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Possible absence seizures in 12-year-old

Sat, 04/22/2017 - 19:30
Hello. I'm very concerned and found this site. I have a 12-year old son. Over the past maybe 3-4 months, we've noticed a few occasions (maybe 4-5, although I'm not sure), in which he would suddenly zone completely out for maybe 5-10 seconds. He could be in the middle of telling a story, then suddenly stop and look zoned out, and then he'd come out of it and often say, "wait, what?" It's possible it could have happened more frequently, but we haven't personally observed it. At first we thought he was just distracted or overtired. He has struggled with insomnia for years. He's is an over-achiever, super concerned with academics, and tends to be a worrier. No extreme anxiety, but he tends to have stuff on his mind. The last couple of times, however, we started wondering. And this morning I found out that one of his teachers had observed such an incident. So of course I start researching, and I came across "childhood absence epilepsy" or "childhood absence seizures." Panic. Then I come across "juvenile absence epilepsy" and "juvenile myoclonic epilepsy," which appear to be lifelong and would mean physical seizures. He already has a neurologist, who we met years ago to help with his pretty nasty insomnia. I'll call her first thing Monday morning. But holy heck I am SCARED! I'm worried about him emotionally. He's already an anxious kid. I'm worried about him physically (skiing, swimming, someday driving). I'm worried about his long-term life. I know I'm putting the cart before the horse, but damn. These things sure do look like absence seizures. A bit of extra info. As a young toddler and sometimes as a younger child, he'd occasionally get a tic. For example, he'd go through a period when he'd blink a lot. Noticeably so. Anyway, I'm just looking for advice, thoughts, anything. Thank you!

Comments

If only we had an actual

Submitted by Elljen on Sat, 2017-04-22 - 22:35
If only we had an actual crystal ball to see what the future brings.  Not knowing is brutal when we simply want, more than anything, our children to grow up happy and healthy.  I'm sorry you are going through this.  To the best of my knowledge, nobody in my family, or my husband's, has/had epilepsy.  But who knows?  I can tell you that sleep has been brutal for my son, more than ever, simply because school homework is crushing him.  I can't stand it.  He just started middle school, and there is often so much work that he's up quite late at night.  Middle school starts earlier than elementary, so he's had to wake up earlier than in previous years.  I know he's not getting as much sleep as he should.  And with insomnia, it's not like I can just make him catch up on weekends by getting him to bed earlier.  There's no guarantee that he'll fall asleep immediately, or that he won't wake up during the night and have difficulty falling back asleep.  Usually reading helps him, but there's no guarantee.Interestingly enough, for the first few months of middle school, although he did have to deal with later nights and early wake-ups, he slept beautifully.  He was even too tired to want to read before bed.  It's only in the past couple of months that the insomnia has returned, and that's when we began noticing these episodes.

I'm terrible like that.  My

Submitted by Elljen on Sat, 2017-04-22 - 22:35
I'm terrible like that.  My husband is a cross-that-bridge-after-we-get-to-it kind of guy.  I'm a MUST KNOW AND DEAL WITH IT NOW type of personality.  :/My concern is camp.  He goes to sleepaway for a few weeks.  In the lake they are required to wear a life vest.  Not in the pool however.  Obviously there are life guards, but I could see them missing something like this in the first moments.  We'll have to talk to the camp directors (and eventually his division leader, pool director, etc) about it if this really is something. 

if seizures are not properly

Submitted by Amy Jo on Sat, 2017-04-22 - 22:41
if seizures are not properly controlled, driving will be in question- you can't know that now, do not get too far ahead of now.until you know more, swimming alone is not recommended but kids   don't usually swim alone. needs someone who knows the risk to pay attention and be able to respond.frankly the bigger danger to kids (IMO) is parents being over protective and limiting kids.

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