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how do i get on with my life?

Wed, 05/25/2005 - 18:47
I'm 22 years old and I had my first seizure at the age of 10.  I had about 4 seizures from the time I was 10 until I was 12.  It took me forever it seems like to get over the fear of seizures.  For a while, I would go out.  All I wanted to do was sit at home.  I knew I had to fight it and get on with my life.  It took a long time for me to become myself again and about the time I was finally back to normal I had another seizure.  I couldn't believe.  I was seizure free for 10 years!  Now I'm back to where I was before.  I'm miserable.  All I ever think about is "wonder if I'll have another seizure."  Also, any uncontrollable movement on my body freaks me out wheter it's my eye twitching or whatever else.  My boyfriend is a very outgoing person but I'm not because of my seizures.  I don't know how to get my life back.  All I do is worry about it.  It's driving my crazy and making so depressed!  I know I haven't had alot of seizures in my life but they have competely turned my life around.  Please give me some advice on how to get my life back to normal.  Thanks

Comments

RE: RE: RE: how do i get on with my life?

Submitted by FILLY150 on Mon, 2005-06-27 - 08:11
How do you get on with your life?  You just do.  I have been seizure free for about 15 mos, and the idea of having another seizure scares me.  However, there is no evidence that sitting home will prevent a seizure.  In fact, I think it's better to be out somewhere when you seize then to be home alone.  At least there will be people to take care of you.  Make sure to keep medical ID on you at all times, and make sure your friends and co-workers know proper seizure procedure.  I'm sure your friends will be more than happy to help you feel more comfortable.  The more you go out, the more confidence you will build. 

RE: RE: how do i get on with my life?

Submitted by Beth21613 on Thu, 2005-06-23 - 20:10

Hello, I am a 20- year old senior at a local university and I experienced my first grand mal seizure in my high school parking lot, a week before graduation. After that, I had over 80 seizures for the rest of that year. Well, that whole year I fought with doctors about what types of seizures I was having and telling them that I had no memories of even having them. Those days were the hardest days of my life! However, I think that the hardest day was when I was sitting John Hopkins waiting to be discharged and my uncle fell out in a grand mal seizure it almost killed him. Luckily, he is still with us however both of us  have been left with memory loss and brief attacks of dreamy like states. I take 3000 mg of Keppra a day and I haven't had a seizure in 16 months. Life is better and I am getting married next year. My advice for people is never be afraid of who you are and do not epilepsy tear away at your identity. Yes, it is a part of you however it does not have to be what defines you! I wish you all the best! I'll be praying for you~

Hello, I am a 20- year old senior at a local university and I experienced my first grand mal seizure in my high school parking lot, a week before graduation. After that, I had over 80 seizures for the rest of that year. Well, that whole year I fought with doctors about what types of seizures I was having and telling them that I had no memories of even having them. Those days were the hardest days of my life! However, I think that the hardest day was when I was sitting John Hopkins waiting to be discharged and my uncle fell out in a grand mal seizure it almost killed him. Luckily, he is still with us however both of us  have been left with memory loss and brief attacks of dreamy like states. I take 3000 mg of Keppra a day and I haven't had a seizure in 16 months. Life is better and I am getting married next year. My advice for people is never be afraid of who you are and do not epilepsy tear away at your identity. Yes, it is a part of you however it does not have to be what defines you! I wish you all the best! I'll be praying for you~

RE: RE: RE: how do i get on with my life?

Submitted by Belinda on Fri, 2005-06-24 - 12:46
Hi Beth,I definitely remember what it was life to have seizures in H.school.I ended up using the elevator for the teachers.I've been to 4 epilepsy clinics Montreal,Emory,MCG(Medical collegeGeorgia) and NIH in Bethesda Maryland spent 6 mths of my senior in H.school there.I know my seizures never be controlled there refractory.If I have a seizure thats life.It could be worse.Belinda

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