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New To MyEpilepsy.Com

Wed, 11/08/2006 - 16:24
HI Everyone, My name is Kathryn I am new to this website. I am 22 years old and I had my first gran mal seizure when I was 6 weeks old. I am going to do an observation within the next two months to see where my seizures are coming from. The reason why I am doing this is because when I have an EEG at the hospital and I've done the weekened EEGS nothing shows up on my EEGS and I've had seziures while I am doing the EEGS but the machine doesn't pick them up.

Comments

hi I'm new to epilespy.com

Submitted by keppra2012 on Sun, 2012-06-24 - 22:15
Hi my name is diane in May 2011 I had surgery to remove a pituitary tumor only have was removed. In february 2012 I suffered a stroke as a result if the stroke i started have seizures. was put 500mg of keppra. I later went on to have more seizures was hospitalied again in march for break through seizures. keppra up to 750mg twice aday. Had more seizures keppra up to 1000mg twice a day. Had more seizures keppra up to 1500mg twice a day. was told i had secondary epilespy as a result of the stroke surgery radiation treatment anybody else experienced anything like this. keppra makes me sleep all the time how can you work or do anything like this

Re: New To MyEpilepsy.Com

Submitted by hlatchjr on Wed, 2009-12-16 - 21:36

Hey Kathryn: Don't feel bad about nothing showing up in your EEG's. This has been the story of my lifes since I was in my 20's. I'm now 62, turning 63 on Dec. 21. Everytime I go in for any testing, nothing ever shows up. I've been asked to go see a Psychologist/Psychiatrist claiming that my "episodes" are the result of stress. I was treated with medication, Keppra and Lyrica for almost two years. During that time, I experienced more "seizures", or "episodes". I too had a 5 day EEG being monitored via audio and video cameras for 24/7. My "episodes" showed up on the EEG, but the doctor shrugged them of as "stress". Like I said earlier, most of my life whenever the doctor couldn't find what's wrong, the doctors said it's all in my head and I should get professional help. After taking the doctors advise, I did go to a Psychiatrist/Psychologist. After only a few visits, they would ask me why I was there. I explained what the doctor said. The told me that Psychologly speaking, nothing is wrong with me. What is wrong is of a medical nature and they have to find out what is going on. Usually after 3-4 years, either I still have the symptoms or they disappear, but by then they have either come up with a name for my symptoms or can treat me better due to a betterment in the medical field. MY POINT, DON'T EVER GIVE UP. THERE IS ALWAYS HOPE. SO DON'T DISPAIR. Just hang in there. I'm always here to offer my 2 cents if someone is willing to listen. You can also reach me at my main email address: dmndmstr@gmail.com. Keep in touch, I look forward to hearing from you again. Henry

Hey Kathryn: Don't feel bad about nothing showing up in your EEG's. This has been the story of my lifes since I was in my 20's. I'm now 62, turning 63 on Dec. 21. Everytime I go in for any testing, nothing ever shows up. I've been asked to go see a Psychologist/Psychiatrist claiming that my "episodes" are the result of stress. I was treated with medication, Keppra and Lyrica for almost two years. During that time, I experienced more "seizures", or "episodes". I too had a 5 day EEG being monitored via audio and video cameras for 24/7. My "episodes" showed up on the EEG, but the doctor shrugged them of as "stress". Like I said earlier, most of my life whenever the doctor couldn't find what's wrong, the doctors said it's all in my head and I should get professional help. After taking the doctors advise, I did go to a Psychiatrist/Psychologist. After only a few visits, they would ask me why I was there. I explained what the doctor said. The told me that Psychologly speaking, nothing is wrong with me. What is wrong is of a medical nature and they have to find out what is going on. Usually after 3-4 years, either I still have the symptoms or they disappear, but by then they have either come up with a name for my symptoms or can treat me better due to a betterment in the medical field. MY POINT, DON'T EVER GIVE UP. THERE IS ALWAYS HOPE. SO DON'T DISPAIR. Just hang in there. I'm always here to offer my 2 cents if someone is willing to listen. You can also reach me at my main email address: dmndmstr@gmail.com. Keep in touch, I look forward to hearing from you again. Henry

Re: New To MyEpilepsy.Com

Submitted by SteelCityMatt on Tue, 2012-01-17 - 10:45
Hello. First time poster here. Took some bottle to post this as I want to be in denial as to what is happening/has happened. Suffered an AVM (brain haemorrhage) in October 2008. Suffered a seizure 2 weeks later in my sleep. This was put down to blood escaping the head cavity and causing the seizure. It almost killed me, physically and mentally. I'm a real outgoing person (or was). Worked every day, went out at the weekends. The usual 21 year old stuff. Then to be crippled and almost killed was a shock. That seizure was the only one I had. Then in May 2010, I was out for my girlfriends 21st. Only went for a meal with her parents. Something wasn't right. I didn't know what it was, but I wasn't right. She dismissed it as a hangover. 5 minutes later, I was having a seizure. It felt awful. I didn't know what they were like, or the aura's leading up to them. I then went another 10 months seizure free, in and out of work. Then I had 3 seizures in 1 hour. Since then, I've been on phenytoin trying to control the seizures. I've had the odd one since, and my dosages have been changed to suit. My life is at a standstill. My career in construction is as good as finished, and as it's the only thing I've ever really done, I'm stuck. I've suffered dark thoughts, horrifying nightmares, and relationship issues with my girlfriend and my family. What do I do? I'm genuinely in a hole I can't get out of. As soon as I start to get my spirits up, I'm struck down again. It's happened on a few occasions. Me and the mrs plan a weekend away, and I have a fit. It's depressing and horrible.

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