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Possible absence seizures in 12-year-old

Sat, 04/22/2017 - 19:30
Hello. I'm very concerned and found this site. I have a 12-year old son. Over the past maybe 3-4 months, we've noticed a few occasions (maybe 4-5, although I'm not sure), in which he would suddenly zone completely out for maybe 5-10 seconds. He could be in the middle of telling a story, then suddenly stop and look zoned out, and then he'd come out of it and often say, "wait, what?" It's possible it could have happened more frequently, but we haven't personally observed it. At first we thought he was just distracted or overtired. He has struggled with insomnia for years. He's is an over-achiever, super concerned with academics, and tends to be a worrier. No extreme anxiety, but he tends to have stuff on his mind. The last couple of times, however, we started wondering. And this morning I found out that one of his teachers had observed such an incident. So of course I start researching, and I came across "childhood absence epilepsy" or "childhood absence seizures." Panic. Then I come across "juvenile absence epilepsy" and "juvenile myoclonic epilepsy," which appear to be lifelong and would mean physical seizures. He already has a neurologist, who we met years ago to help with his pretty nasty insomnia. I'll call her first thing Monday morning. But holy heck I am SCARED! I'm worried about him emotionally. He's already an anxious kid. I'm worried about him physically (skiing, swimming, someday driving). I'm worried about his long-term life. I know I'm putting the cart before the horse, but damn. These things sure do look like absence seizures. A bit of extra info. As a young toddler and sometimes as a younger child, he'd occasionally get a tic. For example, he'd go through a period when he'd blink a lot. Noticeably so. Anyway, I'm just looking for advice, thoughts, anything. Thank you!

Comments

Yes I found that sleep

Submitted by Sweetpea4 on Wed, 2017-04-26 - 22:28
Yes I found that sleep deprivation is a trigger and with your son's insomnia that cannot help.  My daughter's main trigger are her hormones. I understand about getting enough sleep ourselves. It is hard when we worry.  My daughter has sensitivity to light also. The computers at school bother her and they have done the strobe test with her. We also have had 24 hour video EEG done twice. When she had her 1st EEG it worked out that we went right to her Neurologist's appointment so she was able to pull up the info right in the office. She was put on medicine at that point. It has been up and down.   Hoping you can get some answers soon.

all sorts of basic epilepsy

Submitted by Amy Jo on Thu, 2017-04-27 - 01:36
all sorts of basic epilepsy info is under the learn section of this site. there are so many variations that one can really get overwhelmed by information that may not apply to your child's case (so, beware those dragons on the internet). medication helped our child sleep better and it improved each time the dose increased (most AEDs can have a tiring effect and many are taken twice a day so it can just be a welcome side effect that doesn't have to negatively impact day wakefulness). taking our child off one med really made the disrupted sleep worse, can't just use the meds for their side effects tho'. eegs - they may catch stuff you could not see, like epileptiform discharges that are associated with epilepsy. if history and eeg show something, they may call you to put him on meds before an appt. least that's what we experienced. I never saw anything helpful during an eeg, including seizures, which were so brief and not clear that it's great they record the video.

My son's so 's JME is mild

Submitted by mereloaded on Fri, 2017-04-28 - 19:25
My son's so 's JME is mild and has been easily controlled with a very low dose of keppra. My husband's cousin (unrelated to my son) has JME and hers is more severe., do it deoends. Medical literature all say that JME responds very well to medication in most cases. My son someyptines get insomnia as well. He has been nocturnal (so is my husband's cousin), so getting to day time routines prove difficult as they want to stay up at night. I find that computer/tv/ phone stimuli exarcerbates insimnia. Excersise helps people get tired and sleep better, so the doctor recommended him continue to exfesuze and be active during the day do he would improve the quality of his sleep. 

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