Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Topamax - what's it like?
Tue, 05/09/2006 - 08:19Topic: Medication Issues
Hi
I am taking tegretol retard and keppra at the moment.
Yesterday when I saw my doctor, he has prescribed me to go on topamax and when on the full dosage, I can then come off the keppra gradually.
I dont know much about topamax.
My doctor said there are 3 types of side effects some people get when taking topamax:
1. tingling in hands and feet
2. weight loss
3. memory loss
Has anyone had any of these experiences with this drug?
Please let me know what this drug is like, I dont want to end up with memory loss and weight loss.
My doctor said that when people hear weight loss might happen they are delighted but it can be fatal if the drug is taken still even after noticing weight loss because you keep loosing the weight and is not good for you.
Any comments on this, please feel free.
I'm a bit anxious about taking it.
Many thanks in advance,
Quirky
Comments
Re: Re: Topamax - what's it like?
Submitted by Ramblinman on Thu, 2006-05-25 - 17:19
Up to 250 MG a day now - a little bit of short term memory loss, almost no seizures - Woo hooo!!! Still no $#%@#$% weight loss though. What the hell?!!!! :) I wanna lose weight.
Re: Re: Re: Topamax - what's it like?
Submitted by quirky on Fri, 2006-05-26 - 07:44
Hi Ramblinman
I started the topamax a week ago tomorrow, on 25mg a day, 50mg tomorrow for a week. So far, nothing major on side effects has happened besidesshort term memory loss now and then. But it is tolerable. I dont know how bad it will get. Too early to tell.
I haven't lost weight either :)
But at least your seizures are a lot less now - that's great news!
Keep in touch
Quirky
Re: Topamax - what's it like?
Submitted by Ramblinman on Tue, 2006-05-09 - 13:36
Topamax has been good for me. I have had the tingling in my hands and feet but unfortunately not weight loss. I don't think my memory has been effected. I am on 75mg twice a day and I have been on it for 6 weeks.