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Need someone to talk to..
Thu, 05/05/2005 - 15:02Comments
RE: RE: Need someone to talk to..
Submitted by mexican_fire on Thu, 2005-05-05 - 15:02
I also forgot to mention that I also take 1250 mgs of Depakote to control the Absences and Myoclonic activity.
I have TLE as well, so they threw me on Neurontin and I have been taking that with no problem for 2.5 years. 3600 mgs of it, the max allowed by the FDA.
My family lives with my mom, we have for 10 years, and I think I scare them all pretty good. I think my 3 kids are the best with it than any of the adults around. They are very caring little girls. When I wake up from a TC, every one of them are standing around my head. One will hold my hand, the other rubs my head and face, and the other one will just be talking to me. Kids are so resiliant, nothing bothers them. I would think they would he having nightmares after a seizure, but, not them, and if they are, they aren't telling me about it.
Nancy, RN
Any of the Valproic Acid drugs are the top drugs for treating JME, JAE, ME, PME, or any Myoclonic epilepsy.
I also forgot to mention that I also take 1250 mgs of Depakote to control the Absences and Myoclonic activity.
I have TLE as well, so they threw me on Neurontin and I have been taking that with no problem for 2.5 years. 3600 mgs of it, the max allowed by the FDA.
My family lives with my mom, we have for 10 years, and I think I scare them all pretty good. I think my 3 kids are the best with it than any of the adults around. They are very caring little girls. When I wake up from a TC, every one of them are standing around my head. One will hold my hand, the other rubs my head and face, and the other one will just be talking to me. Kids are so resiliant, nothing bothers them. I would think they would he having nightmares after a seizure, but, not them, and if they are, they aren't telling me about it.
Nancy, RN
Any of the Valproic Acid drugs are the top drugs for treating JME, JAE, ME, PME, or any Myoclonic epilepsy.
RE: Need someone to talk to..
Submitted by Meg2681 on Fri, 2005-05-13 - 13:59
Hi, My name is Megan and I have had seizures all my life. I am 16 and I found out I had seizures when I was 2. I will be happy to talk ot you about them. I know what you mean when you can't talk to just anyone about them I was that way for a long time, Then I had one at school. With my school having only about 250 kids there everyone nows everyone nd everyone wanted to know what happened. I talked. Everyone was cool wiht it and I found out that it was not that hard to talk about. Your case may be different but that is what happened to me. If you would like to talk my E-mail is, mphillips@student.colcordschools.com I do what I can tp help.
Hi, My name is Megan and I have had seizures all my life. I am 16 and I found out I had seizures when I was 2. I will be happy to talk ot you about them. I know what you mean when you can't talk to just anyone about them I was that way for a long time, Then I had one at school. With my school having only about 250 kids there everyone nows everyone nd everyone wanted to know what happened. I talked. Everyone was cool wiht it and I found out that it was not that hard to talk about. Your case may be different but that is what happened to me. If you would like to talk my E-mail is, mphillips@student.colcordschools.com I do what I can tp help.
RE: Need someone to talk to..
Submitted by mexican_fire on Thu, 2005-05-05 - 14:55
Nicole what you are feeling is completely normal.
You can do alot with your life, though. I managed. I have JME and mine is bad, I have had it since I was 15. It was not caught until I was 30.
90% of my seizures are Grand Mals, then Myoclonics, then Absences.
I am now 32, married with 2 of my own kids and a step-daughter that I have custody of.
My husband is 35, name Jasyn (stays and home, so I can work), Allison, 13 (his), Gretchen, 10, Brittani, 8, and a 3 yr old Border Collie named Jypsie.
I studied both an undergraduate university and a hospital to get my degree in Nursing and then later on in Neuroscience. I have also worked in the ER for years as an EMT.
I spent 10 years struggling to reach my goal. I also got Bs, as well.
Now, I work in an EMU taking care of people with epilepsy/seizures.
I am board-certified, trained in special epileptic CPR, have special training in taking care of people with epilepsy, I have been trained to initiate/start IVs, load them, start them and operate the monitor. I can also read EEGs, give drugs via IV, give drugs orally, give drugs parenternally, and the usual paperwork.
I work in the same unit I was in for my V-EEG last March, and my epi is 2 floors down in the comprehensive epilepsy clinic.
I can't drive, though. I lost my driving priviledges 2.5 years ago due to a seizure-related car accident.
I have moderate-severe Grand Mal seizures. I have been injured having those. I have also been injuerd with my Myoclonic seizures, because they throw me to the ground from the force of the contractions in my upper legs.
You can e-mail me anytime @jolie_blon@yahoo.com Remember, I am an RN, not a LPN.
nancy
Nicole what you are feeling is completely normal.
You can do alot with your life, though. I managed. I have JME and mine is bad, I have had it since I was 15. It was not caught until I was 30.
90% of my seizures are Grand Mals, then Myoclonics, then Absences.
I am now 32, married with 2 of my own kids and a step-daughter that I have custody of.
My husband is 35, name Jasyn (stays and home, so I can work), Allison, 13 (his), Gretchen, 10, Brittani, 8, and a 3 yr old Border Collie named Jypsie.
I studied both an undergraduate university and a hospital to get my degree in Nursing and then later on in Neuroscience. I have also worked in the ER for years as an EMT.
I spent 10 years struggling to reach my goal. I also got Bs, as well.
Now, I work in an EMU taking care of people with epilepsy/seizures.
I am board-certified, trained in special epileptic CPR, have special training in taking care of people with epilepsy, I have been trained to initiate/start IVs, load them, start them and operate the monitor. I can also read EEGs, give drugs via IV, give drugs orally, give drugs parenternally, and the usual paperwork.
I work in the same unit I was in for my V-EEG last March, and my epi is 2 floors down in the comprehensive epilepsy clinic.
I can't drive, though. I lost my driving priviledges 2.5 years ago due to a seizure-related car accident.
I have moderate-severe Grand Mal seizures. I have been injured having those. I have also been injuerd with my Myoclonic seizures, because they throw me to the ground from the force of the contractions in my upper legs.
You can e-mail me anytime @jolie_blon@yahoo.com Remember, I am an RN, not a LPN.
nancy