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Seizures while sleeping~
Tue, 01/25/2005 - 17:03Topic: New to Epilepsy.com
Hello everyone,
I am new to this site... It is late, but I thought I would throw this question out -
Anyone have grand mals only while sleeping?
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.).
This encompasses my seizure history, mainly. Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control. When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest. Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening. However, there are times when I can not wake up enough. I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first. I suppose it is, but the experience is no less terrifying.
Thanks for the feedback,
Ache
Comments
RE: RE: RE: Seizures while sleeping~
Submitted by Lynn610 on Fri, 2005-03-04 - 10:11
Dear Cookie,Hi, Lynn here, we haven't met, I am new, but I understand how anxious you must be to change your meds and therefore see a change in your condition, but if you have a good doctor try to trust her, and work with her. It won't be long before you are off the T-Max. I am on it and I am wondering about the side effect that everyone is talking about. Can you tell me what they are. I was on Depakote and doing fine, and the only reason my doc put me on T-max was that I wanted to lose some weight and he said that it would help, which it did for about six months until I got used to it and then I regained the weight.Speaking of weight, My husband and I are wondering if it plays a part in all of this. He is noticing that I have a bit of Sleep Apnea (which I have had verified with a sleep study) and he is thinking that maybe shutting off the oxygen to the brain during sleep is what is causing the seizures at night. Any comments on that?
RE: RE: RE: RE: Seizures while sleeping~
Submitted by Willsmom on Sat, 2005-04-09 - 08:30
Re: sleep apneaTreating Sleep apnea has made a worls of difference to my son. His apnea is mild to moderate but using CPAP has made a huge difference in improving his tiredness and ability to think. It has also contributed to less Seizures we think.
RE: RE: RE: Seizures while sleeping~
Submitted by pongosmommy on Thu, 2005-03-03 - 18:58
1) Congratulations, 2) Congrats again, 3)Hopefully you can be weaned off t-max. Less Meds to control you the better I think. Personally I am happy to be off T-max. Sounds like things are going well for you. Great to hear that.Dayna