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Seizures while sleeping~
Tue, 01/25/2005 - 17:03Topic: New to Epilepsy.com
Hello everyone,
I am new to this site... It is late, but I thought I would throw this question out -
Anyone have grand mals only while sleeping?
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.).
This encompasses my seizure history, mainly. Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control. When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest. Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening. However, there are times when I can not wake up enough. I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first. I suppose it is, but the experience is no less terrifying.
Thanks for the feedback,
Ache
Comments
Re: Seizures while sleeping~
Submitted by dede75 on Tue, 2013-01-22 - 14:42
I was my 20s when I was diagnosed with seizures I was living alone and I think I was having them but no one was there to see them. One day I was awake and I had one and my family witnessed it. At the time when I would wake up my jaw would be popped open and it would scare me. I guess my muscles in my face Tightened up. I still have tonic clonic only when am sleeping. My last one was a couple years ago when I went skiing in Colorado I had so many panic attacks about skiing that later that night I laid down and my husband said I was not down more than 5 minutes and I had one. Stress and lack of sleep is a major trigger for me. It is in important to stay on the meds.
What about when you have a
Submitted by Anonymous on Tue, 2015-07-28 - 03:08
What about when you have a seizure while you are asleep and it is to Wake up and then when you do wake up you can beerly stand up with out falling because that happened to me twice when I was in second grade
Re: Seizures while sleeping~
Submitted by itstwinsanity on Sun, 2011-05-29 - 09:54
For many years I had them only when I was sleeping. I didn't even know it for most of the time. I just said I "slept hard" because I woke with a killer headache, ached everywhere from top to bottom, and was still very groggy. Even for years after my diagnosis I only had them at night, and only occasionally then because the medications helped.
In the last year though my seizures have begun to change and happen more often and they are different. There have been some outside factors that have caused much of it, but mostly they just changed. It's been very frustrating because I always felt kind of safe about my seizures because I knew I'd only have them when I was "safe in bed".
So I'm not sure how common it is to have your seizures change like mine have, but unfortunately I do know it's possible. :(
I hope yours don't and I wish you well :)
For many years I had them only when I was sleeping. I didn't even know it for most of the time. I just said I "slept hard" because I woke with a killer headache, ached everywhere from top to bottom, and was still very groggy. Even for years after my diagnosis I only had them at night, and only occasionally then because the medications helped.
In the last year though my seizures have begun to change and happen more often and they are different. There have been some outside factors that have caused much of it, but mostly they just changed. It's been very frustrating because I always felt kind of safe about my seizures because I knew I'd only have them when I was "safe in bed".
So I'm not sure how common it is to have your seizures change like mine have, but unfortunately I do know it's possible. :(
I hope yours don't and I wish you well :)