Community Forum Archive
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New To MyEpilepsy.Com
Wed, 11/08/2006 - 16:24Topic: New to Epilepsy.com
HI Everyone,
My name is Kathryn I am new to this website. I am 22 years old and I had my first gran mal seizure when I was 6 weeks old. I am going to do an observation within the next two months to see where my seizures are coming from. The reason why I am doing this is because when I have an EEG at the hospital and I've done the weekened EEGS nothing shows up on my EEGS and I've had seziures while I am doing the EEGS but the machine doesn't pick them up.
Re: New To MyEpilepsy.Com
Submitted by SteelCityMatt on Tue, 2012-01-17 - 10:42
Hello. First time poster here. Took some bottle to post this as I want to be in denial as to what is happening/has happened. Suffered an AVM (brain haemorrhage) in October 2008. Suffered a seizure 2 weeks later in my sleep. This was put down to blood escaping the head cavity and causing the seizure. It almost killed me, physically and mentally. I'm a real outgoing person (or was). Worked every day, went out at the weekends. The usual 21 year old stuff. Then to be crippled and almost killed was a shock. That seizure was the only one I had. Then in May 2010, I was out for my girlfriends 21st. Only went for a meal with her parents. Something wasn't right. I didn't know what it was, but I wasn't right. She dismissed it as a hangover. 5 minutes later, I was having a seizure. It felt awful. I didn't know what they were like, or the aura's leading up to them. I then went another 10 months seizure free, in and out of work. Then I had 3 seizures in 1 hour. Since then, I've been on phenytoin trying to control the seizures. I've had the odd one since, and my dosages have been changed to suit. My life is at a standstill. My career in construction is as good as finished, and as it's the only thing I've ever really done, I'm stuck. I've suffered dark thoughts, horrifying nightmares, and relationship issues with my girlfriend and my family. What do I do? I'm genuinely in a hole I can't get out of. As soon as I start to get my spirits up, I'm struck down again. It's happened on a few occasions. Me and the mrs plan a weekend away, and I have a fit. It's depressing and horrible.