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how do i get on with my life?

Wed, 05/25/2005 - 18:47
I'm 22 years old and I had my first seizure at the age of 10.  I had about 4 seizures from the time I was 10 until I was 12.  It took me forever it seems like to get over the fear of seizures.  For a while, I would go out.  All I wanted to do was sit at home.  I knew I had to fight it and get on with my life.  It took a long time for me to become myself again and about the time I was finally back to normal I had another seizure.  I couldn't believe.  I was seizure free for 10 years!  Now I'm back to where I was before.  I'm miserable.  All I ever think about is "wonder if I'll have another seizure."  Also, any uncontrollable movement on my body freaks me out wheter it's my eye twitching or whatever else.  My boyfriend is a very outgoing person but I'm not because of my seizures.  I don't know how to get my life back.  All I do is worry about it.  It's driving my crazy and making so depressed!  I know I haven't had alot of seizures in my life but they have competely turned my life around.  Please give me some advice on how to get my life back to normal.  Thanks

Comments

RE: how do i get on with my life?

Submitted by Adam on Fri, 2005-08-05 - 15:43

I started having seizures at 11 (60 now.) Then you were really tainted.  So I was.  No one new how to handle me properly,

and I had your problem...feared life more than death.  You must be brave.  Depending on how bad your seizures are--get involved

in activities. Forget the embarrassment and care about what you think most; not others. Do things that are relatively safe...for you.

Live your life...it is yours so find ways to enjoy it.  Know who your real friends are.

ST

I started having seizures at 11 (60 now.) Then you were really tainted.  So I was.  No one new how to handle me properly,

and I had your problem...feared life more than death.  You must be brave.  Depending on how bad your seizures are--get involved

in activities. Forget the embarrassment and care about what you think most; not others. Do things that are relatively safe...for you.

Live your life...it is yours so find ways to enjoy it.  Know who your real friends are.

ST

RE: how do i get on with my life?

Submitted by WashkuhnR on Sun, 2005-08-07 - 16:41
I know how everyone feels, I had a drivers licence and lost it. And several other things went that way. What helped me is that toward other people I act like a very common person, but inside me I carry a chip on my shoulder. I think about how lucky I am to have better parents then most people. I think about having a better job then most people, and I think about many things I have that others don't,like I own a good amount of land, I've traveled more then 90% of people and I've always been the best person in math in my class. Then to myself (even though I never act this way to others) I think you can take me as I am or leave me. Since I've done that maybe 1 in 100 people don't except me. You can stop people on the street at random, and 90% know and like me.

Re: Re: how do i get on with my life?

Submitted by jose on Wed, 2005-12-07 - 10:47
mm this sounds familiar, i was diagnosed when i was 9 thinking i would grow out of it. But im now 24 and its worse than ever before, i have a lot of empathy for you, i don't want to lecture you but just sit back and think about what could help you get over your worries a little, ive learn't to open up to poeple i know more, just try and relax more its sounds simple but stress is the thing that will give you black outs or siezures, just start to understand yourself more, i had a fit nearly everyweek just because i wasnt willing to admit to myself that i have something my friends don't, and i can't go out until 4 in the morning then go to wrk the the next day. It sounds boring but routine is a good start. it must be really scary starting to have fits now.i have only just registared so im probably not writing well but trust me you will be fine, don't let it eat away at you, but keep on writing be nice to hear how your doing. take care

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