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Need a Little Advice for TLE
Fri, 05/26/2006 - 12:06Hi All,
Since being diagnosed with TLE, 1yr ago after a GMal, I have had what I now know as Complex Partial seizures for the past 2-3 yrs. For a long time I just thought I was having major Déjà vu type experiences. When I had an EEG and MRI they both showed nothing unusual. My confusion is that I have been told that I have Complex Partial Seizures but from reading info I understand that you generally lose consciousness and although I cannot speak nor really understand what is being said during the episode, I can gesture and am completely aware of my surroundings. Depending on the degree, I am sometimes confused afterwards for a bit. Anyone else with similar symptoms. I am on 1000 Keppra a.m. and p.m. and still can have 1-3 per day. Some days none. The neuro has suggested I up the meds by 500mg per day to try and control.
Tks, for any thoughts and best wishes,
Rita
Comments
Re: Re: Re: Need a Little Advice for TLE
Submitted by ritab2002 on Sat, 2006-05-27 - 01:07
Thanks to all of you for the info and your experiences it helps confirm my thoughts and I do realize that what you say, Sheri, regarding the "impaired consciousness". Although I do not lose consciousness completely I cannot speak at all and do not really understand words spoken. The deja vu for me is always at the beginning, as an aura and is always word motivated. I concentrate on trying to understand what is being said in order that I can give details to someone regarding what is taking place. So far, no luck, sometimes this strikes me as quite entertaining. But, a couple of times when I had a seizure I tried to write my thoughts on a black board and when it was over, the words I had written were solely made up. It really freaked me out and still does. It really helps to hear your experiences as I have not spoken to anyone with E regarding symptoms (only neuro). When it first happened I really thought I was losing it Even though I have some great friends and a husband who tries to understand it really helps to converse with like minds.
Rita~
Re: Need a Little Advice for TLE
Submitted by E_Loner on Fri, 2006-05-26 - 22:11
Hi Rita,
Could it be you have been experiencing Petit-Mal also known as Absence Seizures. The reason I ask is because of your awareness. I have been an E for 40 years. I had PM seizures and CP seizures. I did as one of the other ladies advised, I have kept a Journal of all my Ss. The lucky thing for me is I quit experiencing PM seizures years ago thanks to the two brain surgeries. No, the two surgeries did not stop the seizures, but they did decline the severity of the CP seizure. I started taking Felbatol and Neurontin six years ago. It took about a year for all my seizures to start occurring in my sleep. Now, I am classified as a Nocturnal Epileptic.
Good Luck,
E_Loner
Re: Re: Need a Little Advice for TLE
Submitted by co4hfamily on Sat, 2006-05-27 - 00:05
I went to the site you recommended and this was their definition for "Complex partial seizure: An epileptic seizure that involves only part of the brain and impairs consciousness; often preceded by a simple partial seizure (aura, or warning)." When I have complex partials, I do not lose consciousness, but it is definitely impaired. HTH - Sheri