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Possible absence seizures in 12-year-old

Sat, 04/22/2017 - 19:30
Hello. I'm very concerned and found this site. I have a 12-year old son. Over the past maybe 3-4 months, we've noticed a few occasions (maybe 4-5, although I'm not sure), in which he would suddenly zone completely out for maybe 5-10 seconds. He could be in the middle of telling a story, then suddenly stop and look zoned out, and then he'd come out of it and often say, "wait, what?" It's possible it could have happened more frequently, but we haven't personally observed it. At first we thought he was just distracted or overtired. He has struggled with insomnia for years. He's is an over-achiever, super concerned with academics, and tends to be a worrier. No extreme anxiety, but he tends to have stuff on his mind. The last couple of times, however, we started wondering. And this morning I found out that one of his teachers had observed such an incident. So of course I start researching, and I came across "childhood absence epilepsy" or "childhood absence seizures." Panic. Then I come across "juvenile absence epilepsy" and "juvenile myoclonic epilepsy," which appear to be lifelong and would mean physical seizures. He already has a neurologist, who we met years ago to help with his pretty nasty insomnia. I'll call her first thing Monday morning. But holy heck I am SCARED! I'm worried about him emotionally. He's already an anxious kid. I'm worried about him physically (skiing, swimming, someday driving). I'm worried about his long-term life. I know I'm putting the cart before the horse, but damn. These things sure do look like absence seizures. A bit of extra info. As a young toddler and sometimes as a younger child, he'd occasionally get a tic. For example, he'd go through a period when he'd blink a lot. Noticeably so. Anyway, I'm just looking for advice, thoughts, anything. Thank you!

Comments

Assuming he'll need an EEG,

Submitted by Elljen on Sat, 2017-04-22 - 23:12
Assuming he'll need an EEG, which I suspect he will, is that usually done in the neurologist's office?  Or would it be in a hospital?  Or would he perhaps need to wear one of those take-home monitors (one of my son's friends had some seizures at school for a couple of years, and he had to wear a monitor for a couple of days). 

Thank you.  I know I should

Submitted by Elljen on Sat, 2017-04-22 - 23:12
Thank you.  I know I should be more like him, and it would help me a lot.  But 40+ years of this demeanor is a hard one to fix, lol! 

Just so you'll know I have

Submitted by just_joe on Sat, 2017-04-22 - 23:13
Just so you'll know I have been living and dealing with epilepsy for 50+ years. I speak from my own experiences.  Amy Jo researched and she has a child with epilepsy. My seizures are as controlled as they will ever be. A focal seizure every 8-14 days lasting 3-8 seconds don't bother me. You wouldn't know I had one unless I told you. So driving I know how to do. But I will only drive in a emergency.

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