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VNS Surgery

If you (or your loved one) have had a vagus nerve stimulator implanted, what happened after it?

no more seizures
5% (11 votes)
helped control seizures a lot
33% (72 votes)
helped a little bit
35% (76 votes)
didn’t help at all
16% (35 votes)
worse off
10% (22 votes)
Total votes: 216

View results
View past poll results

People Stories

Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.

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People Stories Index

 
medwar...
medwar...
New - It's not easy, but it is worth it!
Created by medwar...at5/9/08 - 7:18 am|1 View
A mother of four children, two of which have epilepsy, deals with the struggles of divorce, re-marriage, blending families, and starting over.

dmbrid77
dmbrid77
New - Consequences of having seizures
Created by dmbrid77at5/9/08 - 6:20 am|1 View
I had a allergic reaction to my DPT shot apparently there was pertusis in it and when my mother and I got home I was having at least 10 to 12 seizures a day with no way to control them.

michel...
michel...
New - My daughter Katherine
Created by michel...at5/7/08 - 5:06 pm|12 Views
My daughter was diagnosed with Complex Partial Seizures

aprill...
aprill...
New - Life with epilepsy
Created by aprill...at5/7/08 - 10:30 am|7 Views
when my son was nine he started having seizures which have never been controlled.

Spirit...
Spirit...
New - My Life
Created by Spirit...at5/6/08 - 9:32 pm|8 Views
How I been.

johnsbass
johnsbass
New - ...Just Me and my E...
Created by johnsbassat5/6/08 - 7:21 pm|7 Views
Recently diagnosed is probably relative, but I supposed compared to most I am a newbie.  I am 52 and was dg'd at 48 so it's about 4 years now.  Currently I am taking Lamictial (500) and Zonisamide (200) @ day

ahardway
ahardway
New - AHardway's Battle
Created by ahardwayat5/6/08 - 4:39 pm|4 Views
This is a story  about a 26 year old female who had never had a problem with epilepsy until just  a couple of weeks after she turned 24.

seizur...
seizur...
New - I was so scared!
Created by seizur...at5/5/08 - 6:18 pm|8 Views
i was at church when I had my first seizure    

cindy ...
cindy ...
New - Seizures, Brain surgery, VNS, What's Next?
Created by cindy ...at5/5/08 - 3:17 pm|13 Views
After all this, nothing seemed to work.

harvey...
harvey...
New - Zonegran - A Little Goes A Long Way
Created by harvey...at5/5/08 - 12:40 pm|17 Views
I have tried many drugs and two surgeries over 28 years trying to eliminate seizures. I had some success with Tegretol and Keppra, as well as others, but nothing that would totally take care of them. Over the last few years, I've added Zonegran to Keppra...

chastity
chastity
New - Benign Rolandic Epilepsy Parent
Created by chastityat5/5/08 - 12:01 pm|4 Views
My 3 year old son was diagnosed as having Benign Rolandic Epilepsy

Debbie001
Debbie001
New - Hi I'm Debbie from New Zealand
Created by Debbie001at5/4/08 - 1:22 am|6 Views
I've had epilepsy since I was 27 (now 47) and things are not going well.  I've been on Dilantin, Epilim, and Tegretol which worked well for many years, Topamax at present which isn't working and Clobazam, (as well as Lamictal, previously).  It is not uncommon...

rd.harris
rd.harris
New - mallory our 3 year old
Created by rd.harrisat5/3/08 - 6:45 am|7 Views
small seizures started at age 1.5 now dr;s are recomending surgery and we are not prepared for this, please provide similar experiences. thanks Ricky Harris

kroiz
kroiz
New - Jessica Roiz
Created by kroizat5/3/08 - 5:00 am|189 Views
The first 3 months of Jessicas life

moules
moules
New - How can I tell my son everything will be ok?
Created by moulesat5/2/08 - 5:35 pm|9 Views
How can I tell him everything will be ok when I don't know for sure it will be? I'm as scared as he his.

