go with that--47yrs old, female, usa,siezures finally have taken permenent toll.

linz118
linz118
New - Lindsay's Story
Created by linz118at2/5/10 - 11:43 pm|9 Views
Before a seizure I am very tired. I only have seizures in  my sleep. Afterwards, I am in a fog or drugged feeling.

JoJack
JoJack
New - All of the sudden
Created by JoJackat2/5/10 - 11:32 pm|6 Views
I don't know what to do....

Miss J...
Miss J...
New - My son Jake
Created by Miss J...at2/5/10 - 4:16 pm|7 Views
My son is 12 when he was 10 he had a long day end of the school yr. Went to bed 9:00 about 1/2 hr later his twin brother got my husband and told him something was worng with Jake ( he was having a gran mal ) when I saw him he was hanging off his bed and I...

vijay4444
vijay4444
New - vijay
Created by vijay4444at2/4/10 - 11:38 pm|5 Views
i want to increase my weight which medicine or tablet will help me faster. my height is 6'1 inch and weight is 62kgs.

sac70605
sac70605
New - First seizure ever 2/2/2010
Created by sac70605at2/4/10 - 3:28 pm|12 Views
Fell asleep at 10 pm after watching American Idol.  30 minutes later my wife recalls me throwing my arms all over our bed, me gasping for air, my lips turning blue, and blood coming out of my mouth.  She calls 911.

cyndi0...
cyndi0...
New - My story about my son
Created by cyndi0...at2/4/10 - 1:54 pm|4 Views
Everything is new to us diagnosed about 3 mths ago

SDUN2767
SDUN2767
New - My one and only seizure...so far.
Created by SDUN2767at2/4/10 - 12:43 pm|5 Views
My seizure experience....

Briann...
Briann...
New - i've had epilepsy since i was six.
Created by Briann...at2/4/10 - 9:30 am|7 Views
i have been living with epilepsy since i was six years old. i've recently been told i was a good candidate for surgery. i'm just very scared about actually getting the sugery and i'm not sure which procedure to get. i would really like to get some advice from...

Epilep...
Epilep...
New - My 8th grade Grand-Mal
Created by Epilep...at2/4/10 - 8:27 am|7 Views
30 minutes, sent to North western Medical center on a enosburg ambulance

cicilu...
cicilu...
New - my seizure story woooohooo
Created by cicilu...at2/3/10 - 11:42 am|9 Views
seizures ssuuuuccccccccckkkssss

Alex_H.
Alex_H.
New - Alex_H. STORY
Created by Alex_H.at2/3/10 - 6:59 am|11 Views
I started having siezues at about 18yrs. old. needless to say I was a little scered @ the time, but since then I have learned to manage my seizures pretty well.

dbstuckey
dbstuckey
New - my husbands torture
Created by dbstuckeyat2/3/10 - 6:15 am|3 Views
he had a left temporal cavernous angioma epilepsy since 14 yrs old and now 40.

divya ...
divya ...
New - is it an aura?
Created by divya ...at2/3/10 - 4:32 am|6 Views
m on treatment for migrane and depression, i take valproic acid sustained release 250mg and flunarazine but not diagonised for seizures, my father is epileptic patient, i get some times 2 bubbles like, of which one is big and one is small, and the size keeps...

debrajean
debrajean
New - Love to Back in the Fast Lane
Created by debrajeanat2/2/10 - 10:22 pm|8 Views
  Hi my name is Debra Jean I am 48yrs old ,married and have two grown boys. In the middle of med change. I don't like them. I can only hope for the best. My peti-mals have not been controlled for years.  It has affected my memory terribly. Ive been...

spaz man
spaz man
New - now what
Created by spaz manat2/2/10 - 10:06 pm|13 Views
well iv had spazs since 30...im 47 now iv lost all...i was heavy duty mach...a boat capt and a cdl driver.had my own biss..for 15 years..till my dirty little secret cam out...i wreck a truck...no one killed or inj. well iv been to all the doc in alaska and...

maymae
maymae
New - The 30 Year Seizure
Created by maymaeat2/2/10 - 6:38 pm|2 Views
Telling a story of my life battling and accepting epilepsy.

mongreg
mongreg
New - seizures will change your life
Created by mongregat2/2/10 - 4:58 pm|15 Views
nine years of dealing with seizures

karter
karter
New - karter
Created by karterat2/2/10 - 4:47 pm|4 Views
been having episodes of blackouts and fainting,while going by police cars with their Flashbars on.

