Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topamax - what's it like?

Tue, 05/09/2006 - 08:19
Hi I am taking tegretol retard and keppra at the moment. Yesterday when I saw my doctor, he has prescribed me to go on topamax and when on the full dosage, I can then come off the keppra gradually. I dont know much about topamax. My doctor said there are 3 types of side effects some people get when taking topamax: 1. tingling in hands and feet 2. weight loss 3. memory loss Has anyone had any of these experiences with this drug? Please let me know what this drug is like, I dont want to end up with memory loss and weight loss. My doctor said that when people hear weight loss might happen they are delighted but it can be fatal if the drug is taken still even after noticing weight loss because you keep loosing the weight and is not good for you. Any comments on this, please feel free. I'm a bit anxious about taking it. Many thanks in advance, Quirky

Comments

Re: Re: Re: Topamax - what's it like?

Submitted by Dalia on Fri, 2006-05-12 - 14:09
hi Quirky, im on Topamax /150 mg par day/ almost 6 months and i have all this things that u write in ur first post - tingling in hands and feet, weight loss and memory loss. Its start with tingling in hands and feet and very bad taste i my mouth, then come weight lose - this is good cuz with Lamictal what i was take before im +weight and i hate this :-( but now this weight lose stop so i stay on same weight from maybe 2 months but maybe memory lose is more bad - its start from last 3 or 4 months i did not note this on beginning and now become wrose andddddd i have a lot hair lose also... Topamax work so so for me but i dont have grand mal seizures so this is good news for my health. Dalia

Re: Re: Re: Re: Topamax - what's it like?

Submitted by quirky on Mon, 2006-05-22 - 07:32
Hi Dalia That is good news! No more grand mal seizures- yahoo! i'm very happy for you. I just started taking topamax 2 days ago. I'll see how it goes. I've to go up 200mg a day in 8 weeks. I used to be on lamictal but I'm glad to be off it. It was horrible! I hope this works for me. Keep in touch, Quirky

Re: Re: Re: Re: Re: Topamax - what's it like?

Submitted by Dalia on Thu, 2006-05-25 - 15:18
Hi Quirky I hope u will feel better with Tomapax. For me Lamictal was ok - just little problems but... 200 mg a day is not so high dose so i hope u will not feel all bad side effects. Good luck with Topamax :-) Dalia

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.