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happiness

Wed, 05/02/2007 - 03:34
its hard to be happy when you have no control over your life. i live as a prisoner in my own home. i have no will power. it takes days to accomplish things that require just minutes. i am a burden to my family. i want to die but i cannot because suicide is shameful - it will bring sadness to my family. i am stuck. i am stale. my pride has disappeared. i have no hobbies. at the moment the joy in my life consists of the nba playoffs. what will i do? i dont know. i hope i die during my next seizure because it will mean i did not commit suicide.

Comments

Re: happiness

Submitted by Eternal howl on Thu, 2007-10-25 - 00:43
Happiness has to come from within. Yes, Epilepsy can be humbling. But it can also make you stronger. Suddenly, you cannot take your health for granted. You might say, 'what health'. Suicide is not an option. You might think life really sucks right now, and it probably does. I don't know what you're dealing with. But it can and does get better. You say you have no hobbies. Time to get one, I think. You need to do something that inspires good chemical reactions - good feelings (and no, I don't mean drugs). No one else can make you happy. You have to make small steps every day to try and improve your outlook. (Speaking as a person who has been suicidal as a teen and in her early 20's). Are you creative? Do you write or draw? Can you try and channel some of this emotion into that? Try and make your destructive feeling productive. You think your life sucks. Read about someone else's life that's much worse. Try to pull yourself out of this depression. It will be a battle, but if you want to, you can fight through it.

Re: happiness

Submitted by scorpio on Thu, 2007-10-25 - 10:48
Some years ago, my fiancée was killed in a car smash and, in the period that followed, I remember vividly the overwhelming sense of inertia that overcame me. The epilepsy/drugs did not help either. One thing I never lost however was my sense of intellectual curiosity and, in retrospect, this turned out to be not only useful of itself, being an extension of what I was doing at the time, but also a very therapeutic distraction and in some ways it kept me going. Nowadays, with the advent of the internet, not only is there so much information easily accessible but you can pursue it without ever leaving the house - if you wish to. As you have obviously discovered, if used intelligently, it can be immensely useful (as a part-time astronomer, I find that 80-90% of the material I am dealing with is ONLY accessible there). Indulge yourself! Another thing, and this is something I believe is often overlooked, try and detach yourself from your epilepsy and not regard yourself as being (an) epileptic. Rather, regard the seizures that cause so much trouble, and the tiredness and suffering that goes with it, as something that happens to you: ‘’it’’ rather than ‘’I/me’’. Not easy when you also have to put up with the side-effects of most of the drugs available which persist 24/7. Still, at least you have a fair idea what causes the tiredness, weight gain, dizziness and all the other horrors – and it is not ‘you’. You will also find it a lot easier ‘explaining’ your condition to other people in terms of the seizures you have, rather than the condition per se, and they will tend to feel easier if you take that approach. That is my experience anyway. Keep your chin up. Chris

Re: Re: happiness

Submitted by ShortCircuit on Thu, 2007-10-25 - 15:06
I have had epilepsy for almost 20 years. In the beginning, I was okay with it. I didn't feel this overbearing sadness. I was on dilantin for 16 years and during that time I got a BFA from NYU, worked at a Hollywood studio on a management level (also acted on stage/in film/tv whenever I could get the work). Suddenly a few years ago, the dilantin stopped working and my doctor put me on topamax which was cruel. I had so many side effects like cognitive/confusion/vision problems/severe insomnia/anxiety. I ended up losing the studio job and would find myself spacing out in job interviews (literally not remember what I was asked 30 seconds before). Needless to say, I had problems getting work. I ended up leaving LA and going to live w/ my mom. I'm off Topamax, on Keppra now. Keppra causes emotional side effects so I don't know how much of it is the circumstances of my life and how much is the medication. I'm 40 now and I think about suicide a lot. I wouldn't because my mother is sick (she has cancer) and relies on me but if she wasn't around, I honestly don't know what I'd do. I feel like my life showed much promise at one point and things have escalated to a very dark place.

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