Maddy
Maddy
New - Getting real
Created by Maddyat2/2/10 - 1:41 pm|2 Views
Auras and epilepsy

shorti...
shorti...
New - I'm getting used to the idea... but my family are not!
Created by shorti...at2/2/10 - 7:11 am|2 Views
Diagnosed at 21 after a car accident, learned to accept it but my family haven't! Weak support system until they learn to come to terms with it!!

links669
links669
New - Capacity for links of london jewellery
Created by links669at2/2/10 - 12:20 am|3 Views
links of london

pwalker
pwalker
New - Fruit and Fruit Juice with Medications
Created by pwalkerat2/1/10 - 7:27 pm|22 Views
This is a must read!!!! I believe anyone taking prescription meds should pay attention to what you are eating and drinking with your meds!!!  I've never been informed by any of my doctors or pharmacy regarding this issue, but believe there could be a connection...

midon
midon
New - smile world
Created by midonat2/1/10 - 7:55 am|6 Views
no

candyg...
candyg...
New - Don't know what is happening to me?
Created by candyg...at2/1/10 - 6:16 am|18 Views
I was rear ended in a car accident in Oct. 2009 and ever since everything seems to be spiraling out of control.

brayle...
brayle...
New - 7mth old unknown seizures
Created by brayle...at1/31/10 - 8:52 am|2 Views
We are not sure what really happend we have to see a specialist, he just wasnt here, sorry to say he felt dead when it happend.

mmedenial
mmedenial
New - What?! Epilepsy? How is that possible?
Created by mmedenialat1/30/10 - 10:05 pm|9 Views
Newly diagnosed and confused as hell.  Looking for successful epileptics - who have their cake and eat it too.

Lo24
Lo24
New - lauren kozakovsky
Created by Lo24at1/30/10 - 7:26 pm|6 Views
age:21 epilepsy for 5 years unexplained.

Syd-Vi...
Syd-Vi...
New - Im Sydney Sabrina Gray & This is My Story. /Please Read!!/
Created by Syd-Vi...at1/30/10 - 6:42 pm|39 Views
I know this is a long blog but please read this, its very important to me and I really could use a friend!

mariae...
mariae...
New - Don't lose Faith.
Created by mariae...at1/29/10 - 1:28 pm|11 Views
I've been living with epilepsy for the past 50 yrs.  It is very easy to develope other problems as a result of having seizures.  It is important to stay positive, take yours meds and not lose sight of your faith in God.

livevamp
livevamp
New - The Monster In Our House
Created by livevampat1/29/10 - 1:04 pm|7 Views
Wean My son was first diagnosed with Epilepsy i was so scared of course you know the felling why my son what did i do wrong but than i remembered i have a daughter and a son and that thay needed me the most right then when my daughter and son starte asking...

janb1971
janb1971
New - seizures
Created by janb1971at1/29/10 - 12:35 pm|11 Views
 I am a 38 year old woman with 2 kids , and has been having seizures from age14 years old . they are uncontrolable . the doctors dont know what cases them  , no accedents, or tumors , nothing like that .i take 4 diff.med.  my children deal with it ,have...

LynB
LynB
New - Seizures, and medication questions, How do yoiu manage witihout driving?
Created by LynBat1/29/10 - 10:40 am|13 Views
After having a first seizure in 1971 and having all tests, and brain surgery no solution found,   Been on dilantin and phenobarbitol since then with no seizures,  then 2 years ago a seizure while driving caused accident, and two weeks ago a repeat,  ...

Phoebe580
Phoebe580
New - A peek inside my life
Created by Phoebe580at1/28/10 - 8:14 pm|21 Views
My life with grand mal seizures

meliss...
meliss...
New - The night my life changed forever...
Created by meliss...at1/28/10 - 3:10 pm|8 Views
I had not had anything different in my life going on that would have triggered this, but this is my story!

Unsure
Unsure
New - Not sure what is going on.
Created by Unsureat1/28/10 - 11:40 am|12 Views
MRI, CT and blood work - Still no clue what's wrong.


People Story Activity