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nocturnal epilepsey only need advice anyone else have this ?
Thu, 01/26/2006 - 14:26Comments
Re: nocturnal epilepsey only need advice anyone else have this?
Submitted by DBL on Mon, 2008-10-06 - 18:56
Yes, I have lousy short term memory.... my neorologist says this is because every night my synapses or brain waves or whatever get scrambled during the seizures and it effects mostly your short term memory.
I have seizures every night and have have had them that frequently for a long time so it has become second nature to me.
It is not so severe that it is incapatitang, I have had a sucessful professional career, it is just anoying. Most people who I interact act with, other than perhaps my kids and wife, don't seem to notice it.
I seem to function well enough at work and in social circles. It just isn't as sharp as it would be if I wasn't having seizures regularly .... all of which are nocturnal.
regards,
DBL
Yes, I have lousy short term memory.... my neorologist says this is because every night my synapses or brain waves or whatever get scrambled during the seizures and it effects mostly your short term memory.
I have seizures every night and have have had them that frequently for a long time so it has become second nature to me.
It is not so severe that it is incapatitang, I have had a sucessful professional career, it is just anoying. Most people who I interact act with, other than perhaps my kids and wife, don't seem to notice it.
I seem to function well enough at work and in social circles. It just isn't as sharp as it would be if I wasn't having seizures regularly .... all of which are nocturnal.
regards,
DBL
Re: nocturnal epilepsey only need advice anyone else have this?
Submitted by terrielouisep on Sun, 2009-09-20 - 16:00
i really feel for you on this level, i know this sounds harsh but reading how you have these every day makes me feel fortuanate for my once a month,
well done for not letting it hold you down and stop you being so sucessfull in life
i really feel for you on this level, i know this sounds harsh but reading how you have these every day makes me feel fortuanate for my once a month,
well done for not letting it hold you down and stop you being so sucessfull in life
Re: nocturnal epilepsey only need advice anyone else have this?
Submitted by laus on Mon, 2008-10-06 - 04:39
Hello
Iam 21yrs old and was first diagnosed with epilepsy when i was 19. At first my seizures were just random but for the last year they have been nocturnal mine are not very often only had 10 in the last 12 months where yours are due to REM sleep mine are from sleep deprivation and i also do not know that i have had a fit i just wake up and get the fright of my life as my mum is lying in my bed next to me other then some times i do get this funny feeling that i sometimes can have a fit after or nothing happens. Iam also taking tegretol and has been the best one i have used. well just thourght i would write and say as iam new to this and i have never met any one really kinda the same and i just have one question do you have trouble with your memory of like the day before and stuff after the seizures at night as i find that when i have one i have trouble remembering the day things like converstions etc
Hello
Iam 21yrs old and was first diagnosed with epilepsy when i was 19. At first my seizures were just random but for the last year they have been nocturnal mine are not very often only had 10 in the last 12 months where yours are due to REM sleep mine are from sleep deprivation and i also do not know that i have had a fit i just wake up and get the fright of my life as my mum is lying in my bed next to me other then some times i do get this funny feeling that i sometimes can have a fit after or nothing happens. Iam also taking tegretol and has been the best one i have used. well just thourght i would write and say as iam new to this and i have never met any one really kinda the same and i just have one question do you have trouble with your memory of like the day before and stuff after the seizures at night as i find that when i have one i have trouble remembering the day things like converstions etc