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Possible absence seizures in 12-year-old

Sat, 04/22/2017 - 19:30
Hello. I'm very concerned and found this site. I have a 12-year old son. Over the past maybe 3-4 months, we've noticed a few occasions (maybe 4-5, although I'm not sure), in which he would suddenly zone completely out for maybe 5-10 seconds. He could be in the middle of telling a story, then suddenly stop and look zoned out, and then he'd come out of it and often say, "wait, what?" It's possible it could have happened more frequently, but we haven't personally observed it. At first we thought he was just distracted or overtired. He has struggled with insomnia for years. He's is an over-achiever, super concerned with academics, and tends to be a worrier. No extreme anxiety, but he tends to have stuff on his mind. The last couple of times, however, we started wondering. And this morning I found out that one of his teachers had observed such an incident. So of course I start researching, and I came across "childhood absence epilepsy" or "childhood absence seizures." Panic. Then I come across "juvenile absence epilepsy" and "juvenile myoclonic epilepsy," which appear to be lifelong and would mean physical seizures. He already has a neurologist, who we met years ago to help with his pretty nasty insomnia. I'll call her first thing Monday morning. But holy heck I am SCARED! I'm worried about him emotionally. He's already an anxious kid. I'm worried about him physically (skiing, swimming, someday driving). I'm worried about his long-term life. I know I'm putting the cart before the horse, but damn. These things sure do look like absence seizures. A bit of extra info. As a young toddler and sometimes as a younger child, he'd occasionally get a tic. For example, he'd go through a period when he'd blink a lot. Noticeably so. Anyway, I'm just looking for advice, thoughts, anything. Thank you!

Comments

I'm terrible like that.  My

Submitted by Elljen on Sat, 2017-04-22 - 22:50
I'm terrible like that.  My husband is a cross-that-bridge-after-we-get-to-it kind of guy.  I'm a MUST KNOW AND DEAL WITH IT NOW type of personality.  :/My concern is camp.  He goes to sleepaway for a few weeks.  In the lake they are required to wear a life vest.  Not in the pool however.  Obviously there are life guards, but I could see them missing something like this in the first moments.  We'll have to talk to the camp directors (and eventually his division leader, pool director, etc) about it if this really is something. 

Assuming he'll need an EEG,

Submitted by Elljen on Sat, 2017-04-22 - 23:06
Assuming he'll need an EEG, which I suspect he will, is that usually done in the neurologist's office?  Or would it be in a hospital?  Or would he perhaps need to wear one of those take-home monitors (one of my son's friends had some seizures at school for a couple of years, and he had to wear a monitor for a couple of days). 

Isn't researching wonderful??

Submitted by just_joe on Sat, 2017-04-22 - 23:08
Isn't researching wonderful??? Everything at your fingertips can be just as bad for you as it is good. Like putting the hores before the cart. You are SCARED about him emotionally....I had a lot written but I then saw May Jo and you had been discussing things.You need to learn how your husband looks at things and try it a few times. That way you mihgt be able to look at the good and bad and land in the middle of the bridge.Amy Jo said a lot when she said epilepsy forces you to learn patience. You have to look at things as they come. Much like your husband and his bridge. So slow down some and look from all points of view rather then the researchers point.he is right when It comes to swimming not alone. I was the fish and taught cousins and others to how swim. But when I was a teen I always had friends with me.. Today I may swim but I also like keeping myself cool with my feet paddling in the water. Surfing I did some of and wake boarding I loved. But a person needs to use common sense. Should I do this now or wait until someone gets here. Questions always need to be answered. Waiting is the common sense answer.Driving is possible and should be done if the seizures are controlled.EEG's can be done both places

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