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Seizures while sleeping~

Tue, 01/25/2005 - 17:03
Topic: New to Epilepsy.com
Hello everyone,
 
I am new to this site... It is late, but I thought I would throw this question out -
 
Anyone have grand mals only while sleeping?
 
My apologies if I'm not using the correct verbiage (grand mal, to me, meaning the 'generic' seizures 1 hears about mainly throughout life - full body convulsions lasting a couple of minutes, eyes rolling, etc.). 
 
This encompasses my seizure history, mainly.  Quick summary: If I have a petit mal, it starts in my right arm, electric feeling, tone in the ear, still have full control.  When sleeping, many times I wake up w/ what seems to have started as this right arm petit mal, but has 'spread' into my chest.  Most of the time I can wake myself up out of them...seems if my level of awake/self-awareness is high enough, I can stop a grand mal from happening.  However, there are times when I can not wake up enough.  I then lapse into a seizure, experiencing/remembering far too much (scary!), & then next thing I know I am waking up very groggy, & so on.
 
Some may see this as a blessing in disguise, as I have never had a grand mal when I've not been asleep first.  I suppose it is, but the experience is no less terrifying.
 
Thanks for the feedback,
 
Ache

Comments

RE: RE: Seizures while sleeping~

Submitted by cookieparty on Fri, 2005-03-04 - 17:56

I hope everything works out for you..your problems are a thousand times worse than mine and I just wanted to tell you that I was thinking about and praying that this procedure you have scheduled is successful...I don't blame you for being scared and concerned and undecided. It's all pretty surreal ..this seizure garbage..... I really hope that you find your answer!

With you!!!!

I hope everything works out for you..your problems are a thousand times worse than mine and I just wanted to tell you that I was thinking about and praying that this procedure you have scheduled is successful...I don't blame you for being scared and concerned and undecided. It's all pretty surreal ..this seizure garbage..... I really hope that you find your answer!

With you!!!!

RE: Seizures while sleeping~

Submitted by 18ANDdifferent on Thu, 2005-03-03 - 14:54

it sucks ive had them senc i was 4 and mine start in my right leg and work there way into a full body sezier i have not had one for a while but i am haveing all difernt ones know i am 18 now and if u need some one to talk to just know i am here it is nice to have someone to talk to i dont have that someone so i know it is a nice thing so good luck and give a chick a holer if u need any thing

 

                                                     jennie

 

it sucks ive had them senc i was 4 and mine start in my right leg and work there way into a full body sezier i have not had one for a while but i am haveing all difernt ones know i am 18 now and if u need some one to talk to just know i am here it is nice to have someone to talk to i dont have that someone so i know it is a nice thing so good luck and give a chick a holer if u need any thing

 

                                                     jennie

 

RE: RE: Seizures while sleeping~

Submitted by cookieparty on Thu, 2005-03-03 - 17:40
Hi everybody...haven't been back here for a while...verrry busy lately....just in case you all think it's alll baad....(can't say that it isn' bad sometimes), but, I haven't been here because 1) I have landed a huge  promotion at work! 2) God has blessed me with a seizure free time of 1 month and and a week...my seizures are doozies and only at night, but they sure do knock the crap out of me and it's not easy to fake my way through at the workplace so I have truley been thankful for my blessings. and 3) I am waiting for my neurologist to get back to me about my blood tests. She (a very good thing ..dealing with a female doc) is checking my levels of Lamictal before we start weening me off of Topamax. Now, my question...if the only side effects I am suffering from T-max in combination with Lamictal is the exhaustion that hits me every 48 to 72 hours, the shaky hands or "dancing head" at night while I'm watching tv with my loving husband from the T-max at night or the really good energy and focus I get from the Lamictal, should I take a chance and get off the T-max or just live with the side effects and leave well enough alone? Ladies, I feel pretty lucky right now....still working out, still eating right (Adkins) , new and better job ...more $$$$! , and no seizures..... what do you say? Oh yeah...hope you had a mah va lous time in Cancun , Renee...it's my favorite place!

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