Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
New To MyEpilepsy.Com
Wed, 11/08/2006 - 16:24Comments
Re: New To MyEpilepsy.Com
Submitted by hlatchjr on Sat, 2008-06-28 - 15:28
Jeannie,
It's nice to hear from you. It seem that a lot of people out there are suffering from seizures. I would be most happy to keep in touch with you regarding your progress.
You are lucky that you can have an M.R.I. At present I have too much metal in my body to have any kind of an M.R.I. 4-5 years ago, I had a Neurostimulator installed in my lower back to control my chronic back pain. Then about 3 years ago, I had a TrapEase Filter installed to control my susceptability to blood clots and finally in Feb. this year, I had a Morphine Pump installed to give me greater pain relief.
Have you asked the Epilepsy foundation to send you any literature concerning your seizures? I did and I was astonished by the triggers that bring on seizures. Since 2007, I was on Keppra, doses from 250mg. and up to 500mg. three times daily and I was also on Meclazine 25mg., three times daily. My neurologist also prescribed Lyrica 75mg. three times daily and finally was taking 100mg. three times a day. After my 4 day, 24 hour audio and video while hospitalized, the test concluded that my seizures are non-epileptic but are brought on by stress. I never heard of that. Since the test, I was taken off the Keppra and Lyrica because they were not working. At this time I am on Meclazine 25mg, three times daily and Gabapentin 400mg. three times daily. Having seizures is not fun at any age. I guess at my age, I am able to deal with it better, because I understand what is going on in my body. Since I've been off the Keppra and Lyrica, I still suffer from seizures, up to 15 seizures a month or more.
Glad to hear that you're visiting my home state, New Jersey. I hope you enjoy the visit. I look forward to hearing from you and have a safe trip to North Carolina.
Henry
Jeannie,
It's nice to hear from you. It seem that a lot of people out there are suffering from seizures. I would be most happy to keep in touch with you regarding your progress.
You are lucky that you can have an M.R.I. At present I have too much metal in my body to have any kind of an M.R.I. 4-5 years ago, I had a Neurostimulator installed in my lower back to control my chronic back pain. Then about 3 years ago, I had a TrapEase Filter installed to control my susceptability to blood clots and finally in Feb. this year, I had a Morphine Pump installed to give me greater pain relief.
Have you asked the Epilepsy foundation to send you any literature concerning your seizures? I did and I was astonished by the triggers that bring on seizures. Since 2007, I was on Keppra, doses from 250mg. and up to 500mg. three times daily and I was also on Meclazine 25mg., three times daily. My neurologist also prescribed Lyrica 75mg. three times daily and finally was taking 100mg. three times a day. After my 4 day, 24 hour audio and video while hospitalized, the test concluded that my seizures are non-epileptic but are brought on by stress. I never heard of that. Since the test, I was taken off the Keppra and Lyrica because they were not working. At this time I am on Meclazine 25mg, three times daily and Gabapentin 400mg. three times daily. Having seizures is not fun at any age. I guess at my age, I am able to deal with it better, because I understand what is going on in my body. Since I've been off the Keppra and Lyrica, I still suffer from seizures, up to 15 seizures a month or more.
Glad to hear that you're visiting my home state, New Jersey. I hope you enjoy the visit. I look forward to hearing from you and have a safe trip to North Carolina.
Henry
Re: New To MyEpilepsy.Com
Submitted by song on Thu, 2013-09-05 - 15:37
hi everyone, I am new here, my name is Song. Very sad to hear from many people suffer from epilepsy.
I have seen many seizures in my life, very sad! from my experience , too excited will cause seizuo, epilepsy people need enough sleep. everytime after seizure lack of oxygen, this will demage the cell in the brain. dont stay very late everyday , keep happy , relax , this will help ,,another thing, dont drink the carbonated drinks, this will cause seizure, also coffee ,these will excited you. dont play games so long everyday..
medicion is the way to control seizure, i saw people who did surgery ,but after that they still have seizure, dont forgot take medicine ,
hi everyone, I am new here, my name is Song. Very sad to hear from many people suffer from epilepsy.
I have seen many seizures in my life, very sad! from my experience , too excited will cause seizuo, epilepsy people need enough sleep. everytime after seizure lack of oxygen, this will demage the cell in the brain. dont stay very late everyday , keep happy , relax , this will help ,,another thing, dont drink the carbonated drinks, this will cause seizure, also coffee ,these will excited you. dont play games so long everyday..
medicion is the way to control seizure, i saw people who did surgery ,but after that they still have seizure, dont forgot take medicine ,
Re: New To MyEpilepsy.Com
Submitted by mysticalgeni on Fri, 2008-06-27 - 06:24
Henry
I just had my first seizure on Wednesday...was hospitalized and now this new road begins...I found it interesting readying your blog here as I've had the same. In learning about this all being new to it, I see that the way I've been feeling the past two years and leading up to this. I think I've actually had a seizure before and just did not know what it was...I go for an MRI next week again, had an EEG Tuesday and was just put on Lamactil. I am in Jersey visiting family and saw doctors up here. I go home to NC on Wed and will get with my doctors there. I currently am not working and have no insurance so.........would love to discuss more with you. Since the 19th I've felt like I got hit with a mack truck and sore sore sore...........
mysticalgeni (Jeannie)
Henry
I just had my first seizure on Wednesday...was hospitalized and now this new road begins...I found it interesting readying your blog here as I've had the same. In learning about this all being new to it, I see that the way I've been feeling the past two years and leading up to this. I think I've actually had a seizure before and just did not know what it was...I go for an MRI next week again, had an EEG Tuesday and was just put on Lamactil. I am in Jersey visiting family and saw doctors up here. I go home to NC on Wed and will get with my doctors there. I currently am not working and have no insurance so.........would love to discuss more with you. Since the 19th I've felt like I got hit with a mack truck and sore sore sore...........
mysticalgeni (Jeannie)