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nocturnal epilepsey only need advice anyone else have this ?
Thu, 01/26/2006 - 14:26my daughter has seizurs at night when she sleeps and if she falls asleep during the day . this happens every night about one hour after she goes to sleep and throughout the night averaging 12 to 15 per night she has been on almost all medication but nothing seems to work she does not have any in the day.
does anyone else have or know anyone else with this type of epilepsey?
Comments
Re: Re: nocturnal epilepsey only need advice anyone els
Submitted by benji on Fri, 2006-01-27 - 04:28
thanks for reply
i agree with you about stress but the earlier she goes to bed the more seizures she has. she has been seeing a neurologist and been told its frontal lobe epilepsey but we do not know why she has them only when asleep
thanks for your interest.
Re: Re: Re: nocturnal epilepsey only need advice anyone
Submitted by coolcanadian on Sat, 2006-01-28 - 21:25
Hi again- my nocturnal sz also begin at the frontal lobe. I think all nocturnals do. From the main Epilepsy.com page, look under 'Understanding seizures 101'. There's some more good stuff there on t/c sz that may give you some inight. If you'll excuse me for butting in, I'm wondering about her neuro's willingness to dig in and find a new approach to controlling her sz. Wishing the best for you both- cc
Re: nocturnal epilepsey only need advice anyone else ha
Submitted by coolcanadian on Thu, 2006-01-26 - 23:50
Hi benji, welcome to our little oasis. All of my sz are nocturnal t/c's. Ironically enough, getting enough rest and keeping stress levels low are almost as important as taking my lamictal to stay under control. Is you daughter seeing a general MD, or a neurologist? Maybe a specialist or another doc can better manage your daughter's E. Again, welcome- let us know how things develop. -cc