Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

right temporal lobectomy

Tue, 02/01/2005 - 09:38
Topic: Surgery and Devices
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John

Comments

RE: right temporal lobectomy

Submitted by meghan555 on Sun, 2005-01-09 - 11:06

Hi,

 My four year old just had that surgery about 1 week ago, after she spent 25 days in the hospital, having about 200 seizures a day.  What a difference it has made.  She has not had one seizure since her surgery, but she will be on the seizure medication for life they said.  She is doing really good, and we are so thankful to her Dr. and surgeons in Sacromento Ca. She was on Life support for 3 days because of her seizures. 

Meghan555

 

Hi,

 My four year old just had that surgery about 1 week ago, after she spent 25 days in the hospital, having about 200 seizures a day.  What a difference it has made.  She has not had one seizure since her surgery, but she will be on the seizure medication for life they said.  She is doing really good, and we are so thankful to her Dr. and surgeons in Sacromento Ca. She was on Life support for 3 days because of her seizures. 

Meghan555

 

RE: RE: right temporal lobectomy

Submitted by Adriane on Sat, 2005-01-29 - 20:58
Hi everyone,this is my 1st post on this site.I am a35 yr old mother and wife.I have had grand-ma,generalized and tonic-clonic seizures since high-school but they became extremely severe after childbirth.This week alone I have had 4 seizures.With each seizure I lose a little more of my memory.You name the meds and I have been on them.We live in S.florida and I scheduled to meet with a neurologist in Tampa for the surgery(left temporal lobe) The thought of "brain surgery"scares the hell out of me,but my quality of life is NIL and it seems that people have had excellent results.Anyone out there w/left temporal lobectomies?I could certainly use some positive feedback!!!                                                                     Thank-you & stay healthy,  Adriane

Re: RE: RE: right temporal lobectomy

Submitted by robin4902 on Sat, 2010-02-13 - 20:22

Adriane-

Send me an email.  I have a VERY similar story (young kids...seizures worsened/began after childbirth at 35 years old).  I had a right temporal lobectomy at Tampa General Hospital on December 4, 2008 (Dr Vale and Dr Benbadis...I was in GREAT hands..no question about that).  I haven't had a seizure since and feel better than ever.  It was a life-changing event, for me and my family.  Robin     robin_wright@hotmail.com

Adriane-

Send me an email.  I have a VERY similar story (young kids...seizures worsened/began after childbirth at 35 years old).  I had a right temporal lobectomy at Tampa General Hospital on December 4, 2008 (Dr Vale and Dr Benbadis...I was in GREAT hands..no question about that).  I haven't had a seizure since and feel better than ever.  It was a life-changing event, for me and my family.  Robin     robin_wright@hotmail.com

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe