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Seizures while sleeping~

Tue, 01/25/2005 - 17:03
Topic: New to Epilepsy.com
Hello everyone,
 
I am new to this site... It is late, but I thought I would throw this question out -
 
Anyone have grand mals only while sleeping?
 
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.). 
 
This encompasses my seizure history, mainly.  Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control.  When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest.  Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening.  However, there are times when I can not wake up enough.  I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
 
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first.  I suppose it is, but the experience is no less terrifying.
 
Thanks for the feedback,
 
Ache

Comments

RE: RE: RE: Seizures while sleeping~

Submitted by Lynn610 on Wed, 2005-03-02 - 11:33
Hi Cookie,Please read my post under Seizures/sleeping/menopause just so I don't have to type it again.ThanksLynn610

RE: Seizures while sleeping~

Submitted by nicey on Thu, 2005-03-03 - 07:55

 

 

HELLO!

 

 

I STARTED HAVING SEIZURE IN 1997 WHICH STARTED OFF WHILE I WAS SLEEPING.  I NEVER KNEW I HAD THEM UNTIL THE NEXT DAY WHEN I WOKE UP AND SEEN THAT MY BED WAS EXTREMLEY WET AND TOUNGE WAS SWALLON AND ALL BIT UP.  i HAD TRIED SO MANY MEDICATION I CAN'T EVEN BEGAN TO NAME THIM ALL AFTER DOING THE MONITORING FOR A WEEK THAT'S WHEN THEY FOUND OUT THAT MY SEIZURE WAS COMING FROM THE LEFT SIDE OF THE BRAIN.  UP UNTIL TODAY THEY WOULD LIKE TO DO A SURGEY CALLED LEFT LOBE TEMPORAL WHERE THY REMOVE WHAT ITS CALLED THE HIPPOCAMPUS FROM THE LERT SIDE OF THE BRAIN WHICH STATES THATS WHERE THE SEIZURES ARE. THE HIPPOCAMPUS ON THE LEFT IS SMALLER THEN THE RIGHT.  MY SURGEY IS SCHUELDUEL FOR 03/30/05 I AM STILL UNDECIDED.  THIS COULD CHANGE MY LIFE NOT MENTION THAT I HAVE A SON THAT IS 12 YEARS OLD.

 

 

HELLO!

 

 

I STARTED HAVING SEIZURE IN 1997 WHICH STARTED OFF WHILE I WAS SLEEPING.  I NEVER KNEW I HAD THEM UNTIL THE NEXT DAY WHEN I WOKE UP AND SEEN THAT MY BED WAS EXTREMLEY WET AND TOUNGE WAS SWALLON AND ALL BIT UP.  i HAD TRIED SO MANY MEDICATION I CAN'T EVEN BEGAN TO NAME THIM ALL AFTER DOING THE MONITORING FOR A WEEK THAT'S WHEN THEY FOUND OUT THAT MY SEIZURE WAS COMING FROM THE LEFT SIDE OF THE BRAIN.  UP UNTIL TODAY THEY WOULD LIKE TO DO A SURGEY CALLED LEFT LOBE TEMPORAL WHERE THY REMOVE WHAT ITS CALLED THE HIPPOCAMPUS FROM THE LERT SIDE OF THE BRAIN WHICH STATES THATS WHERE THE SEIZURES ARE. THE HIPPOCAMPUS ON THE LEFT IS SMALLER THEN THE RIGHT.  MY SURGEY IS SCHUELDUEL FOR 03/30/05 I AM STILL UNDECIDED.  THIS COULD CHANGE MY LIFE NOT MENTION THAT I HAVE A SON THAT IS 12 YEARS OLD.

RE: Seizures while sleeping~

Submitted by nicey on Thu, 2005-03-03 - 07:57

 

 

HELLO!

 

 

I STARTED HAVING SEIZURE IN 1997 WHICH STARTED OFF WHILE I WAS SLEEPING.  I NEVER KNEW I HAD THEM UNTIL THE NEXT DAY WHEN I WOKE UP AND SEEN THAT MY BED WAS EXTREMLEY WET AND TOUNGE WAS SWALLON AND ALL BIT UP.  i HAD TRIED SO MANY MEDICATION I CAN'T EVEN BEGAN TO NAME THIM ALL AFTER DOING THE MONITORING FOR A WEEK THAT'S WHEN THEY FOUND OUT THAT MY SEIZURE WAS COMING FROM THE LEFT SIDE OF THE BRAIN.  UP UNTIL TODAY THEY WOULD LIKE TO DO A SURGEY CALLED LEFT LOBE TEMPORAL WHERE THY REMOVE WHAT ITS CALLED THE HIPPOCAMPUS FROM THE LERT SIDE OF THE BRAIN WHICH STATES THATS WHERE THE SEIZURES ARE. THE HIPPOCAMPUS ON THE LEFT IS SMALLER THEN THE RIGHT.  MY SURGEY IS SCHUELDUEL FOR 03/30/05 I AM STILL UNDECIDED.  THIS COULD CHANGE MY LIFE NOT MENTION THAT I HAVE A SON THAT IS 12 YEARS OLD.

 

 

HELLO!

 

 

I STARTED HAVING SEIZURE IN 1997 WHICH STARTED OFF WHILE I WAS SLEEPING.  I NEVER KNEW I HAD THEM UNTIL THE NEXT DAY WHEN I WOKE UP AND SEEN THAT MY BED WAS EXTREMLEY WET AND TOUNGE WAS SWALLON AND ALL BIT UP.  i HAD TRIED SO MANY MEDICATION I CAN'T EVEN BEGAN TO NAME THIM ALL AFTER DOING THE MONITORING FOR A WEEK THAT'S WHEN THEY FOUND OUT THAT MY SEIZURE WAS COMING FROM THE LEFT SIDE OF THE BRAIN.  UP UNTIL TODAY THEY WOULD LIKE TO DO A SURGEY CALLED LEFT LOBE TEMPORAL WHERE THY REMOVE WHAT ITS CALLED THE HIPPOCAMPUS FROM THE LERT SIDE OF THE BRAIN WHICH STATES THATS WHERE THE SEIZURES ARE. THE HIPPOCAMPUS ON THE LEFT IS SMALLER THEN THE RIGHT.  MY SURGEY IS SCHUELDUEL FOR 03/30/05 I AM STILL UNDECIDED.  THIS COULD CHANGE MY LIFE NOT MENTION THAT I HAVE A SON THAT IS 12 YEARS OLD.

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