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nocturnal epilepsey only need advice anyone else have this ?
Thu, 01/26/2006 - 14:26my daughter has seizurs at night when she sleeps and if she falls asleep during the day . this happens every night about one hour after she goes to sleep and throughout the night averaging 12 to 15 per night she has been on almost all medication but nothing seems to work she does not have any in the day.
does anyone else have or know anyone else with this type of epilepsey?
Comments
Re: Re: Re: i totaly agree with you
Submitted by CG on Tue, 2006-02-14 - 17:35
Hi,
I have seizures upon awakening. My husband says I sometimes have nocturnal ones. I've been on Primidone (Mysoline) for 44 years. Recently I have been spraying my pillow with Jasmine. No seizures, I have slept soundly with no problems. Hope this helps.
CG
Re: nocturnal epilepsey only need advice anyone else ha
Submitted by ac420ec on Thu, 2006-04-20 - 07:55
Am digging out this old thread after doing a search trying to find more people dealing with nocturnal frontal lobe epilepsy. My 8 y.o. daughter is newly diagnosed. She is having brief seizures (between 10 secs and 2 mins.) about every 20 mins. all night long. Are your childrens seizures similar? The epi. gave us Diastat to give if more than 3 mins. or more than 2 in 10 mins. I am reluctant to give it as it seems according to those instructions I would have to do it every night. Her seizures are brief and seem so mild (leg kicking. arm movements, nose wiping and lip smacking all in 30 secs. or less) I have a hard time believing they are even seizures. During her veeg only the longest episode (72 secs.) showed an eeg change, but based on the fact that they are all stereotyped they believe they are all seizures, just difficult to pick up on eeg due to their location. I would really like to talk with someone who has a similar diagnosis. Thanks.
Re: Re: i totaly agree with you
Submitted by happycat2 on Fri, 2006-02-10 - 17:12
Hi benji. In the past I have had nocturnal seizures. I wanted to sleep for much of the day which is hard to do with children as you know very well. So I ended up being sleep deprived a lot of the time. I took topamax, now tegretol which works great for me. I have good control, sleep far better. I realise from your post you have lost faith, and are trying to find it again, you want to help your child. I know how it goes, that right now you have enough to handle from the sounds of your post. I found that by reading up on what can trigger your seizures really helps when discussing it. Also, keeping a diary of them if you can't find anyone who is willing to video your seizures for you helps when seeing your doctor or neuro. http://www.epilepsy.com/articles/ar_1109600956.html http://www.epilepsy.com/epilepsy/epilepsy_frontallobe.html This links are from this site, and give good information. Try researching on Google also as nocturnal frontal lobe epilepsy can run in families. Hang in there, stay positive and upbeat. Cat.