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Possible absence seizures in 12-year-old

Sat, 04/22/2017 - 19:30
Hello. I'm very concerned and found this site. I have a 12-year old son. Over the past maybe 3-4 months, we've noticed a few occasions (maybe 4-5, although I'm not sure), in which he would suddenly zone completely out for maybe 5-10 seconds. He could be in the middle of telling a story, then suddenly stop and look zoned out, and then he'd come out of it and often say, "wait, what?" It's possible it could have happened more frequently, but we haven't personally observed it. At first we thought he was just distracted or overtired. He has struggled with insomnia for years. He's is an over-achiever, super concerned with academics, and tends to be a worrier. No extreme anxiety, but he tends to have stuff on his mind. The last couple of times, however, we started wondering. And this morning I found out that one of his teachers had observed such an incident. So of course I start researching, and I came across "childhood absence epilepsy" or "childhood absence seizures." Panic. Then I come across "juvenile absence epilepsy" and "juvenile myoclonic epilepsy," which appear to be lifelong and would mean physical seizures. He already has a neurologist, who we met years ago to help with his pretty nasty insomnia. I'll call her first thing Monday morning. But holy heck I am SCARED! I'm worried about him emotionally. He's already an anxious kid. I'm worried about him physically (skiing, swimming, someday driving). I'm worried about his long-term life. I know I'm putting the cart before the horse, but damn. These things sure do look like absence seizures. A bit of extra info. As a young toddler and sometimes as a younger child, he'd occasionally get a tic. For example, he'd go through a period when he'd blink a lot. Noticeably so. Anyway, I'm just looking for advice, thoughts, anything. Thank you!

Comments

if seizures are not properly

Submitted by Amy Jo on Sat, 2017-04-22 - 22:44
if seizures are not properly controlled, driving will be in question- you can't know that now, do not get too far ahead of now.until you know more, swimming alone is not recommended but kids   don't usually swim alone. needs someone who knows the risk to pay attention and be able to respond.frankly the bigger danger to kids (IMO) is parents being over protective and limiting kids.

even if he has epilepsy, your

Submitted by Amy Jo on Sat, 2017-04-22 - 22:44
even if he has epilepsy, your worries are way ahead of yourself. most people with epilepsy lead fairly normal lives, you probably know people with epilepsy who have never shared that they have it because it just doesn't take a huge part of their daily mindshare.not every neurologist is suited for diagnosing or treating epilepsy. so if things get hard, look for a pediatric epileptologist. there are both generalized and partial seizures that can look like absence (which is generalized). typical absence is usually easy to see on EEG, atypical absence can be weirder, partials can be hard or missed on EEG. disrupted sleep is really common with epilepsy, has he had a sleep study because apnea can exacerbate epilepsy? EEGs don't rule out epilepsy, they just rule it in when taking history and epileptiform abnormalities into account. if he has a generalized form of epilepsy then mri is not commonly done.

there's no epilepsy in our

Submitted by Amy Jo on Sat, 2017-04-22 - 22:44
there's no epilepsy in our family backgrounds so.. de novo mutation probably accounts for more genetic epilepsies than otherwise. we do give a magnesium supplement to our 13yo, helps with sleep, also likely to help with visual migraine recently dx, some parents say it helps with their kid's seizures. it has been studied with migraine patients. melatonin doesn't help our daughter (10yo) sleep better and she never had problems going to sleep.  haven't tried extended release melatonin as she can't take a solid pill. 

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