MissyM
MissyM
New - Looking for someone with similar situation JAE??
Created by MissyMat5/2/08 - 1:48 pm|7 Views
Diagnosed with JAE need help with answers/anyone with similar situation

mytechguy
mytechguy
New - Life
Created by mytechguyat5/2/08 - 11:01 am|13 Views
How You Doing?

PAOLOM...
PAOLOM...
New - Paolo Mainardi
Created by PAOLOM...at5/2/08 - 12:57 am|7 Views
The results obtained in many years of studies allow me to identify in a whey protein a very effective tool for the control of the seizures.

swim9
swim9
New - Dealing with EPILEPSY
Created by swim9at5/1/08 - 6:47 pm|8 Views
Epilepsy

ram849
ram849
New - Thank you Keppra
Created by ram849at5/1/08 - 6:18 am|11 Views
My seizures were uncontrollable until my doctor suggested trying keppra

tugs4501
tugs4501
New - new to epilepsy
Created by tugs4501at4/30/08 - 10:35 pm|12 Views
her first seizure she had high fever and she was asleep, her eyes rolled up and her arms and legs were twitching, after two weeks she had another seizure and this time she was not sick she was playing and she just fell down like someone pushed her and she...

Amy here
Amy here
New - Aaron's Battle with Epilepsy
Created by Amy hereat4/29/08 - 9:03 am|23 Views
Aaron age 10 and his journey through childhood dealing with Epilepsy.

willsmom
willsmom
New - Long road
Created by willsmomat4/28/08 - 9:13 pm|9 Views
Plenty of meds, patience, not there yet!

jlmg8635
jlmg8635
New - Just wanting to help.
Created by jlmg8635at4/28/08 - 4:28 pm|8 Views
How to get a support group or a charity started.

papers1
papers1
New - This will not Control me
Created by papers1at4/28/08 - 11:30 am|9 Views
I was diagnosed with complex partial siezures, after a series of panic attacks that I had been experiencing in the early 1990's at 26 years of age-

st.gab...
st.gab...
New - my family does not believe that there's anything wrong with me
Created by st.gab...at4/27/08 - 7:19 pm|12 Views
49 year old female intractable seizures, cluster seizures during my cycle. currently taking trileptal (1500 mg) , 200 mg zoloft, and 3mg of klonopin. January 3rd arrested for causing disturbance at court house a former employer because I wanted my employee...

latinm...
latinm...
New - Antonio's journey
Created by latinm...at4/27/08 - 6:40 pm|23 Views
How do we ever get use to living with epilepsy?

PINEMI...
PINEMI...
New - blood clod on the brain
Created by PINEMI...at4/27/08 - 4:04 pm|3 Views
I went to the hospital and that was when they found the blood clod . after the surgery I had a tube in my head for 8 days.I am on Keepra 1000 mg 1x2 day It has stoped my seizures and my drivers licens have been flaged for 6 months.I feel good and have no...

KYmom
KYmom
New - My son and encephalitis
Created by KYmomat4/26/08 - 8:58 pm|11 Views
My son and encephalitis

BETH C...
BETH C...
New - Simple Complex Partial
Created by BETH C...at4/26/08 - 5:01 pm|16 Views
I started having seizures Sept. 6th of 1991,  six days after giving birth to my second child. The cause of my seizures is really unknown. The first Doctors to diagnose me with these seizures claimed it to be from miquito bites causing encyphalitis. A few...

Vikki909
Vikki909
New - Epilipsy changed my life
Created by Vikki909at4/26/08 - 9:10 am|13 Views
From day 1 till now

Patty F.
Patty F.
New - Happy moments,praise God.Difficult moments,seek God.Quite moments,worship God.Painful moments,trust God.Every moment,Thank God.
Created by Patty F.at4/26/08 - 7:39 am|21 Views
I was married for 30 years until my husband commited suicide the day before Christmas the year 2006...I have a black labrador and 3 cats that I consider my family ! I have no help from family...

angela...
angela...
New - Life Changing experience
Created by angela...at4/26/08 - 5:03 am|52 Views
30 yrs old, Diagnosed with Epilepsy July 24, 2007 and discovered I have Temporal Lobe seizures February 5, 2008 through Video EEG study. I don't understand, but I'm learning more everyday.  

Tommysmom
Tommysmom
New - Tommy's journey
Created by Tommysmomat4/26/08 - 1:05 am|4 Views
This Blog is about Tommy's journey from the date of his vacinations at 4 months to the presant at 3 yrs old.

smile
smile
New - CARBAZEPINE and Weight Gain ....I´ll tell you why
Created by smileat4/25/08 - 9:43 am|6 Views
   How tegretol makes you gain Weight.

mawake...
mawake...
New - Oh, How a Year Will Change You
Created by mawake...at4/25/08 - 7:35 am|25 Views
I ended up with seizure disorder after undergoing emergency brain surgery. It has now been 13 months and 10 seizures since the surgery. While my recovery was remarkable, getting handed epilepsy has been one of those gigantic life-changers.

future...
future...
New - my AURAS look like geometric color pinwheels any one else? have visual disturbances
Created by future...at4/24/08 - 12:17 pm|7 Views
i have only had one seizure and i am learning about common auras or warning signs.   I have not heard of or read about any auras or warning signs like the one i had.  I became hot and sweaty (which i understand is not uncommon), then my vision became...

mummy02
mummy02
New - My Hidden Life
Created by mummy02at4/24/08 - 7:08 am|19 Views
My Hidden Life is me being afraid to tell people of my Epilepsy.

swiggs07
swiggs07
New - Adolescent nightmare
Created by swiggs07at4/23/08 - 9:22 pm|17 Views
Turning twelve is such a big thing to most kids, one more year until you are finally a teenager, for some girls it means receiving their periods, but for me it meant periods and seizures, two for the price of one, a very expensive price to pay...

Alisha
Alisha
New - MRI Test with no answers
Created by Alishaat4/23/08 - 2:26 pm|6 Views
MRI tests bring up more questions about her her condition

lynnvs
lynnvs
New - Keppra & Urbanol
Created by lynnvsat4/23/08 - 2:00 am|23 Views
 I am new

kjsdes...
kjsdes...
New - Be Careful
Created by kjsdes...at4/22/08 - 5:40 pm|9 Views
School teacher attacked by the police

stepmo...
stepmo...
New - My Son's Story
Created by stepmo...at4/21/08 - 3:34 pm|8 Views
My stepson has had epilepsy since he was about 7 years old.  His seizures started small with what the doctors then discribed as "growing pains", and progressed to partial seizures then to full blown nocturnal general tonic/clonic seizures by the...

joance...
joance...
New - changing from Dilantin to Lamictal therapy
Created by joance...at4/21/08 - 12:57 pm|16 Views
Trying to switch from dilantin to Lamictal

Trull
Trull
New - Living with Siezures
Created by Trullat4/21/08 - 12:14 pm|10 Views
My name is Joe and I am 39 years old.  I have been having seizures since I was approximately 9 years old.

carey....
carey....
New - tshuva
Created by carey....at4/21/08 - 8:01 am|9 Views
from august 03-dec 07 seizure history  

tiger67j
tiger67j
New - my chang forever
Created by tiger67jat4/21/08 - 7:23 am|2 Views
this is when i found out i had it

automom
automom
New - Thanksgiving Morning
Created by automomat4/20/08 - 8:26 pm|13 Views
 New epileptic patient

deedle
deedle
New - From hell and back
Created by deedleat4/20/08 - 7:42 am|2 Views
   The up and downs in my life with seizures

hummin...
hummin...
New - Jacklyn's Story
Created by hummin...at4/20/08 - 4:35 am|6 Views
I have a young daughter now almost 4.  She was dx when she was 8 months old. Been on a few meds until we found the right one.


People Story Activity