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Need a Little Advice for TLE
Fri, 05/26/2006 - 12:06Hi All,
Since being diagnosed with TLE, 1yr ago after a GMal, I have had what I now know as Complex Partial seizures for the past 2-3 yrs. For a long time I just thought I was having major Déjà vu type experiences. When I had an EEG and MRI they both showed nothing unusual. My confusion is that I have been told that I have Complex Partial Seizures but from reading info I understand that you generally lose consciousness and although I cannot speak nor really understand what is being said during the episode, I can gesture and am completely aware of my surroundings. Depending on the degree, I am sometimes confused afterwards for a bit. Anyone else with similar symptoms. I am on 1000 Keppra a.m. and p.m. and still can have 1-3 per day. Some days none. The neuro has suggested I up the meds by 500mg per day to try and control.
Tks, for any thoughts and best wishes,
Rita
Comments
Re: Re: Re: Need a Little Advice for TLE
Submitted by ritab2002 on Sat, 2006-05-27 - 01:21
Sol
Thanks for your comments, the Absence aka Petite- mal were ruled out since I do remember that I have had the seizures but I am unable to explain what was said during that time. I do have sometimes just the simple without the complex partial phase. Has the surgery helped you? I have only just begun my journey with this in the past three years. I now also believe that I may have had a Grande Mal when I was a teenager(many moons ago) but it was not verified.
Rita
Re: Re: Re: Re: Need a Little Advice for TLE
Submitted by heidi on Sat, 2006-05-27 - 07:04
Hello all,
For those of you still trying to sort out how your experiences fit into the definitions of simple/complex partial seizures, I wanted to add on to my last post--while I am aware, my awareness is quite "impaired" too--my seizures have stoppped me in my tracks many times--as I reported in a different thread, last time I was "stuck" on the stretching mat at the gym for a spell. I have read many different definitions (thanks much sol for posting a few of those here for everyone), and am still trying to sort out an exact diagnosis with my neurologist, who is sadly not a specialist in epilepsy, although I'm looking for one of those.
Often I will have a few "doozies" a day during a bad run, but my consciousness will be affected throughout the day--I'll feel briefly disconnected from my surroundings, or unable to understand what someone is ssying, or just randomly get the creeps. Does this happen to other people?
Re: Re: Need a Little Advice for TLE
Submitted by solis on Fri, 2006-05-26 - 22:29
"Could it be you have been experiencing Petit-Mal also known as Absence Seizures" Sorry, but petite mal and absence are 2 different types of E. One is a partial seizure and the other belongs to the primary generalized group. http://www.epilepsy.com/epilepsy/types_seizures.html I've had simple and complex partials all my life and just had surgery last January. ~sol