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nocturnal epilepsey only need advice anyone else have this ?
Thu, 01/26/2006 - 14:26my daughter has seizurs at night when she sleeps and if she falls asleep during the day . this happens every night about one hour after she goes to sleep and throughout the night averaging 12 to 15 per night she has been on almost all medication but nothing seems to work she does not have any in the day.
does anyone else have or know anyone else with this type of epilepsey?
Comments
Re: Re: nocturnal epilepsey only need advice anyone els
Submitted by elbertdee on Tue, 2006-01-31 - 12:23
I do have epilepsy, but mine is of the type where I have partils followed by a Gand mal, usually.
However I stay with a man 3 nights a week that only has seizures at night and yes the first one is usually about an hour after he goes to sleep. HE has usually about 3 a night sometimes more sometimes less.
He is on Lamictal, Depakote and a couple others.
A few years ago he was much worse and they implanted the device in his chest. Since then he has been , well as I described above.
I also used to work for a person who only had seizures when he was asleep. Both of these people hace tonic colinic seizures. One did have a tumor the other they can't find out what causes them. He just has them
Not much advice, but wanted to let you know your not alone.
Re: Re: Re: nocturnal epilepsey only need advice anyone
Submitted by benji on Tue, 2006-01-31 - 13:42
many thanks for sharing your experiences with me because my sesdaughter has so many she has to sleep alone at night i have not heard of anyone having so many as her it really disrups our lives we have to put padding against the wall because her arm knocks on it and a mattress beside the bed because she falls out i have many sleepless nights because i can hear her sometimes i have to put earplugs in
Re: nocturnal epilepsey only need advice anyone else ha
Submitted by benji on Thu, 2006-01-26 - 17:35
Thanks u both for your speedy replys :) my daughter has been on tegretol for 15 years now she also had lamictal,topriate and keppra.and at presant is on tegretol and clonazepam but no change so far.have you ever been told why you only have night seizures? and do you get night sweats? good to know we are not alone with this problem and im glad i found this forum thanks