Non-participating Chat Members

Mari? I hope you'll reconsider your decision. I said I had a bad history with a specific person. You and I know - it's not you. I also said there were 13 people that weren't in the general discussion. I didn't name names. I frankly didn't even look at whose names were there. That was not my point. The number of nonparticipating bothered me. Like Barbie said she had an emergency? I didn't know her name was there. She might have been there when I wasn't. I can't stay on chat very long. The scrolling makes me seize. One of the reasons I noticed such a large number is because that large of a number does make the scrolling faster and for me? I know I'm limited in my time there, and limit it myself. The person I have a bad history with avoids me, that works in a way for me. I made the suggestion people use IM instead of PM but note I got some excellent feedback why there can be many more names than those particpating in general chat and I was educated. I really had no idea what was going on except for one person stating, they're all in private chat. It did bother me beforeIgot educated on this thread that alot of people were listening in, not participating. There are so many newbies that I don't know, we were discussing a sensitive topic, I became bothered by people just listening to us, not participating. To me? I had a natural reaction. It wasn't the first night either. This had happened repeatedly over several weeks and because of that? I was already sensitive to the issue. Don't deprive yourself of chat because of me, one person. And again? I really got educated here what really is happening and I needed that. And I do hate the word "lurker". To me it sounds nearly synonymous with "voyeur". In an effort to let people know precisely how I felt? I used the terminology I felt all would know and "Lurker" is a well known internet term. I'm very sorry if you're angry or hurt and I do hope you'll get over it. If you want to go to chat and PM only? As I said, what business really is it of mine I've realized after thinking about it more from the feedback I got, which I needed, asked for. It was up to me to post a thread about a topic I clearly didn't know enough about,that was botheringme. It will be up to you though if you deprive yourself of something you enjoyed in your own way out of anger towards me. I hope you don't do that. I HAVE done that to myself and what I netted was nothing. SPIZ - you wrote the most informative post. Thank you for taking the time to write all you did. Also, if I haven't saidre, thank you for all the research you do for all of us. I'm chronically surprised you find things I seach and search for and never find, but you do. Of course my ASSUMPTION, seems I'm doing great on assumptions, is that you go right to it. I should know better, that it takes a lot of digging. I wanted to tell you this. Maybe should in an email to be sure you see it. I am witched by the "twitchies". I've even had surgery for them which partially worked but now they're back as bad as ever and to be honest it's debilitated my life enough my epileptologist and local neuro have become concerned and wondered is it really epilepsy or at least rule out any other thing it might be. In the last month it's gone from all body twitching to that and leg shaking, severe leg weakness and lethargy not at all times but every day. That is called = not living well. Because of your research, coupled with my very poor explanation of what was going on, my doctors decided that first they should rule out any other problems that could be causing this, which they did. Nothing else appeared so two days ago I was at the hospital all day having more testing on my brain and a TON of epilepsy unknowns became known to them, and me, because primarily I brought in what you posted which was a much better explanation of what I'm experiencing than what I was verbally describing. The results of the 3 kinds of Evoked Potentials, along with some other tests has FINALLY located my focus; they found I have constant epilepsy activity in my right TLE plus that is where my profound photosensitivity starts, which wasn't definite from VEEG's and many other things were confirmed or found. In part too because it's all gotten so much worse from the scar I have it was I think easier to test or more apparent on testing but they wouldn't have done all these tests with my whiney watered down complaints. I won't go through all they found here. All of this started from the research you did for me, without me asking, and I showed to them and at last, they understood what I was saying. More importantly all this testing and results just might lead to a surgery that can remove the scar tissue probably causing all of this and the epileptogenic cells beneath. That's a ways in the future but to have hope, is to have a lot. Again, thank you. Gretchen

Mari, I wish you wouldnt live the Chat you where one of the first people that welcomed me when I was new and scared witless ( OK I was witless before that) I know that you are a valueble member of this site and you have so much to offer and I enjoy Chatting with you when the chance does arise (alltough it dosnt happen as often as I would like. So I hope that you will stay apart of the Chat because we LOVE you to pieces. Pam

Mari, please come back to the chat room. I really look forward to chatting with you there. Please? Mom to Lauren age 9,