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nocturnal epilepsey only need advice anyone else have this ?
Thu, 01/26/2006 - 14:26my daughter has seizurs at night when she sleeps and if she falls asleep during the day . this happens every night about one hour after she goes to sleep and throughout the night averaging 12 to 15 per night she has been on almost all medication but nothing seems to work she does not have any in the day.
does anyone else have or know anyone else with this type of epilepsey?
Comments
Re: Re: Re: Re: Re: nocturnal epilepsey only need advice
Submitted by Jake Reed on Thu, 2006-02-02 - 06:47
He actually started as a baby with feberal seizures. He had one when he was a year old with a fever of 101. He had one a year later with a fever again. He did not have one again until he was 5. It started at night time, and as no control was found, would go throughout the day. The only time he now has daytime seizures is when he falls asleep or has a sickness. When he gets sick, it is a very hard. He will have seizures every hour, sometimes more. It becomes dangerous because he will have a seizure and then try to throw up when he is not awake. This is my biggest fear.
I would like to see a sleep specialist to see what changes in the brain as my child goes through the sleep cycles. There are so few people with nocturnal seizures that I fear the pharmaceutical industry does not want to tackle it (no money in it). There has to be some better answers somewhere.
Jake Reed
Re: Re: Re: Re: Re: Re: nocturnal epilepsey only need ad
Submitted by benji on Fri, 2006-02-03 - 05:02
your story is similar to mine does your son have any learning difficulties or is their anyone else in your family with epilepsey my daughter is the only one in our family .iwish you every succes in seeing a sleep specilist. has your son had video telemtry and if so was it explained to you what was happening to the brain during sleep
Re: Re: Re: Re: nocturnal epilepsey only need advice an
Submitted by benji on Wed, 2006-02-01 - 17:12
yes many years ago we tried rectal diazpan without success does your son ever have sz during the day or only at night my daughter had them when she was very young but from the age three she started to have nighttime sz only we dont know why