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drugs questions (mushrooms)

Thu, 05/19/2005 - 22:59
 

Its seems as though no one has started a disscussion on th positive and negative effects of marajuana(If any). As well as the bodys reaction to other drugs(mushrooms). Not to exclude anyone but if you have teperal lobe damage your info would be much apprieciated. In my own personal expereance I can say without a shodow of doubt that marajuana kept me seizure free for 3 years, however I Did have a seizure when I abrubtly quit after 3 years of daily or near daily usage. Now analyzing this info is simple enough, If you stop taking your seizure medication you will have one. Now this is where many conclusions can be drawn, and differences in individual resonses to drugs can be seen. Please feel free to post your info.                                                                                               If anyone has experiance with epilepsy and mushrooms  please post your info good or bad and it will be recieved with gratitude.       

 

 

                PS keep this disscussion as professional as possible

Comments

RE: RE: drugs questions (mushrooms)

Submitted by jinx1331xnij on Fri, 2005-06-03 - 11:32
Dayna , I get terrible migraines. I can take all the excedrin I want and I still feel like my skull is about to crack open. Now the last thing u feel like doing when u have a migraine is smoking,,,but I go outside, smoke one, and ka-bam just like that my migraine is gone!! Don't understand it, husband says its just psychological but I have my doubts . It doesn't make regular headaches go away . Anyway about the mushrooms, they never helped my seizures or made them more frequent....out of all the drugs I have taken ( non-prescribed) , including cocaine, meth, speed, all the uppers u would expect to cause sz's,,,,,,the one that caused a grand mal every time was X ( ecstasy). Stay the hell away from that crap. LSD never gave me problems. Liquor never gave me problems either, but it can mix very badly with your meds.

RE: RE: RE: drugs questions (mushrooms)

Submitted by Gretchen1 on Sat, 2005-06-04 - 21:15
Jinx I found your post SO interesting. I get status sz's, average about one a month. These can go on for over an hour. One on 2/11 was 3.5 hours. That one was exceptionally long though. But of course when a medical crew in the know in an ER is trying to stop a sz that won't stop - I get a bucket of sedatives! It takes me DAYS and sometimes over a week to get over one of those status seizures. I often wonder if I'm recovering more from a "pound of pills" or the sz. I used to complain but have since realized I'm getting THAT much medicine IV and I'm STILL sz'ing? I quit complaining. I realize now why sometimes I have to get an unbelievable amount of IV push meds. But then I wonder how much of my PI for 48 hours at least is the seizure and how much getting over being so sedated? I'm not blaming, wondering.I dodn't know why for sure but after a status seizure? At some recovering point I get very LOUD, and feel PANIC and feel this insatiable need to get outside even if I can't walk yet. At some point in all of this? I don't just need, I HAVE to have a cigarette and not just one. After I chain smoke about 3? My headache starts residing. I quit shouting, my nasty snotty little pouty, crying, paranoid mood turns off. I had never asked anyone why this correlation of smoking and turning down the flame on my headache, obnoxious behavior -- IOW seem to pop me out of the worst of the PI exists, but I've been sure it does. If someone won't take me out? I sneak out to smoke? I suffer and it's needless. It always irritates me when I'm the one with the most experience in the room with my status sz's and I'm denide what helps me the most. Which goes ALLLLL the way back to the purple heart thread start - wanna Advil? NO I WANT 3 CIGARETTES, not their moralities! ARGH! But that's not socially acceptable (keep in mind all ER's have direct access to the outside). Finally I lived in a town where their ER must have been conceived in heaven. I swear it. I was unusually active that summer. They could have installed a revolving door I was in and out of there so much with status and blood sugar problems from pancreatitus. What did they do? Always give me the same nurse's, if possible, who knew me. Eventually these nurses knew without me becoming such a butt, I needed a cigarette, and they'd roll me outside in a w/c, without me asking and with such a relief, my headache would start dissolving, I'd seem to pop out of the severe PI pouts. One nurse, Betty, said smoking is a vasodilator. It stands to reason she said that smoking allows blood to enter my brain and brain lining. The PI headache she said in some, then showed me literature to prove it so it wasn't just her opinion, blood can get in the head, but the jugular and other vessels constrict and won't let it leave the head, engorgement occurs and it's painful i.e. headache and perhaps effecting mood, neither of us knew. For me though the headache and pouts dissolve quite a bit, when I smoke and open those vessels. Now, please keep in mind I am not advocating smoking after a sz, I am not saying that Betty or I have found the reason for PI, PI headaches nor the cure. These are our observations only on me, and it could be too I've convinced myself smoking helps, therefore it does. I believe the mind/body connection is quite strong, maybe that is what is happening, I don't know. Gretchen

RE: RE: RE: RE: drugs questions (mushrooms)

Submitted by Gretchen1 on Sat, 2005-06-04 - 21:35
Jeremy -There are way too many times in my life where I am doing or saying something that I'm not aware is offensive. Therefore I continue doing it, or continue being offensive without knowing it. I'm blessed when someone cares enough, or frankly is fed up with what ever I'm doing enough, to tell me I'm being offensive, and I didn't know it. I always experience three things when someone tells me I am being offensive: (1) embarrassment and hurt (initially)(2) relief they cared enough about me, to risk telling me what I'm doing is offensive. Otherwise I'd continue to offend. IOW taking that risk to inform me, is friendship, even if at the time it hurts and feels just critical. OR someone who is assertive enough to tell me so I'll quit being so offensive(3) questioning if they were right and as time goes on and I'll repeatedly have to stop myself from repeating the offending action I'll realize, that person was right. That realization for me produces several emotions. I am going to make an observation about you and I am trying very hard to state it as constructive criticism. IOW without malice, anger. I am assuming you do not realize this is offensive to me and I happen to know some others too because you have hurt my feelings several times and I have turned to some others and told them and they have stated they have noticed you do this too and it is irritating to them also. Jeremy I don't read every thread, every post. However the posts of yours I have read? You don't support. You don't discuss your epilepsy. You don't ask for support or information. Three times I posted with a problem and 3 times you basically told me the exact same things, your inaccurate observations about me which were that I was negative, then preached to me. After the third time I posted to you to quit it. I had read your formula for living 3 times, you were hurting my feelings. My criticism is you are not this forum's emotional or moral cop. Stop acting like one. If you have epilepsy or love someone who has it? Start addressing the thread's subjects and stop moralizing. Ask for support if you need it but don't yank the rug out from under vulnerable others. I find your moralizing very arrogant, inappropriate, and I wonder how YOU are doing. What are YOUR problems? Tell us how YOU deal with things and quit only posting how you think others should deal with THEIR problems according to the Laws of Jeremy. I hope I made a very clear point because you have hurt me, I happen to know you have others and I'm going to assume you don't know it. I could scroll on by your post below me but I feel it would be kinder to you for you to know this is very irritating to me as I have heard it is to others. Just bring YOU to this forum. I want to know about YOU, I have my own value system. Okay?Gretchen

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